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Crohn's Disease Forum » Parents of Kids with IBD » Sonís surgery today. August 19th.


 
08-20-2014, 10:22 AM   #31
Sascot
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Glad it's all over. Hope it brings relief and remission!
08-21-2014, 07:58 AM   #32
crohns suffer"s mum
 
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no bag was never expected to be needed. from a surgeons point of view recovery is 3 weeks at home from school and no sport for 6 weeks. from diet point of view we havent got that far . will find out before we go home.
he is better today pain wise and has his nasogastric tube removed with no problems so far.
still on his button for pain and drip for electrolytes. tolerating ice chips today.
thanks to everyone for there wishes
08-21-2014, 08:00 AM   #33
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Glad things are slowly improving
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08-21-2014, 10:07 AM   #34
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Glad he's improving! I'm sure he will be up and walking laps around the ward soon.
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08-22-2014, 06:10 AM   #35
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harry is much better today. much less pain and managed a shower on his own.
he is on free fluids which he is tolerating well.
not quite laps yet dave but certainly heading towards that.
still has his drip for antibiotics and panadol
at the moment it looks like home early next week. hoping to see the dietitian before he leaves in regards to his crohns but from a surgical point of view nothing is off limits
08-22-2014, 07:18 AM   #36
dave13
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What wonderful news! I hope you are able to rest a little more knowing he is doing well post op.You can't forget about your health.This is concern,not nagging...there is a difference.

I hope some weight has been lifted from your entire family's shoulders.I'm sending healing thoughts your way.Thanks for updating the post,this good news is a happy thought I can carry with me through my day.

If you make sure he has a squeaky wheel on his IV stand,he won't be able to sneak away when he gates more mobile.
08-22-2014, 04:55 PM   #37
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Glad he is improving, hope it only continues!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
08-23-2014, 03:17 AM   #38
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Hope things are still improving steadily.
08-25-2014, 06:20 AM   #39
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thanks Dave 13. we have had news today that he is coming home tomorrow.
he is eating and drinking well and now has zero pain neither from surgery or whats more exciting no crohns pain. looking forward to having him home and not the hour drive each way to the hospital everyday
thanks for your kind words. they are truly appreciated x
08-25-2014, 07:35 AM   #40
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He sounds strong and determined. I'm guessing he gets that from his mom ;-)

I hope the next phase of recovery is just as smooth. Sending loads of good vibes your way!
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08-25-2014, 11:11 AM   #41
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Woohoo for going home !!!
08-25-2014, 11:54 AM   #42
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Glad to here he is headed home!
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08-25-2014, 12:31 PM   #43
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Great to hear that he's HOME!
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08-25-2014, 07:37 PM   #44
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Yahoo for heading home.
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Husband dx Crohn's 3/1993
currently none due to liver issues
08-25-2014, 08:27 PM   #45
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As I type this it is around 11 am your way,so today is the day.I hope Harry,you and the whole family,have a great day!
08-25-2014, 10:27 PM   #46
crohns suffer"s mum
 
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As I type this it is around 11 am your way,so today is the day.I hope Harry,you and the whole family,have a great day!

thanks dave we are now home and settled. he even has a tidy room thanks to me lol
he has no pain and looking for food something he hasnt done for a long time.
thanks for your kind words and encouragement.
deb
08-25-2014, 10:41 PM   #47
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thanks dave we are now home and settled. he even has a tidy room thanks to me lol
he has no pain and looking for food something he hasnt done for a long time.
thanks for your kind words and encouragement.
deb
Hi Deb,you are more than welcome.So what is Harry craving first? Hopefully you can have some uneventful Home time and take a breath.
08-25-2014, 10:51 PM   #48
crohns suffer"s mum
 
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Hi Deb,you are more than welcome.So what is Harry craving first? Hopefully you can have some uneventful Home time and take a breath.
mac and cheese. not the one i make but out of a box lol he is to have lots of small meals high protien low residue to help put some weight on. hes 48 kilos and 6ft so you can imagine what he looks like.
doc is very positive for long term remission so fingers crossed.
he is to continue his aza for about 6 months and see how we go from there. only 100 mgs so not too bad.
shouldnt you be in bed ?
08-28-2014, 03:53 PM   #49
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So glad you are all home.
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08-28-2014, 07:40 PM   #50
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My son insisted on mac and cheese after his resection surgery too. Funny!
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08-28-2014, 10:39 PM   #51
crohns suffer"s mum
 
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My son insisted on mac and cheese after his resection surgery too. Funny!

yes cant think of anything worse but i apparently make a mean mac and cheese but not for him; had to be store brought
lol
08-29-2014, 07:06 PM   #52
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Less dishes that way,right? Hope he is still doing well!
08-29-2014, 09:43 PM   #53
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Less dishes that way,right? Hope he is still doing well!
hes doing better than well. no pain and eating like a horse. he is 48 kilos and 6 ft tall so has some catching up to do.
hope you are well also
08-29-2014, 09:58 PM   #54
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No pain is a good thing.I hope your Winter weather is allowing a lot of outside time.Does Harry have friends that visit?

I'm doing well,thanks for asking.
08-30-2014, 12:30 AM   #55
crohns suffer"s mum
 
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No pain is a good thing.I hope your Winter weather is allowing a lot of outside time.Does Harry have friends that visit?

I'm doing well,thanks for asking.
yeh harry is mr popular so has had visitors since we have been home. not so many in hospital cause it is hour from where we live. bit hard for school kids on trains etc after school. they all facebooked and called though. the weather is beautiful today 23 degrees. sunshine is a lovely change from our wet winter we have had.
glad to hear you are well also, bugger of a thing this crohns disease !!
08-30-2014, 05:59 AM   #56
dave13
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yeh harry is mr popular so has had visitors since we have been home. not so many in hospital cause it is hour from where we live. bit hard for school kids on trains etc after school. they all facebooked and called though. the weather is beautiful today 23 degrees. sunshine is a lovely change from our wet winter we have had.
glad to hear you are well also, bugger of a thing this crohns disease !!
I'm sure having his friends stay in touch was a big help while he was in the hospital.Even better he can hang out with them again.Just being 'normal' is healing,to have friends treat you as you,and not a sick person.
08-30-2014, 10:25 AM   #57
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So fab to hear all went well with the surgery and is continuing to go well with the recovery. Woohoo!

Onwards and Upwards Harry!

Dusty. xxx
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Crohn's Disease Forum » Parents of Kids with IBD » Sonís surgery today. August 19th.
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