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05-26-2014, 06:12 AM   #1
kez035
 
Join Date: May 2014
Possible Crohn's disease. Need some help :(

Hi everyone, i'm after some advice please. My partner has suffered with abdominal discomfort and gastric symptoms for several years now. He gets diarrhoea, constipation, mucousy stools (sorry, tmi). He also gets alot of bloating and tenderness, in particular around the rising colon area. His stomach makes constant noises and gurgling, and he has occasional vomiting.

The thing is over the last month the vomiting, bloating and abdominal pain has been more frequent (2-3 days a week). He has always assumed that he has ibs and the vomiting is down to something he has eaten, but due to the frequency of it now and the fact that no one else in the house seems to have problems he has started to think it could be something else. He has found out that his cousin has crohns and was wondering if it could be that.

The problem is that right now he is really not well. He is in bed with vomiting and abdominal pain again, and i was wondering if there is any way of relieving the symptoms while he waits for a GP appointment?

Any advice or suggestions would be greatly appreciated as he is really suffering with this now
05-26-2014, 08:35 AM   #2
Daisy123
Senior Member
So sorry your partner is ill. It sounds consistent with crohns but it is difficult to say without proper tests. Is he going to the toilet? If not, it might be worth taking him to hospital. At least there they can do tests to find out what the issue is. Otherwise, just sips of water and paracetamol for the pain if he can keep them down.
05-26-2014, 08:49 AM   #3
kez035
 
Join Date: May 2014
He's just informed me that he hasn't had a bm for 2 days, so i'm starting to think a partial blockage? He says he's feeling a bit better now, and he has some senokot so hoping they help a little. He doesn't want to go to the hospital (is this a man thing? Lol) but i will be ringing the docs first thing tomorrow to get him in...but if he gets any worse then he will be going to the hospital whether he likes it or not!!
05-26-2014, 09:05 AM   #4
Hunt
 
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Sorry to hear the trouble your other half is going through, most of the symptoms you've mentioned I've personally experienced. The only thing that would guarantee/rule out anything would be to seek a specialists advice in the hospital as frequent trips to the GP can lead to a variety of diagnosis and the problems might continue.

GPs can only do so much, sometimes it's better to think of yourself and try to find out the problem instead of the constant suffering.
05-26-2014, 09:10 AM   #5
kez035
 
Join Date: May 2014
Yeah i was telling him earlier that the gp will say it's this, that or the other...and not to let them fob him off with the 'it's viral' crap! I think that if he gets bad again then i may just ring for an ambulance because he is pretty bad, felling like he'll pass out and in pain

I've been reading your responses to him, and he's more open to going to the hospital if it flares again, so that's a step in the right direction
05-26-2014, 09:16 AM   #6
Hunt
 
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Yeah i was telling him earlier that the gp will say it's this, that or the other...and not to let them fob him off with the 'it's viral' crap! I think that if he gets bad again then i may just ring for an ambulance because he is pretty bad, felling like he'll pass out and in pain

I've been reading your responses to him, and he's more open to going to the hospital if it flares again, so that's a step in the right direction
Good! I left my problems ongoing for a while and I was admitted as soon as I had my colonoscopy, it's better to deal with it as soon as you can.

Right now I'd probably keep him off solid food until the pains subside, probably give him light things like fruit juice, soups, yogurts.. etc things that don't overwork your bowel or you could even liquefy his meals just to give the digestive process a break. As for the pain, paracetamol every so often or maybe something stronger and hopefully that works in the mean time.
05-26-2014, 09:40 AM   #7
kez035
 
Join Date: May 2014
Great, thanks for all the advice. Soup it is then

Still going to call the gp in the morning in the hope that they'll refer to gastro due to family history, but if things flare we'll be making a trip to the hospital to see if he can get any answers there.
05-26-2014, 01:28 PM   #8
DJW
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Hi kez. Sorry your partner is doing so poorly.
I would go to the hospital if I was in his shoes. A lot of pain and unable to go to the washroom means something is going on.
They can assess him, give fluids and manage his pain. If he's like me he doesn't want to worry people - he may be feeling a lot worse than he's letting on.

