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Crohn's Disease Forum » Parents of Kids with IBD » Bug Bites? Infection? Remicade?


 
07-07-2014, 11:39 AM   #1
Jmrogers4
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Bug Bites? Infection? Remicade?

It has happened again! Just got home from vacation and Jack has several spots on his leg that appear to be infected. He has a infusion scheduled for Wednesday. Do I need to cancel? I have calls into both GI and GP. I'm worried as we were in such a good place last year and July and bug bites/infection hit and everything went to hell. So I'm terrified to give him antibiotics, he is doing so incredibly well on remicade, I'm afraid to miss/delay the infusion and I just feel like cussing a lot and a whole bottle of wine!
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
07-07-2014, 11:45 AM   #2
Jmrogers4
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this is what it looks like worried about the ones on either side of his leg that appear more swollen/red and have a black center with what looks like puss under neath
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07-07-2014, 12:35 PM   #3
Maya142
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Oh no! Sorry no experience with bug bites, but I really hope everything works out. I would definitely get the GP to take a look if you can.

Fwiw we've delayed M's infusion by a couple of days several times and it doesn't seem to have made a difference, especially when she was doing well on Remicade. How frequent are his infusions?

Good luck and sending hugs
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
07-07-2014, 12:51 PM   #4
my little penguin
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Do you have muripursin?
All cuts ir bug bites get that three times and always covered.

That said DS got cellulitis while on remicade
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07-07-2014, 01:09 PM   #5
my little penguin
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Oh and we didn't stop infusions while on abx for cellulitis
07-07-2014, 01:39 PM   #6
Patricia56
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topical rx antibiotics cream worked for us when Badger went through period of skin infections. Also might ask to get checked for mrsa carrier.
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Dxd age 10, 2006 after nearly 1 year of active sx
Current CD meds: Remicade, Methotrexate and Omeprazole, Vit. D, Calcium, Folic Acid, Probiotic

Nothing I say here should be construed as medical advice. I am not a doctor. These are just my opinions.
07-07-2014, 01:42 PM   #7
Jmrogers4
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Have muripisin but it is a couple of years old, I have put a OC triple anitbiotic on it. GP can't get him in till Wed. morning which is also his infusion. GI called back and said let's keep appointment and he will take a look and rx antibiotics and will call upstairs (GP on the floor above him) if needed would like to treat topically if he can since the anitbiotics threw us for such a loop last year. Had me draw a line around them to see if they get bigger/smaller. He just left for his first driver's training class, YIKES!
GI thought we would still be able to do infusion unless infection goes systematic and fever starts, so I'm to watch until Wed. morning and you all know how patient I'm not. Just want to fix, NOW!
07-07-2014, 02:10 PM   #8
my little penguin
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I would ask ped for a script for bactroban now .
It could be cleared by wed
07-07-2014, 02:46 PM   #9
AZMOM
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Couldn't hurt. We've used mupirocin and bacitracin on the dread SOUO (sores of unknown origin :-) my new abbreviation) with good luck.

I hope you can get it cleared up!!!

J.
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
07-07-2014, 03:40 PM   #10
Farmwife
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For Grace we use a triple antibiotic and as long as it's weeping we keep it covered. She's had cellulite twice, so we go a bit overboard.

I hope it heals quick.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
07-08-2014, 04:17 PM   #11
araceli
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No experience with bug bites but want to send support and good wishes.
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Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
07-09-2014, 01:21 PM   #12
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I hope his bug bites clear up soon and everything goes good for him today! Nathan goes for his infusion on Friday morning.
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Son, Nathan 14, diagnosed in January 2013

prednisone: 01/13-03/13, 04/13-05/13
pentasa: 03/13- 11/13
6MP: 06/13- 01/14
Mtx: 01/14- still taking
Remicade:01/14- still on it!
07-09-2014, 01:32 PM   #13
Jmrogers4
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Infusion almost done, big bite abscessed, so they cut open to drain. Took some ick from it to culture, should have those results tomorrow. Picking up antibiotics on the way home, have some vsl3 from GI to give with antibiotics. If it's not draining or gets worse then he will call the ped surgeon to open up farther and fix.
07-09-2014, 04:17 PM   #14
xmdmom
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Hope it heals quickly!
07-09-2014, 04:21 PM   #15
kimmidwife
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Sending prayers it heals quickly with no issues!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
07-09-2014, 04:27 PM   #16
Maya142
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Sending hugs , hope he does ok with the antibiotics!
07-09-2014, 05:30 PM   #17
griffin123
 
