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Crohn's Disease Forum » Support Forum » Back in flare


05-27-2014, 04:34 AM   #1
Daisy123
Senior Member
Back in flare

So after an unsuccessful flexible sigmoidoscopy last week which failed to dilate my strictures which miraculously disappeared, and just showed some very small ulcers around my anastomosis, I am now at the beginning of my first proper flare in years. I wonder if the ulcers were the beginning of the flare or whether the distress of going through the scope for seemingly no reason has caused my crohns to flare. I don't know what to do, I don't want to ring the IBD nurse again as I feel like a fraud pushing for tests when there was nothing wrong. My GI appointment is in July, and after that a MRI or full colonoscopy to see where the pesky strictures have disappeared.

Thanks
05-27-2014, 11:53 AM   #2
valleysangel92
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Hello Daisy

I'm sorry to hear that you are flaring .

You aren't a fraud, clear tests don't always mean there's nothing going on.

I understand how you feel, I felt the same about ringing my nurse before.. And then I landed in hospital. All my tests said I wasn't that bad but my body said different.

You know your own body better than anyone, so if you feel like something is wrong then it more than likely is.

Crohns is a tricky disease with lots of ways of hiding. Your disease may simply be too far up the intestine for the sigmoidoscopy to see properly. The ulcers alone are a sign that something more could be happening.

Follow your instincts. I don't think you should wait until July to get seen, things could get so much worse between now and then.

What's your GP like? Maybe they could contact the hospital on your behalf if you don't feel like you should yourself?
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Nicola
coeliac disease/Osteopenia /Crohns/Arthritis/
laperoscopic hemicolectomy 25/06/ 2013

Meds- Vedolizumab, sulfasalazine, Lansoprazole, Vitamin D, prochlorperazine, Oramorph, MST, B12 shots My journey with crohns: http://glutenfreecookiemonster.wordpress.com/

Allergic to - inflectra, aza

Non CD meds - Gabapentin, paracetamol, ventolin
05-27-2014, 03:36 PM   #3
Daisy123
Senior Member
I have booked to see my GP in a couple of weeks. Even though I have had this illness for 30 years, I feel so unsure of myself. I feel exhausted and fed up.
05-29-2014, 05:55 AM   #4
Daisy123
Senior Member
I gave in and emailed the hospital as I was very unwell last night
05-29-2014, 05:56 AM   #5
valleysangel92
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I'm glad to hear you've contacted the hospital now. I hope they get back to you quickly.
05-29-2014, 06:23 AM   #6
lgpcarter
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Glad you contacted them. Leaving a possible flare for a month could land you in bad shape. I second guess my decisions to contact my doc or decide to stop medications (just decided no more Simponi and wondering if that was the right choice), but you need to go with your gut (ha!).
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Diagnosed in with Crohn's in large and small bowel in 2000.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Entyvio every 8 weeks, Imuran 50 mg, Flagyl and Cipro 500 mg twice a day
Previously: Remicade, Humira, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone
05-29-2014, 09:32 AM   #7
Daisy123
Senior Member
I had to push for the CT, and was so distressed after the sigmoidoscopy when my GI couldn't find the strictures that I began to doubt myself especially as I have been diagnosed with IBS. Last night I had such severe stabbing pains after being to the toilet that I had trouble catching my breath and today I am distended. A part of me is so exhausted with trying to get this sorted out that I don't feel I can cope with pushing to see my GI. Sending the email allowed me not to have to talk about, although it will take a week to get a response.I am rambling! Thanks for the support
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