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Crohn's Disease Forum » Parents of Kids with IBD » Sharp tummy pain on exercise


07-31-2014, 01:29 PM   #1
Ands
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Sharp tummy pain on exercise

We finally managed to get DS to a horse riding lesson today, just a private half an hour so he could do as little or as much as he wanted.... He was suffering was a lot of sharp pain in his tummy as he finished. This is not the first time he's had pain when trying to do anything too physical. Is this normal?

Scopes booked in for 12/8/14 so not long to wait now to see what is going on. Hate seeing him so restricted, particularly during the holidays.

Ands xxxx
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Son Joseph diagnosed July 2012 (aged 10)
Crohn's: oesophageal, ileal, oral and perianal disease
6 week exclusive modulen
8 weeks predisolone
2 weeks azathioprine - stopped after reaction
6-MP 50mg - stopped June 2014 (after 18 months)
Currently on:
Sennoside 18ml daily
Multi Vitamin
Omeprazole 10mg
Prochlorperazine 2 x 5mg
Predisolone as a mouth-wash (as and when needed)
07-31-2014, 02:03 PM   #2
Clash
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C would have sharp pain during activity before he started remicade. Also, he would have pain in his lower right side(to his right of the belly button). I don't remember that he ever complained of after remicade.
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C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
07-31-2014, 04:19 PM   #3
Tesscorm
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I remember S complaining of pain on his right side (and he said it was a crohns' pain??) when he did long distance running. It didn't happen during short spurts of running, like when playing soccer or ball hockey, only long distance, cross country running. I think it was the repetitive bouncing - which you would probably also have in riding.

This happened for a few months after dx but, as S only did the LD running as part of the school program, I'm not sure if the pain went away because he eventually healed or if he just stopped the running??

Hopefully, the scopes will give you some answers.
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
07-31-2014, 08:03 PM   #4
kimmidwife
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My daughter always gets pain on exertion. The doctor thought maybe she has gut hypersensitivity. This disease sucks!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
08-01-2014, 10:39 AM   #5
malorymug
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My 13 yo boy still gets sharp pain on exertion even after being on 6mp for 3 months. So many of his symptoms are better but still doesn't seem to be able to do much.
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Mom to: 15 year old boy
Crohn's in stomach, small intestine, large intestine, and perianal disease
Diagnosed April 2014, at age 13

Currently taking:
Remicade 10mg/kg every 6 wks
Methotrexate 7.5 mg/wk
Cipro
Augmentin
Miralax

previous meds:
6mp 50mg
Flagyl
Cipro
Prednisone 30 mg
08-01-2014, 03:01 PM   #6
Essieluv
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I cannot exercise my abdominal muscles; it causes me very intense cramping. However, doing leg or arm workouts never bother me. I think it is from my very sensitive guts caused by IBD.
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Meds that failed me: Remicade, Humira, Cimzia, Entocort.

Waiting for a cure!
08-01-2014, 05:50 PM   #7
Ands
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Thanks for all your comments, although reassuring that he's not alone, upsetting that yet another thing that effects him. I guess we won't be rushing back to book another lesson, he aches everywhere today and was struggling to walk very far.

Finding it hard to find the balance of getting him to do something to keep his mental health positive and yet not being too much for him physically. Kimmidwife, couldn't agree more this condition sucks!
08-01-2014, 06:55 PM   #8
my little penguin
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DS did get stomach pain with exercise when he was on 6-mp and Mtx.
The pain stopped with remicade and is very rarely there with humira -so it is possible with the right med
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08-02-2014, 03:02 AM   #9
Ands
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Thanks MLP. Remicade will be his next medicine to try, should the scopes show the need. If they are clear, I'm not sure what will happen with meds. Either way we can't carry on like this. Xxx
08-04-2014, 06:47 AM   #10
Sascot
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Sorry to hear he is still struggling. It's hard when they can't do what they want to. How about swimming?
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