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Yikes, did he get those from camp or from where you guys went after camp? I hope it doesn't get worse and the antibiotics work quickly for him.
07-09-2014, 06:44 PM   #18
Jmrogers4
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He says from camp but I didn't see him for 3 days after camp and they were there but just looked like mosquito bites one day and giant pus filled Yuck the next
07-09-2014, 07:06 PM   #19
Catherine
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They actually look like the bites my middle daughter gets with a mosquito bite allergy.

The only way we can stop their development is to use allergy meds as soon as she is bitten. Otherwise they develop into big red lumps and then get infected.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
07-09-2014, 09:09 PM   #20
AZMOM
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Love his heart. YUCK! I know you must be worried. Thinking positive that it's an uber-nasty bug bite that will heal quickly with the abx. Glad he was able to get his Remicade!

J.
07-10-2014, 09:54 AM   #21
Livilou
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My daughter also gets infection/cellulitis with bug bites when she is immunocompromised. I freak out everytime because MD's always want to put her on oral antibiotics, and Liv also has a history of c-diff.
We keep bactroban on hand at all times...it is the only thing that resolves infections from bites! Good luck! Kim
07-10-2014, 11:22 AM   #22
my little penguin
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Same here DS had cellulitis once - after that ped gave strict instructions bactroban on all cuts or nicks until they heal -three times a day .
07-10-2014, 11:37 AM   #23
Jmrogers4
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Going to talk to GP about refilling/rewriting the Mupirocin script from several years ago. It looks worse but better today. The swelling is smaller but the open wound is just nasty looking but it's still draining. Haven't gotten culture results yet, but blood work came back and his ESR is at 15 which is at the high end of normal (0-15), we were curious as to what it would show since as you know his are always in the normal range
07-15-2014, 02:29 PM   #24
Jmrogers4
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Big giant F-Bomb! Just got results from final cultures - MRSA positive. New antibiotic with high chance of c-diff recurring. He needs to take 3 times a day. I'm to give a probiotic a few hours after morning dose and few hours after afternoon dose and start VSL3 immediately when we finish 10 day course in hopes of warding off c-diff. Of course we are to call immediately if we notice any symptoms.
I need a glass of wine or rather I think a bottle. Maybe even a straight shot of tequila.
Why is it when we get to a good point where he is growing and gaining something happens to flush it down the toilet.
07-15-2014, 02:37 PM   #25
my little penguin
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DS stayed on the prescription double strength vsl 3 the entire time he was on abx pharmacist gave us time frames but said it was fine .
It really helped keep his stool normal .
Is there a reason he is not taking the stronger stuff
We did twice a day for over a month
07-15-2014, 02:41 PM   #26
Jmrogers4
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GI just felt that antibiotics would kill most of it off and since it's expensive he thought it would just be better to wait until he is off the antibiotics to do the strong stuff and hopefully the oc stuff would keep enough good stuff to keep him stable.
07-15-2014, 02:49 PM   #27
xmdmom
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How does the infection look now?
07-15-2014, 02:52 PM   #28
Jmrogers4
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It looks really good, healing well so it was a little bit of a shock
07-15-2014, 02:55 PM   #29
xmdmom
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Well at least that...
07-15-2014, 03:10 PM   #30
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I'm so sorry this had to happen when he had made such great gains. Fingers crossed that the antibiotics work and c-diff can be avoided and he gets back on track soon.
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Erythema Nodosum dx July 2014

Colazal, 750mg 3X/day
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