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08-25-2014, 07:01 AM   #1
Mehita
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Join Date: Nov 2011
Location: Minnesota

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Home Infusions?

Does anyone get their Remicade infusion done at home with a home health nurse? If so, how did you go about getting this started?
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
08-25-2014, 08:26 AM   #2
Cosmojo
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Join Date: Dec 2011
Location: San Antonio, TX

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I never did but I had lots of friends who did get the chance to do this, I believe that they just asked there doctor about it and then their doctor wrote orders.
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Currently on:
wellbutrin, levothyroxin, propranolol, B12, multi vitamin, naratriptan, xanax

In the past:
Humira weekly- didn't work
Remicade every 6 weeks- had lots of side effects after being on it for 4 years
Prednisone & all steroids- I get manic episodes so I can't take
Pentasa- didn't work
Imuran- not currently using but did seem to work
MTX- stopped, my kidneys were getting lots of infections

Just trying my best to get through graduate school
08-25-2014, 09:42 AM   #3
Clash
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I remember reading a thread on the forum about this but was unable to find it.

I do remember the thread saying it was an option if you lived in a rural area but I'm sure it depends on your insurance and their policies.
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
08-25-2014, 09:54 AM   #4
idlebrain
 
Join Date: Aug 2013
Location: New Jersey

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Mehita,

I did get a couple of infusions at home while I was on Remicade. That was dictated by my insurance company which only approved the first 2 infusions at the hospital. I guess the logic was they figured it would be less expensive that way. I urged my Dr. to get the approval for hospital infusions but they said they were unsuccessful in convincing the insurance company.

I personally wasn't comfortable with home infusions as it seemed a little overwhelming especially at that time. I can see it being convenient for some however.
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