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Crohn's Disease Forum » Parents of Kids with IBD » Methotrexate sunburn


07-06-2014, 03:47 PM   #1
my little penguin
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Methotrexate sunburn

DS is on humira and Mtx.
He swims a lot.
So far no matter what sunscreen he puts on he is getting burnt on his neck and face.
As of now he is not allowed in the pool until almost 5 o'clock .
He wears rash guard shirts plus googles and a swim cap to help with protection.
Ideas for protecting the neck or face while swimming ???
Sunscreen has 23% zinc oxide in it.
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DS - -Crohn's -Stelara -mtx-IVIG
07-06-2014, 04:30 PM   #2
Lam123
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What SPF is using? And how often are you applying it?
I am very sensitive to the sun aswell. I wear SPF 60 and re apply it very often. I still get a small tan, but no burn. What brand are you using?
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Crohns for 26 years
Previous meds: Pentasa, Imuran
Current meds:
Humira weekly
- multi vitamin and vitamin D
- B12 shots monthly
Mother of one beautiful boy and a puppy! 👪🐶Happily married to an amazing and patient man, that I call my best friend❤️I'm just living life one day at a time and trying to figure out this crazy disease! 🍀🌞⭐️
07-06-2014, 04:31 PM   #3
Patricia56
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For a long time Badger burned every time even with SPF 50 applied hourly. But we discovered it was mostly a problem the day after he took it and got much better after that. Are you seeing anything like that?
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Badger, 18, CD, overall great guy
Dxd age 10, 2006 after nearly 1 year of active sx
Current CD meds: Remicade, Methotrexate and Omeprazole, Vit. D, Calcium, Folic Acid, Probiotic

Nothing I say here should be construed as medical advice. I am not a doctor. These are just my opinions.
07-06-2014, 05:00 PM   #4
my little penguin
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SPF 85 or SPF 40 etc...some normal sunscreens some half zinc/half sunscreen
Less than an hour in the pool
Mtx is on Thursday so two days after
At least it didn't blister
Last summer humira only at the beach
SPF 100 and blistering burns on his nose and upper lip
Again less than an hour - in the water rest of the time under a floppy hat /tent
Reapplying every time they got out or every hour .

Just trying to let him swim
All other outdoor times he wears a floppy hat with the neck guard
07-06-2014, 05:09 PM   #5
Farmwife
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Have you asked the dermatologist about this?
Could it be some kind of crazy reaction that the sun or sunscreen brings out?

For Grace we us 60 SPF and no sunburn.......yet.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
07-06-2014, 05:13 PM   #6
Lam123
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I agree, I would ask the dermotologist. Whenever I have taken meds that make me sensitive to the sun, a high SPF and applying often does the trick. And I also am very fair skin.
07-06-2014, 06:14 PM   #7
Maya142
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This JUST started happening to M (but she's on Imuran and Sulfaslazine not MTX) -- she's burning after even just an hour of swimming even though she's using waterproof sunscreen (SPF 60 or 85). No blistering though, your poor boy!

No idea what to do, I was thinking of asking her dermatologist who she has to see soon anyway.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
07-06-2014, 08:13 PM   #8
Catherine
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Get his vitamin d levels checked. Then supplement to get the top of the range.

The lower the vitamin d level the quicker you burn.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
07-06-2014, 08:16 PM   #9
my little penguin
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His vitamin d levels are low but he has been supplementing per the Gi since Jan .
07-06-2014, 08:26 PM   #10
araceli
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Maya. Both MTX and sulfasalazine may cause you to became sunburned more easy.
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Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
07-06-2014, 09:39 PM   #11
AZMOM
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Poor baby. Claire wears the 50 and a hat due to the MTX. She gets some come & go pink but no blistering. I'm so sorry!!! I'd call Derm too!

J.
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
07-06-2014, 09:50 PM   #12
kimmidwife
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I would reccomend those special shirts with sunscreen. I know they were invented in Australia. I think you can get them online. They sell shirts, special hats etc. they really work.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
07-07-2014, 03:31 AM   #13
Catherine
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Are you applying sunscreen 20 mins before exposure?
07-07-2014, 02:04 PM   #14
Jenn
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My son's cheeks and nose get pretty bad, especially with swimming. I've found bullfrog or the masking zinc oxide (stays white) stays on best. Dermatologist might know of a prescription sunscreen?
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Jennifer ~ son dx at age 8, Sep 2010
currently on Humira, Feb 2012+, MTX (20mg) Aug 2017+, folic acid
past use: 6mp for Sep 2010-Apr 2011 (not effective enough), then Remicade April 2011-Dec 2011 (built antibodies); additional 6MP Aug 2012-Sep 2013; Periactin for appetite Sep 2010-Sep 2013
other: Centrum chewable multi; calcium-vitD;
Derma-Smoothe for psoriasis rashes; Alrex, Zaditor eye drops for vernal conjunctivitis; history of asthma, ear infections
07-07-2014, 03:58 PM   #15
CrohnsKidMom
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We have issues with sunburns too. MTX does make one more sun-sensitive. A couple things I have been told: A sunscreen with SPF 60, 75, 100, etc., has to be reapplied as often as SPF 50 as it sweats off just as fast. And sunscreens are only water resistant, but will still tend to wash away in water.
07-07-2014, 05:55 PM   #16
Mehita
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This is what I was referring to about DS several months ago during his tennis season - burning so easily even with sunscreen. Maybe it's an immune thing? Or and EIM? I did ask his GI at our last appt and he said he wasn't aware of any connections.
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013

Last edited by Mehita; 07-07-2014 at 07:28 PM. Reason: Typos
07-07-2014, 06:44 PM   #17
my little penguin
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Went with a completely zinc oxide based ( physical sunscreen ) the highest you get is SPF 30- trying badger balm .
He wears sun protective clothing swimming
Long sleeve rash guard
Swim cap to cover ears
Googles for eyes
And long swim trunks

If this doesn't work ordering a scuba like neck head thing
And swim able hat - to try
07-07-2014, 09:44 PM   #18
CrohnsKidMom
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I hope the badger balm works for your son. I'd be interested in hearing your review of it once you've given it a test drive!
07-07-2014, 09:45 PM   #19
Momtotwo
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where did you find a swim hat?
07-08-2014, 05:56 AM   #20
Catherine
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What about the swim hood?
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