Sending you both my support. Hope you get answers soon.
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05-26-2014, 01:58 PM   #9
kez035
 
Join Date: May 2014
He's alot more comfortable right now, and he has managed to go to the bathroom a bit. He is agreeing however in regards to going to hospital. He's had some soup for now and some small amounts to drink, andhas said that if the pain and vomiting returns then i am allowed to call for an ambulance (obviously he won't be able to drive himself and i can't drive and we have 2 young kids), but that in itself is something.

I've been trying to get him to see someone about his stomach for 10 years now...shame it had to get this bad before he agreed with me!
05-26-2014, 02:04 PM   #10
Daisy123
Senior Member
You must make sure that he sees his GP and doesn't wriggle out of it when he feels better. He should see a GI.
05-26-2014, 02:18 PM   #11
kez035
 
Join Date: May 2014
Trust me, he's not getting out of it this time! I'll drag him there by his ears if i have to
05-26-2014, 02:24 PM   #12
kez035
 
Join Date: May 2014
I did get him there once about 8 years ago and the gp said after about 30 seconds, it's colic...you'll be fine. It made him feel like an idiot so he's never gone back. But now he knows something is definitely wrong, and now he knows his cousin has crohn's he's more willing to go.
05-26-2014, 02:34 PM   #13
Daisy123
Senior Member
I did get him there once about 8 years ago and the gp said after about 30 seconds, it's colic...you'll be fine. It made him feel like an idiot so he's never gone back. But now he knows something is definitely wrong, and now he knows his cousin has crohn's he's more willing to go.
He is a typical man then! Make sure that when he sees a specialist, it is a top specialist. When I was first ill, my GP thought it was stress and I kept on being sent away. It was during my finals at University. I remember my parents paid for me to see a GI privately who diagnosed me from symptons then transferred me back to the NHS for treatment.
05-26-2014, 02:52 PM   #14
kez035
 
Join Date: May 2014
I'm going to request for him to see our sons...he has wheat intolerance and his gi was very interested in the family history. And she was very thorough in ensuring my little boy didn't have crohn's, but she did say that he is at risk of developing it
05-26-2014, 02:54 PM   #15
kez035
 
Join Date: May 2014
I will look into the private route though...but i know my sons gi does private consultations as well as NHS.
05-26-2014, 03:17 PM   #16
Daisy123
Senior Member
I will look into the private route though...but i know my sons gi does private consultations as well as NHS.
I was diagnosed in 1983 by a specialist at Bournemouth hospital. When I came to london, I originally went to my local hospital where I had the most horrific experience. I have been going to St Marks for over 20 years now, I like being at a hospital that specialises in bowels. You should be able to get a GI appointment quite quickly given your husband's symptoms. The only thing I can say is treatment is so much better than when I was diagnosed, it must be worrying to think that your sons could get Crohn's. Hopefully that won't happen!
05-26-2014, 03:31 PM   #17
kez035
 
Join Date: May 2014
My sons list of conditions is as long as my arm already. He was seen by a gi within a week of his dietician raising concerns about his symptoms which were thought to be coeliacs. So hopefully you're right and my partner will be seen pretty quickly. We're based in north Staffordshire and it can be hit and miss as i've found out through my son being under several consultants...but i'll be happy if we can get my partner under the same gi, as she is a surgeon as well as consultant. We have a good gp at the mo who i've gotten to know through my son seeing him, and he is one who listens, he is fab!
05-27-2014, 08:59 AM   #18
kez035
 
Join Date: May 2014
Looks like we're going to have to go with the hosputal option...called the GP and there are NO available appointments at all!! Unbelievable :/
05-27-2014, 09:34 AM   #19
Daisy123
Senior Member
That is awful. How LNG before an appointment? So are you taking him to A&E? If so, I would recommend taking him to the hospital where your son is treated.
05-27-2014, 09:54 AM   #20
kez035
 
Join Date: May 2014
They just said that there are no bookable appointment at all, just ridiculous! He's feeling good today so he said he'll go to our local hospital and see if they can put a referral in, but if he feels bad he'll go to the A&E at the hospital my son goes to.
06-04-2014, 05:12 AM   #21
kez035
 
Join Date: May 2014
Ok, so just a quick update. We managed to get him in to see a GP yesterday, and the GP found it funny that he has 'diagnosed himself'. The GP said he does not have Crohn's on the basis that he is not passing blood?? He is treating him as IBS and has prescribed mebevine 135 and will se him again in 3 weeks. He has however requested a blood test screening for Crohn's and Coeliac....i know with Coeliac that they will be looking for IgA and IgG levels, but what will they look for with Crohn's?

