My name is Diane I was diagnosed the end of July when I came back from the Dominican Republic from vacation. I have been in the hospital 4 times last year and already 2 times this year I was off work from the end of July until December 12th and now I am off again until July 17th. I have been taking Remicade treatments since November. Just last Friday I took a treatment . Now it is every 6 weeks. I also started Imuran with it a week ago. I have to go for an Iron infusion on Tuesday. I don't start with diarrhea, I usually have flu like symptons that I can not get over on my own. I don't if everyone else has alot of other symptoms??? I am physically tired, mild headache, nausea, throw up sometimes, and of course my bones in my legs are really weak. (But I am sure that is from all the steroids) and I also have bone chills that just come on and also my head/hair and neck sweat so bad. It feels like I just washed my hair.
I guess that is it for now.
Thank-you for listening.
Diane
I guess that is it for now.
Thank-you for listening.
Diane