It has happened again! Just got home from vacation and Jack has several spots on his leg that appear to be infected. He has a infusion scheduled for Wednesday. Do I need to cancel? I have calls into both GI and GP. I'm worried as we were in such a good place last year and July and bug bites/infection hit and everything went to hell. So I'm terrified to give him antibiotics, he is doing so incredibly well on remicade, I'm afraid to miss/delay the infusion and I just feel like cussing a lot and a whole bottle of wine!
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Bug Bites? Infection? Remicade?
- Thread starter Jmrogers4
- Start date
Oh no! Sorry no experience with bug bites, but I really hope everything works out. I would definitely get the GP to take a look if you can.
Fwiw we've delayed M's infusion by a couple of days several times and it doesn't seem to have made a difference, especially when she was doing well on Remicade. How frequent are his infusions?
Good luck and sending hugs:ghug:
Fwiw we've delayed M's infusion by a couple of days several times and it doesn't seem to have made a difference, especially when she was doing well on Remicade. How frequent are his infusions?
Good luck and sending hugs:ghug:
Do you have muripursin?
All cuts ir bug bites get that three times and always covered.
That said DS got cellulitis while on remicade
All cuts ir bug bites get that three times and always covered.
That said DS got cellulitis while on remicade
Oh and we didn't stop infusions while on abx for cellulitis
- Location
- Northern California, USA
topical rx antibiotics cream worked for us when Badger went through period of skin infections. Also might ask to get checked for mrsa carrier.
Have muripisin but it is a couple of years old, I have put a OC triple anitbiotic on it. GP can't get him in till Wed. morning which is also his infusion. GI called back and said let's keep appointment and he will take a look and rx antibiotics and will call upstairs (GP on the floor above him) if needed would like to treat topically if he can since the anitbiotics threw us for such a loop last year. Had me draw a line around them to see if they get bigger/smaller. He just left for his first driver's training class, YIKES!
GI thought we would still be able to do infusion unless infection goes systematic and fever starts, so I'm to watch until Wed. morning and you all know how patient I'm not. Just want to fix, NOW!
GI thought we would still be able to do infusion unless infection goes systematic and fever starts, so I'm to watch until Wed. morning and you all know how patient I'm not. Just want to fix, NOW!
I would ask ped for a script for bactroban now .
It could be cleared by wed
It could be cleared by wed
my new abbreviation) with good luck. 
I hope his bug bites clear up soon and everything goes good for him today! Nathan goes for his infusion on Friday morning.
Infusion almost done, big bite abscessed, so they cut open to drain. Took some ick from it to culture, should have those results tomorrow. Picking up antibiotics on the way home, have some vsl3 from GI to give with antibiotics. If it's not draining or gets worse then he will call the ped surgeon to open up farther and fix.
Sending prayers it heals quickly with no issues!
Yikes, did he get those from camp or from where you guys went after camp? I hope it doesn't get worse and the antibiotics work quickly for him.
- Location
- Long Island NY
My daughter also gets infection/cellulitis with bug bites when she is immunocompromised. I freak out everytime because MD's always want to put her on oral antibiotics, and Liv also has a history of c-diff.
We keep bactroban on hand at all times...it is the only thing that resolves infections from bites! Good luck! Kim
We keep bactroban on hand at all times...it is the only thing that resolves infections from bites! Good luck! Kim
Same here DS had cellulitis once - after that ped gave strict instructions bactroban on all cuts or nicks until they heal -three times a day .
Going to talk to GP about refilling/rewriting the Mupirocin script from several years ago. It looks worse but better today. The swelling is smaller but the open wound is just nasty looking but it's still draining. Haven't gotten culture results yet, but blood work came back and his ESR is at 15 which is at the high end of normal (0-15), we were curious as to what it would show since as you know his are always in the normal range
Big giant F-Bomb! Just got results from final cultures - MRSA positive. New antibiotic with high chance of c-diff recurring. He needs to take 3 times a day. I'm to give a probiotic a few hours after morning dose and few hours after afternoon dose and start VSL3 immediately when we finish 10 day course in hopes of warding off c-diff. Of course we are to call immediately if we notice any symptoms.
I need a glass of wine or rather I think a bottle. Maybe even a straight shot of tequila.
Why is it when we get to a good point where he is growing and gaining something happens to flush it down the toilet.
I need a glass of wine or rather I think a bottle. Maybe even a straight shot of tequila.
Why is it when we get to a good point where he is growing and gaining something happens to flush it down the toilet.
DS stayed on the prescription double strength vsl 3 the entire time he was on abx pharmacist gave us time frames but said it was fine .
It really helped keep his stool normal .
Is there a reason he is not taking the stronger stuff
We did twice a day for over a month
It really helped keep his stool normal .
Is there a reason he is not taking the stronger stuff
We did twice a day for over a month
Ugh:ymad:, so sorry to hear about the MRSA and need for antibiotics.
For what it's worth, M got CDiff after being on antibiotics last November, then flared because of the CDiff and we had to up her dose of Remicade. By February, when we did scopes, everything looked really good (except some mild inflammation in TI).
So maybe (hopefully!!) it won't completely screw things up for your son. Hang in there and have many glasses of wine!:hug:
For what it's worth, M got CDiff after being on antibiotics last November, then flared because of the CDiff and we had to up her dose of Remicade. By February, when we did scopes, everything looked really good (except some mild inflammation in TI).
So maybe (hopefully!!) it won't completely screw things up for your son. Hang in there and have many glasses of wine!:hug:
Yes, Maya that is what I'm afraid of.
GI suspects that MRSA was present last year with cellulitis from bug bites which he took antibiotics for which lead to c-diff which lead to a flare from Aug-Dec when we started remicade in the first of January. Just afraid we are heading down the same road.
We did not have things cultured last year but GI thinks MRSA has probably been present in his system since then. He will do a swab test inside nose to test for MRSA presence when we have our next infusion to see if we have killed it off.
GI suspects that MRSA was present last year with cellulitis from bug bites which he took antibiotics for which lead to c-diff which lead to a flare from Aug-Dec when we started remicade in the first of January. Just afraid we are heading down the same road.
We did not have things cultured last year but GI thinks MRSA has probably been present in his system since then. He will do a swab test inside nose to test for MRSA presence when we have our next infusion to see if we have killed it off.
I am so sorry to hear about MRSA, that is no fun but hopefully all will clear quickly and easily. I don't know if the doctor told you but make sure to inform the nurses at the infusion center that he just got over MRSA when you go next time. They take extra precautions because of all the immunocompromised patients that come through infusion centers.
Oh dear, so sorry to hear about this. Hope things improve soon.
Yikes, poor Jack. That sucks it turned out to be MRSA hope it clears quickly and he doesn't get the C-Diff. How is he doing now? Are the sores healing up?
Sore is looking really good, healing nicely, thank you for checking in. We are 1/2 through the antibiotics. Haven't updated because I don't want to jinx it. He takes his antibiotic and 2 hours later takes a probiotic. He has 8 days left of Driver's Education and I just got a new car which he is just begging to drive. He still has 6 months/50 hours of driving with a licensed driver before he gets his official drivers license.
:drink: Party!!
in a few weeks
in a few weeks
Thinking of you guys. Wishing jack continued luck/ success with treatment and drivers ed!
Glad to hear he is healing! Hope it continues fast , driving she is so scary I agree with that. Caitlyn doesn't want to drive yet and I am super glad about that.