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Crohn's Disease Forum » Parents of Kids with IBD » GI appt for my non-IBD kid


 
07-21-2014, 09:35 PM   #1
Clash
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GI appt for my non-IBD kid

So, I've made an appt for C's older sister with an adult GI C's ped GI recommended.

She has always been the one with weird bathroom habits but has always explained it away.

She called last week from college and admitted that she feels like she has to throw up after eating not nauseated but like something is stuck in her throat. She also said that she has had to go to the bathroom directly after every meal and it has been D for the last few months. She says the urgency is really strong.

Since she normally won't tell me health issue symptoms in an effort to avoid the doctor I took this pretty seriously. I asked did she want me to find a GI and she said yes that she thought it needed to be checked.

I decided on a GI over GP not because I necessarily think it is CD but I don't want to go through fob offs of it's viral, get better sleep, college diet blah blah blah with no testing done.

C's SBFT is scheduled for next Thursday and J's GI appt is Aug. 6th. I'm thinking gerd possibly h. Pylori infection with J but could just be my bubble. I do feel better safe than sorry with the GI appt, you all agree?
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira

Last edited by Clash; 07-21-2014 at 09:48 PM. Reason: spelling
07-21-2014, 09:44 PM   #2
Hope345
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Clash,

totally agree with you on this. Good to get it checked right away. All your suspicions should be checked. (we mothers have our way of making sure things happen)

We too have been taking our non-IBD daughter to a GI and a naturalpath. Nothing found yet but she thinks she is helping herself more. We had her checked for Gerd, but it came out negative, neg for h.pylori and without giving all the info, she is drinking a glass of lemon juice with water in the morning to help balance out her PH. This seems so simple, but she has suffered with "gerd" like symptoms, major burping and extreme fatigue for over two years. It seems she is actually starting to feel better. With PH balance off, it leads to so many other symptoms. (just another idea to add to your list )

Hope she gets better soon. How is your son doing?
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Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues
07-21-2014, 09:52 PM   #3
kimmidwife
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Clash,
I 100% agree that the GI is the right way to go. I will keep my fingers crossed that it is nothing and can be taken care of easily. I am afraid I have been keeping myself in a bubble about one of Caitlyn's siblings as well. She has been having stomach issues that we kept attributing to dairy but now we are not sure.
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Crohn's Dx'ed Sept 08
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Methotrex Oct 09-Aug 11
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EENOct 31 - Nov 28th. Too hard!
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Stopped due 2 Anaphylactic Reaction
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New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
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07-21-2014, 10:10 PM   #4
Clash
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Thanks guys. I do waffle back and forth, she doesn't easily report symptoms which made me take notice but I also don't want to increase her avoidance of doctors with unnecessary tests.

I'm hoping for blood work to be done the first visit. J has been anemic in the past but I didn't realize as she brought it up months later. She usually goes to the GP alone since starting college and the anemia result was during one of those visits. She said the doc chalked it up to her cycle but she hadn't started yet and was 3 weeks out from last menses.

Kimmidwife, I hope it is something simple for your daughter as well and easily resolved.
07-21-2014, 10:43 PM   #5
nogutsnoglory
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I hope it's nothing serious but great that you are getting her checked out.
07-22-2014, 12:24 AM   #6
Patricia56
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Hope the GI takes it seriously and gets to the bottom of it quickly with minimum of testing. Be sure they do stool tests.
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Nothing I say here should be construed as medical advice. I am not a doctor. These are just my opinions.
07-22-2014, 05:06 AM   #7
Sascot
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Good luck, hope the appt goes well. Definitely worth going straight to GI, wish we could do that.
07-22-2014, 06:34 AM   #8
SupportiveMom
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Crossing my fingers all goes well!
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Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone
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07-22-2014, 08:07 AM   #9
Tesscorm
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There's no harm in checking. Especially as you said she doesn't usually mention symptoms - that would get me wondering/worrying too. And agree with heading to GI - given her family history, think it makes sense to move to more specific testing straight away.
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Diagnosed May 2011

