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Crohn's Disease Forum » Diet, Fitness, and Supplements » Overwhelming allergy test results :(


07-08-2009, 12:46 AM   #1
num1habsfan
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Overwhelming allergy test results :(

So after going a bit of 6 years since my last sets of allergy tests, I had the injection, 2-day type ones. And now, I really don't know what to do . Here's a list of everything I tested positive for...

moulds/pollens/fungi/animal danders:
alternaria, cephalosporium, helminthosporium, hormodendrum, pollularia, house dust, aspergillus, dematiaceae, penicillium, cats, dogs

And now the food....
corn, wheat, milk, egg, potato, tomato, lettuce, beef, pork, orange, apple, oats, rice, yeast, soybean, fish, chicken

What do I do now that i'm allergic to gluten AND gluten-free?!

I'm also being scheduled for a CT scan - this allergist is convinced that my undiagnosed stomach problems are the trigger for all of these food allergies. He asked about the symptoms I get from all these foods, so he says I need to cut out beef 100%...
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07-08-2009, 03:00 AM   #2
kello82
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ok, wait how can this be? what are you supposed to eat?

for example, all your protein sources? GONE
beef, pork, chicken, fish, milk, egg, soy (tofu and stuff)

theres nothing left! i feel a little skeptical somehow....
but idk anything about these things really.
07-08-2009, 03:16 AM   #3
beth
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I agree with Kello; doesn't seem right.

When I had some allergy tests done they just took some blood - I only got one slightly unexepected positive result.

Maybe you could have some done again by a different method?
07-08-2009, 04:42 AM   #4
Mazen
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Rice???? I once read that rice is one of the least allergic foods.........
07-08-2009, 10:12 AM   #5
num1habsfan
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It isn't impossible for those of us with Celiac disease, sadly...

If a person goes undiagnosed for too long (I went about 8 years, maybe more), there is a risk of developing Refractory Sprue, which is where the body will respond positively to a gluten-free diet, but eventually, become intolerant to gluten-free as well .

This allergist suspects Crohn's is the trigger, after I explained to him my symptoms, and he found it hard to believe that I have never been on any medications for treatment.

The receptionist suggested that for now, I do a rotation diet, where I eat small amounts of everything I'm allergic to only every 4 days (except for the beef). So I guess I'll have to get a day planner today and begin keeping track.

Maybe the next thing in my future is IV-based nutrition only....
07-08-2009, 10:20 AM   #6
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Holy hell, Lisa!!!!!
That really, really sucks. I'm so sorry
Your (IBD) specialists gave up on you??
Do you mind sharing what happens to you when you do eat the above foods?
Big hugs!!!
07-08-2009, 11:29 PM   #7
kello82
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num1habsfan said:

Maybe the next thing in my future is IV-based nutrition only....
maybe elemental??
i think its suitable for gluten free.....
maybe it would give your body enough of a break and time enough to heal that you could handle at least some foods again.

but really, what are you gonna eat? you said your only gonna eat the trouble foods once/ 4 days. whats a menu for the other three days gonna look like?
07-09-2009, 03:06 AM   #8
Mazen
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I don't know if you read the book "Breaking the Viscious cycle" which is the SCD diet; in it the author says that Gluten free is not enough for celiacs and that they should remove all disacharides from their diet i.e all grains (including rice and corn), sugar etc..... Maybe you can check if this diet suits you. Here is the link for it:

