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Crohn's Disease Forum » Parents of Kids with IBD » Check-up time, fingers crossed


 
08-20-2014, 11:48 AM   #121
Clash
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So they scheduled the surgery for Aug. 26th, next Tuesday. But they need C to come in for an HMP)or something) tomorrow. He's trying to get his work schedule covered for tomorrow so we can go if not then I guess it will be to call and reschedule the surgery for the following week.

Ugghh. Had they told us there would be this HMP or whatever it is before today this would not have been a problem.
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Clash
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C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
08-20-2014, 12:02 PM   #122
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Wow that is quick. Hope insurance gets sorted easily.
08-20-2014, 12:34 PM   #123
Tesscorm
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That is quick! Hope you can get the HMP sorted out and not delayed! I'll be thinking of you and C!
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Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
08-20-2014, 02:03 PM   #124
Farmwife
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Wow, crazy fast. I pray all goes well.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
08-20-2014, 02:35 PM   #125
upsetmom
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Wow that was quick!


I hope everything goes well.
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Daughter dx CD March2012...
(aged 14)

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Dx Premature Ovarian Failure 2014



08-20-2014, 03:56 PM   #126
Clash
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Okay, so it's all sorted, HMP is tomorrow at 5:45 and we have to be at children's hospital next Tuesday at 10am. So what is HMP? The scheduler said it is where you go over the surgery but nurse said something about a physical?
08-20-2014, 04:39 PM   #127
DustyKat
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I don't know what HMP stands for but in every case of planned major surgery you need to have a pre-op visit. For Matt it was about a 4 hour exercise and included bloods, ECG, chest X-Ray, admission details, physical (obs, weight, height and quite a few questions most of which weren't applicable to a young person), consult with the anaesthetist, the surgical registrar and then his case manager.

In my thoughts.

Dusty. xxx
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08-20-2014, 04:56 PM   #128
Clash
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4 hours?? Wow, we might should get a room for the night!
08-20-2014, 05:54 PM   #129
DustyKat
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I recall T's Gab's was 7 hours! But Gab's surgery was far more complicated, bless her.

Much of the paperwork involved with the physical, outside of relevant admission details, was to assess the risk of post op complications and the expected outcomes once the patient was discharged and if home follow up would need to be flagged. So very much for a much older and/or far more debilitated cohort.

It is a perfect opportunity to ask questions though and it was here that I raised the probability of a stoma for Matt as he didn't have the stoma therapist ticked on the form of people he needed to see that day. I only raised it as it had never really been ruled out from his previous admission.

Dusty. xxx
08-20-2014, 06:54 PM   #130
Maya142
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Can't believe it's so soon! Will be thinking of you and C!
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Mom of M (20)
diagnosed with Crohn's Disease at 16
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dx with JIA at 14
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08-21-2014, 02:35 AM   #131
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Good luck hope it all goes well
08-21-2014, 07:40 AM   #132
Clash
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Ok so it is an HNP, history and physical. So, normally, like when my husband or I had our gall bladder removed we just had vitals taken and med. history, spoke with surgical team including anesthesiologist. I assume it will be the same here.

I'm also assuming if C decides on epidural then this is the appt to state that since it requires bringing in the pain managent team?

We will be leaving for the appt about 11 to give ourselves plenty of time in traffic.
08-21-2014, 09:21 PM   #133
Clash
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All went well with the appt today. We are set to arrive at the children's hospital at 10am Tuesday. They said surgery usually starts two hours later.

The appt today was just an in-depth explanation of the surgery, a vitals check and medical history. C chose to go with the pain pump instead of the epidural. I made sure he was well informed of what both were and of what would be required of him after surgery before he made the decision.

We will go up the day before and stay in a hotel so C will do bowel prep there. C seems good at this point and the doc said he was really impressed with C's attitude toward the surgery.
08-23-2014, 10:16 PM   #134
Mehita
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Good luck to you and your boy!
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