Hi Everyone
Please can you put this in the undiagnosed people thread if if is not supposed to be in this "intro' one?
My name is Tracey and I live in New Zealand. I have a colonoscopy and gastroscopy booked for a months time and am a bit grumpy about the whole situation!
I am here as I need to 'talk' but my poor Husband, Mum and Sister have been through so much in the last few years that I want to spare them a little. And strangely as I have been reading some posts on this site - I feel that I can be more open about the...poo..."situation" than I can with them anyway! Please tell me if there is ever TMI!
I am here because I have had issues with d and vomiting and nausea. This started about 6 weeks after my daughter was born. Initially they said, hormones / virus. 2 weeks later they did more tests and said well, prob virus, 4 weeks later they said...sinus infection - but I did have a sore throat / sinus pain etc (prob due to vomiting in hindsight) They prescribed me doxycycline (antibiotic) as I cannot have Sulfur medications and cannot have penicillin anymore. The doxycycline cleared up the sinuses and upset tummy and so I carried on as a new Mum
In the first 12 months since having my daughter I have had approx 10 rounds of doxycycline. Initially 7 days in first month, graduating to a 10 then 30 day course. Each time the 'sinus infection' came back with the d, vomiting and nausea. When I say d I mean colonoscopy prep every day
I managed to get in to see and ear, nose and throat specialist and have a scan of sinuses. They are fine, and he suspects that I am having a facial migraine - as well as whatever is causing the tummy issues.
I have had a lot of fecal tests and blood tests over the last year. My CRP has only been up once - 23 I think - about 4 weeks into this but I wonder if the doxycycline has been keeping it down since.
My fecal calprotectin was tested once but was not up - again the doxy might be affecting it?
I had a positive Fecal Occult Blood (1 of 3)
So I am a bit stumped. I have always had a dodgy tummy - low gluten diet seemed to help. I have had a colonoscopy and gastroscopy about 7 years ago that came back normal even though I was quite sick.
I can tell that my magnesium is low as I am getting migraines, restless legs and having sleep issues again. I know that I am getting run down too - fatigue, aches and pains etc
I suppose I feel the need to vent as I am terrified of being told that I have to come off the doxycycline, but that there is nothing that they can do and that it is all in my head - or IBS and that they can do nothing. I have a beautiful (very active) daughter to care for, and have just found a degree I want to study for (after I finish my current certificate)
The sad thing is that I kind of hope I do have this as I would have people that understand it and it would be 'measurable'. and there would be options for treatment - The last few diagnosis' that I have had have always been ... unmeasurable - migraine, restless legs, periphal neuropathy...
I am also sad as this has taken away from me being the best mum I can be, and has made the journey of being a new mum sooooo much more difficult.
I just want to go back to being a proper Mum.
Thanks for letting me vent.
Tracey
Please can you put this in the undiagnosed people thread if if is not supposed to be in this "intro' one?
My name is Tracey and I live in New Zealand. I have a colonoscopy and gastroscopy booked for a months time and am a bit grumpy about the whole situation!
I am here as I need to 'talk' but my poor Husband, Mum and Sister have been through so much in the last few years that I want to spare them a little. And strangely as I have been reading some posts on this site - I feel that I can be more open about the...poo..."situation" than I can with them anyway! Please tell me if there is ever TMI!
I am here because I have had issues with d and vomiting and nausea. This started about 6 weeks after my daughter was born. Initially they said, hormones / virus. 2 weeks later they did more tests and said well, prob virus, 4 weeks later they said...sinus infection - but I did have a sore throat / sinus pain etc (prob due to vomiting in hindsight) They prescribed me doxycycline (antibiotic) as I cannot have Sulfur medications and cannot have penicillin anymore. The doxycycline cleared up the sinuses and upset tummy and so I carried on as a new Mum
In the first 12 months since having my daughter I have had approx 10 rounds of doxycycline. Initially 7 days in first month, graduating to a 10 then 30 day course. Each time the 'sinus infection' came back with the d, vomiting and nausea. When I say d I mean colonoscopy prep every day
I managed to get in to see and ear, nose and throat specialist and have a scan of sinuses. They are fine, and he suspects that I am having a facial migraine - as well as whatever is causing the tummy issues.
I have had a lot of fecal tests and blood tests over the last year. My CRP has only been up once - 23 I think - about 4 weeks into this but I wonder if the doxycycline has been keeping it down since.
My fecal calprotectin was tested once but was not up - again the doxy might be affecting it?
I had a positive Fecal Occult Blood (1 of 3)
So I am a bit stumped. I have always had a dodgy tummy - low gluten diet seemed to help. I have had a colonoscopy and gastroscopy about 7 years ago that came back normal even though I was quite sick.
I can tell that my magnesium is low as I am getting migraines, restless legs and having sleep issues again. I know that I am getting run down too - fatigue, aches and pains etc
I suppose I feel the need to vent as I am terrified of being told that I have to come off the doxycycline, but that there is nothing that they can do and that it is all in my head - or IBS and that they can do nothing. I have a beautiful (very active) daughter to care for, and have just found a degree I want to study for (after I finish my current certificate)
The sad thing is that I kind of hope I do have this as I would have people that understand it and it would be 'measurable'. and there would be options for treatment - The last few diagnosis' that I have had have always been ... unmeasurable - migraine, restless legs, periphal neuropathy...
I am also sad as this has taken away from me being the best mum I can be, and has made the journey of being a new mum sooooo much more difficult.
I just want to go back to being a proper Mum.
Thanks for letting me vent.
Tracey