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May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
07-22-2014, 08:07 AM   #10
Jmrogers4
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Several years ago I mentioned during a well check for my younger son he was having a lot of tummy aches the GP sent me straight to the GI said it may be nothing but with his brother and dad it would be best to rule it out. Turned out it was dairy but it relieved all of our minds so yes, GI is best.
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Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
07-22-2014, 08:28 AM   #11
Clash
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Thanks, I'm hoping this GI does fecal calprotectin, I'm gonna push for that. I really wish she could see C's Ped GI because I'm so comfortable with him and I know he would take it seriously but not overboard.
07-22-2014, 10:35 AM   #12
Momtotwo
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I hope it's a simple solution for your daughter. You are taking the right steps to get it checked out. The fecal calprotectin sounds like a good idea.
07-22-2014, 11:17 AM   #13
my little penguin
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Good luck
Hope things move quickly
We went through this with my non Ibd kiddo
- plenty of GI issues but no crohn's.
Apparently Gi issues run in the family .
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07-22-2014, 04:02 PM   #14
crohnsinct
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Absolutely agree! Same here with younger sibling with lots of weird GI things. I don't necessarily think CD but it is something. Can't seem to get ped or O's GI to pay attention. Glad you were able to just go straight to the source. I hope it is nothing and an easy fix.
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Daughter O dx 2/1/12 at age 12
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Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
07-22-2014, 04:47 PM   #15
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I hope everything goes well and that this GI is stellar. I agree a fecal calprotectin would be a good idea, although some GI's don't do them.
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07-22-2014, 05:21 PM   #16
Maya142
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Good luck! Hope it's nothing (or easily fixed, whatever it is)!
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Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
07-22-2014, 05:28 PM   #17
Farmwife
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I really hope it's nothing.

Does your daughter feel it's IBD or something else?
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07-22-2014, 06:44 PM   #18
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I also think you are doing the right thing. With one in the family and GI symptoms, it just make sense to see a GI first. Now that I have one child with Crohn's, I would not hesitate to take the other 2 to a GI if they had any GI symptoms. Hoping it turns out to be something easily corrected.
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07-22-2014, 06:51 PM   #19
Clash
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Farmwife, I don't know that she thinks it is IBD just that her symptoms had been going on long enough she needed them seen about. I don't know that she is overly worried she doesn't seem so. Her symptoms don't really point me to IBD either but like I said better safe than sorry.

She most times refuses meds of any sort, doesn't take Tylenol, ibuprofen or the like unless you nag and nag. So I would guess that is what is probably foremost in her mind that it might be something that will require meds to clear up.
07-22-2014, 06:59 PM   #20
araceli
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I hope is nothing serious and that the GI turns out to be a good one.
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Current meds.
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Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
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07-23-2014, 04:59 PM   #21
Mehita
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Don't forget to test for Celiac. You never know and it's an easy enough test if you're running labs anyway. Good luck!
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07-23-2014, 05:53 PM   #22
Clash
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Edit: I responded thinking this was C's thread haha.

I will mention Celiac, didn't even think of that.
07-23-2014, 10:38 PM   #23
Mehita
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Just make sure she doesn't change anything in her diet before testing. She needs to be eating gluten at the time of the test.
07-26-2014, 05:23 PM   #24
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Agree with all the above Clash.

To me its a no brainer when you have one child with IBD and another has gastrointestinal symptoms, head to the GI.

Have bloods already been done? Did I miss that?
If not maybe have the GP run all the baseline bloods and do a poop test to rule out bugs and parasites before you meet with the GI. At least that way he/she has something clinical to mull over as well. It also means the GI can then concentrate on ordering more specific tests and it may also be easier for you to push for what you want.

Good luck and keeping everything crossed that it is nothing serious!

Dusty. xxx
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07-26-2014, 06:53 PM   #25
Clash
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I would love to have bloods done before, Dusty but J is at college and uses an after hours urgency clinic there and our GP here would probably only run a CBC if I could get her home before the GI appt. The GI appt is next week.
07-26-2014, 08:47 PM   #26
Tesscorm
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I just don't understand why we can't order our own labs!! Would make life so much more efficient!
07-26-2014, 10:05 PM   #27
Clash
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I know, had I thought of it earlier I would've tried to get her home before now and see if the GP would run some basic things. Although, he is pliable when it comes to C(since CD is not at all in his wheelhouse), I'm not sure that he wouldn't want to take the wait and see with J as that is his usual demeanor.

I will be going with J for sure. I don't think she'll fuss much since it is a new doc. She takes her self to the GP and Gyn but she has included me from the start on this trip.

Oh if I could order my own labs for them!
07-27-2014, 03:46 AM   #28
DustyKat
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I would love to have bloods done before, Dusty but J is at college and uses an after hours urgency clinic there and our GP here would probably only run a CBC if I could get her home before the GI appt. The GI appt is next week.
Bugger.

Ya’ll write your own don’t you?? The doc just transcribes for you??
07-27-2014, 09:15 AM   #29
Mehita
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Wheelhouse?
07-27-2014, 10:08 AM   #30
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Good luck! You might ask about her gall bladder as well.
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