Crohn's Disease Forum » Your Story » First post, Hello!

07-08-2014, 08:05 PM   #1
Join Date: Nov 2013
Location: Los Angeles, California
First post, Hello!

Hi everyone!

I have been reading this forum for a few years now and decided it was finally time to post. I am a 26 year old female, diagnosed with Crohn's disease when I was 16. I was initially on Remicade and Imuran. After being on this combo for 2 years, I contracted Epstein Barr Virus which led to a condition called Hemophagocytic Lymphohystiocytosis and was hospitalized for a month. Luckily about six months after that I was back in remission, and stayed in remission for about 5 years (no meds). Last winter I experienced a serious flare up, and was put on Humira and 6MP (37.5 MG) I've been feeling much better but not 100%; I experience constipation now more than diarrhea.

Anyways, that's my story! Going in for a colonoscopy this coming Monday, lucky me haha.
07-08-2014, 08:24 PM   #2
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dave13's Avatar
Join Date: Dec 2013
Location: Maine

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Good luck Monday.Hopefully you can find remission again.
07-08-2014, 09:28 PM   #3
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DJW's Avatar
Join Date: Jul 2013
Location: Ontario

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Hi and welcome.

I hope everything goes well Monday and you get remission soon.
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:

Living in Ontario with no drug benefits?

Trillium Drug Program:

07-08-2014, 09:41 PM   #4
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tots's Avatar
Join Date: Feb 2012
Location: Austin, Texas

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Good luck on Monday


Diagnosed= 1992 and again Feb 2012 Confirmed with
CT enterography May 2015 !!

Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!

07-09-2014, 12:00 AM   #5
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Join Date: Nov 2012
Location: El paso, Texas

My Support Groups:
Good luck with scopes. Let us know how it goes.
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.

Crohn's Disease Forum » Your Story » First post, Hello!
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