http://www.breakingtheviciouscycle.info/
07-09-2009, 03:27 AM   #9
crohnsappleadams
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I think the doc's idea of rotating through foods sounds the most enjoyable. Some of these overly restrictive diets sound absolutely awful, like they would have the capacity to suck all joy out of life.
07-09-2009, 07:38 AM   #10
My Butt Hurts
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crohnsappleadams said:
Some of these overly restrictive diets sound absolutely awful, like they would have the capacity to suck all joy out of life.
Though crapping your pants in public can also suck the joy out of life. I'd rather have a restrictive diet than have my Crohn's symptoms.
07-09-2009, 07:45 PM   #11
crohnsappleadams
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My Butt Hurts said:
Though crapping your pants in public can also suck the joy out of life.
You lack a sense of adventure.
07-09-2009, 08:03 PM   #12
My Butt Hurts
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crohnsappleadams said:
You lack a sense of adventure.
Brat.
Have you crapped your pants in public? Seriously - I have. It's not fun.
07-09-2009, 11:49 PM   #13
kello82
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crohnsappleadams said:
You lack a sense of adventure.
what the hell does that mean?!
do you think sitting on the toilet in the bathroom of starbucks with shit all over every item of clothing on your body whilst trying to figure out how to get out of the store without embarrasing yourself in front of the 5 friends that are waiting for you nevermind the 40 other strangers is an adventure?
is changing your shorts 4 times throughout the night and scrubbing the bathroom floor at 3 am so that your other family members dont slip in your crap cause you couldnt make it to the toilet even when your room is 4 feet from it an adventure?
really now, please clarify.
07-10-2009, 01:48 AM   #14
RHOV
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sarcasm much? all of you?
07-10-2009, 03:34 AM   #15
BWS1982
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I've had situations as Kelly and Jill described. I wouldn't use adventurous simply because in the vast depths of the English vocabulary, no word describes the horror I recall when the memory enters my mind. The bowel control was my worst issue with Crohns, and quite possibly the worst thing I've had to endure in life besides heartbreak. I hope it stays a memory, or even better, I forget I went through it.

That said, I'm assuming CrohnsAppleAdams was being facetious, as RHOV mentioned.

Only two places can I joke about crapping your pants in public or at work at this point: On this forum with fellow sufferers who've had it happen as well, and alone with my gf (when no one else is around). I don't have (nor desire) the emotional transparency to allow anyone else to even know I went through it, even though the sheer essence of going through it meant many people knew, unfortunately...

Habs, it sounds like you're classed as "allergic to food" I'd look into trying to trim that daunting list of "everything edible" into something survivable, as you've been through too much to start adding IV or tube feeding to the mix. Maybe the cycle concept will shed light on some inconsistencies and you'll be able to eat some of that afterall.
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Last edited by BWS1982; 07-10-2009 at 02:59 PM.
07-20-2009, 03:04 AM   #16
num1habsfan
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Just a bit of an update for you guys...

I have been trying the rotation diet, but not exactly succeeding. I can't eat one thing one day, and avoid most other ingredients at the same time. Any fellow Celiacs on here know it - everything gluten-free is made out of multiple ingredients that i'm allergic to - rice, oats, potato, corn, soy. So for that type of food I am simply just eating something a few days in a row and then skipping it the next. Maybe slowly i'll be able to extend the rotation for myself, but it is SO so hard.

i got my syrum in the mail the other day, so when I go to see one of my 4 family docs tomorrow afternoon I guess I'll take them along. Hoping that they'll help me with the food issue a little more. I also need something for this AWFUL flareup :/.

[on a side note, she was the one who said she may try me on a med that's actually for Crohns, and my other family doc said I should be on meds even without a diagnosis - i'm guessing that would ease up the attacks of flareups. So lets hope she keeps her word...]
08-13-2009, 06:28 PM   #17
twob
 
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Eat spelt bread or bread made with almond flour. I took my son off red meat for 4 months. Now he only eats grass fed beef and does fine with it. Amazing what you can make out of Turkey and Lamb. Great burgers, meet loaf, meatballs ect....

Good luck.
09-07-2009, 12:04 PM   #18
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bit late for replying, but only just registered

just wanted to throw it in the mix, but have found Quinoa pretty good because i have wheat issues. very much similar to cous cous but is one of those kind of 'superfoods' you hear about from time to time......really recommend everyone to look it up and try if they haven't already
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