• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

This is Me

As far back as I can remember I've always had what I classed as a 'Funny Tummy'. I'd have bouts of diarrhea,vomiting,pain and chills but it would pass. But in 2011 the pain and diarrhea was impacting on my life too much and I was referred to a GI specialist. As I have Crohn's and UC in my family, (not immediate though) this was what GI tested for but ALL came back negative and I was sent on my way with no answers just told to take Metamucil.
November 2013 I was hospitalized for 2 weeks due to said symptoms and had a laprascopy done but it was all clear,again I was sent home with no answers. By March 2014 I had lost 60% of my body mass, was anemic and my potassium,phosphate and B12 levels were dangerously low so back into hospital. After every test imaginable I was diagnosed with Gastroparesis and had a J-Tube inserted for nutritional support, I wish I could say that this was the ending to my story but I am still plagued by my original symptoms. I'm not a doctor as my GI reminds me but I know that bloody diarrhea,joint pain,sore eyes,mouth ulcers,excruciating right low abdo pain and fatigue are NOT symptoms of Gastroparesis. I'm frustrated and would really like to be able to get out of the bathroom once and a while and not have this pain that literally drops me to my knees.
I'm glad I found this forum and thank you to all who have shared their experiences, diagnosed or not.

Cheers
 
Location
Texas
This forum has been such a life saver for me. If your GI won't listen, find another. Your symptoms sound serious, don't let them push you around. I'm not sure where you live and what medical system you are on but no matter what - with what you have going on - you need a trusting GI who will actually listen to you.

So sorry your having a difficult time - there is so much support here, it is unbelievable!!

Good luck!!
 
Hi Ali29, I live in Tasmania so a long ways from Texas :) the medical system sucks down here but my GI is pretty good and we're pretty limited in choice, he just has problems stopping and listening sometimes. I have 3 weeks before I see him again and if I don't end up in hospital between now and then I plan to demand some answers for the diarrhea, it's weird cause when I go for my iron infusions on my admin form as for reason he's written 'Colitis'?????? So will be asking what that is about.
Thank you for replying to my post, in one way I want it to be something, be it Crohn's or UC I just want answers!

cheers
 
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