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08-29-2014, 09:00 PM   #91
Maya142
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Aren't the loading doses at 0 weeks, 2 weeks and 6 weeks?

Every time M has been on Remicade, that's what we've done. Maintenance doses range from 4-8 weeks. We started at 6 weeks because for AS (in adults), it is FDA approved for every 6 weeks and her rheumatologist didn't want to try getting to 8 weeks when she was flaring.

As far as I know, Remicade is not actually approved for JIA, but is used off-label, so perhaps every pediatric rheumatologist does it differently?
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
08-29-2014, 09:17 PM   #92
my little penguin
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I think the confusion is how they stated it .
Week zero infusion # 1-loading dose
Week two infusion # 2-loading
Week 6 ( 4 weeks from week two) infusion # 3
Then maintenance dose six weeks later
Finally dose every 8 weeks
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08-29-2014, 09:31 PM   #93
SupportiveMom
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We started Remicade in about 2 days after the doc said so. We were in the hospital so it was a little easier to get everything rolling. As a bonus it made insurance easier to get it all approved. That dosage was the same we started on. Hopefuly it stays at that, but if things don't improve they may move it up to every 4 weeks or every 6 weeks after all the loading dosage. Good
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Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone
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08-29-2014, 10:19 PM   #94
my little penguin
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2 DOSAGE AND ADMINISTRATION

2.1 Crohn’s Disease
The recommended dose of REMICADE is 5 mg/kg given as an intravenous induction regimen at 0, 2 and 6 weeks followed by a maintenance regimen of 5 mg/kg every 8 weeks thereafter for the treatment of adults with moderately to severely active Crohn’s disease or fistulizing Crohn’s disease. For adult patients who respond and then lose their response, consideration may be given to treatment with 10 mg/kg. Patients who do not respond by Week 14 are unlikely to respond with continued dosing and consideration should be given to discontinue REMICADE in these patients.
2.2 Pediatric Crohn’s Disease
The recommended dose of REMICADE for pediatric patients 6 years and older with moderately to severely active Crohn’s disease is 5 mg/kg given as an intravenous induction regimen at 0, 2 and 6 weeks followed by a maintenance regimen of 5 mg/kg every 8 weeks.
2.3 Ulcerative Colitis
The recommended dose of REMICADE is 5 mg/kg given as an intravenous induction regimen at 0, 2 and 6 weeks followed by a maintenance regimen of 5 mg/kg every 8 weeks thereafter for the treatment of adult patients with moderately to severely active ulcerative colitis.

2.4 Pediatric Ulcerative Colitis
The recommended dose of REMICADE for pediatric patients 6 years and older with moderately to severely active ulcerative colitis is 5 mg/kg given as an intravenous induction regimen at 0, 2 and 6 weeks followed by a maintenance regimen of 5 mg/kg every 8 weeks.

2.5 Rheumatoid Arthritis
The recommended dose of REMICADE is 3 mg/kg given as an intravenous induction regimen at 0, 2 and 6 weeks followed by a maintenance regimen of 3 mg/kg every 8 weeks thereafter for the treatment of moderately to severely active rheumatoid arthritis. REMICADE should be given in combination with methotrexate. For patients who have an incomplete response, consideration may be given to adjusting the dose up to 10 mg/kg or treating as often as every 4 weeks bearing in mind that risk of serious infections is increased at higher doses [see Adverse Reactions (6.1)].

2.6 Ankylosing Spondylitis
The recommended dose of REMICADE is 5 mg/kg given as an intravenous induction regimen at 0, 2 and 6 weeks followed by a maintenance regimen of 5 mg/kg every 6 weeks thereafter for the treatment of active ankylosing spondylitis.




From

http://www.remicade.com/hcp/prescribing-information
08-29-2014, 11:03 PM   #95
Maya142
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^ Weird, right that isn't approved JIA? Ped rheumatologists use it all the time and never even tell you that it's off-label. You would think by now it would be approved!
08-30-2014, 07:14 AM   #96
my little penguin
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Humira isn't FDA approved for pediatric crohn's either but is approved for JIA....
Just gotta love it.
It's being used off label.
08-30-2014, 11:00 AM   #97
SupportiveMom
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Humira not approved in US for kids crohns but approved here in Canada? That a first! http://www.thepharmaletter.com/artic...ra-for-crohn-s
08-30-2014, 09:21 PM   #98
momoftwinboys
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Happy birthday to you and your twin!
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Son (age 13) dx Crohn's October 2011 (age 10)
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krill oil, multivitamin, liquid Vitamin D/Calcium/Magnesium, zinc, pro-thera complete probiotic.

"The decision to have a child is to accept that your heart will forever walk about outside of your body" Katherine Hadley
08-30-2014, 09:24 PM   #99
Maya142
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Hope it was wonderful FW!!
08-30-2014, 10:43 PM   #100
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Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
08-31-2014, 03:42 AM   #101
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09-01-2014, 06:25 PM   #102
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Happy Birthday!!!!!!
Want to wish you much luck with the remicade!!!!
Sorry I didn't post sooner I have not been feeling well at all myself.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
09-01-2014, 06:34 PM   #103
Jmrogers4
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Happy Belated Birthday.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
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