I'm not convinced that he has IBS, but is the GP correct in saying that a lack of blood in his stools completely rules out Crohn's?

Thank you to everyone for your advice up to now
06-04-2014, 05:17 AM   #22
gemling
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GP is incorrect with lack of passing blood meaning he doesn't have Crohn's. I have never passed blood in my stools and I have Crohn's. My Crohn's is in my small intestines, which means any bleeding would be well incorporated into the stool and difficult to identify when passed. I also never really had any major issues with diarrhea, only occasional and certainly not multiple times a day.

But I definitely have Crohn's.
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06-04-2014, 05:21 AM   #23
kez035
 
Join Date: May 2014
Thank you, i didn't think it was an 'in all cases' symptom. He's having the blood test on monday so hopefully we'll have some answers then. Is it just changes in blood cells showing inflammation that they look for, or is it a more in depth gene screening? I haven't the foggiest when it comes to blood screening for Crohn's.
06-04-2014, 05:35 AM   #24
Daisy123
Senior Member
I don't have blood all the time when in a flare. Inflammation doesn't always show up in blood tests. IBS as a diagnosis is used far too often.
06-04-2014, 06:00 AM   #25
Catherine
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A gp should be testing inflammatory markers and checking there is no anemia.

Attaching uk guidelines for IBS.

http://www.patient.co.uk/doctor/irri...l-syndrome-pro
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06-04-2014, 06:45 AM   #26
kez035
 
Join Date: May 2014
Brilliant, thank you very much for that. I know his cousin was diagnosed with IBS by several doctors, but when nothing they advised was working, they looked into it more and she was diagnosed with Crohn's. He's also been advised to look at FODMAP...when i explained it to him last night he was less than impressed, lol.

Guess we'll just have to wait for the blood test results now and hope that gives him a definite answer.

Going in the right direction now at least.
06-04-2014, 07:00 AM   #27
Catherine
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I have a dx of IBS and daughter has Crohn's.

Before her dx, we both did the FODMAP diet. While I got better on the diet she got sicker.
06-04-2014, 07:21 AM   #28
gotumtum
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I hope you don't mind my 2 cents although I am undiagnosed...

I understand that with the FODMAP diet there are a couple of theories...

one is that it is a cumulative thing ie don't eat too many overall in one day, but a little of one or two might be OK

Also - some people think it is just a general guideline of foods to be aware of ie some people cut out fodmaps or reduce as much as possible, then add them in slowly to see which ones are the problem / increase tolerance - some people are fine with some of them. Note - maybe talk to a health professional before going on an elimination diet like this as it can be hard on the body.

I used to find that when my tummy was dodgy I had to stay away from them, but when I was OK they were mostly fine - so let your husband know that if fodmaps are the problem there is hope
06-04-2014, 07:31 AM   #29
kez035
 
Join Date: May 2014
He's going to give it a try like the GP advised, but none of his symptoms seem to be exacerbated by any of the foods on the bad FODMAP list, but i have told him to do what we did with our son and keep a food diary. That way he can see if there is any link or not.

Thing is his symptoms have got worse over the last few weeks, and seemed more like obstruction than anything. He said he felt the best he has in months yesterday, which was sods law, as when the GP palpated his abdomen he felt ok, but if he'd done it last week he would have been jumping in pain.

I still have the nod for him to go the hospital route if he's bad though.
06-04-2014, 07:36 AM   #30
Daisy123
Senior Member
I couldn't do the FODMAP, fibre makes me worse at the moment. On the low residue diet which helps, but very difficult. I have been on it three months now. I remember my mum having IBS, she used to get horrific constipation. But other things need to be ruled out first. I have both IBD and IBS, but luckily not of the constipating type.
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