I was told yesterday by phone that my girl has vasculitis due to her Crohn's.
Three remicade infusions ago, her fingers turned blue right after infusion was done (it was done faster then usual). She was monitored for 2 hours and it resolved by itself. Pediatrician was at the clinic and told me it was vasculitis. Pedi and GI decided, after I asked to infuse at slower rate at next infusion, they said 6 hours. After we left the clinic her fingers got a little swollen and it took about 20 hours for the swelling to disappear completely. It was then decided to pre-med before infusion with benadryl and Hydrocortisone and do it slow again. Everything went great and no blue or swollen fingers after remicade. Six days later a little of blue, swollen fingers showed up. Also a rash on her forearm. I called the pediatrician and I was told to give her atarax. By the time I gave it to her, symptoms were already improving (it lasted about two hours). Doctor said that it was vasculitis related to her Crohn's not a reaction to remicade. ?????
She is on remission according to scopes. Any advice, opinions, or thoughts?
Three remicade infusions ago, her fingers turned blue right after infusion was done (it was done faster then usual). She was monitored for 2 hours and it resolved by itself. Pediatrician was at the clinic and told me it was vasculitis. Pedi and GI decided, after I asked to infuse at slower rate at next infusion, they said 6 hours. After we left the clinic her fingers got a little swollen and it took about 20 hours for the swelling to disappear completely. It was then decided to pre-med before infusion with benadryl and Hydrocortisone and do it slow again. Everything went great and no blue or swollen fingers after remicade. Six days later a little of blue, swollen fingers showed up. Also a rash on her forearm. I called the pediatrician and I was told to give her atarax. By the time I gave it to her, symptoms were already improving (it lasted about two hours). Doctor said that it was vasculitis related to her Crohn's not a reaction to remicade. ?????
She is on remission according to scopes. Any advice, opinions, or thoughts?