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08-25-2014, 08:20 AM   #1
Clash
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C's surgery thread

I thought I'd start a new thread and try to chronicle his surgery and recovery. Hopefully, it will give other parents facing this some insight.

Today, we head to the hotel by the hospital. So, first packing, here are some items outside of regular clothes that have served our hospital visits well:
Jacket(for cold exam/waiting rooms)
Pillow
IPad
Xbox
Laptop
Extra chargers
Card games
Homework and any books he should be reading(also if it is a novel like say Oliver Twist, I try to get the audio book as well. Since he's 17 I know he can read and the audio can help when he's tired)
Snacks and drinks(this time more for me than C)
Extra socks
Microwaveable heating pads for his joints

Also we downloaded a journal app so he can put his experience and feelings down there when/if he chooses. I thought that might help the process for a teen whose usual answer to everything is fine, yep or whatever.

He will do a bowel prep today. Just like a prep for colonoscopy he will be doing clear liquids and miralax/gatarade.

Ughh just got phone call from hubby, while typing this up, that ins needs some letter from surgeon. I'll check in later.
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
08-25-2014, 09:30 AM   #2
Clash
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The insurance part has been straightened out. The certification process was completed. Just a side note, always a good idea to call your insurance and make sure everything is set up properly. Get a ref. # if applicable so if any problems arise, such a more days than expected in hospital, you can check on recertification status etc.
08-25-2014, 11:29 AM   #3
Farmwife
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Ill be praying everything goes well.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
08-25-2014, 11:35 AM   #4
Clash
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We are going to head out in just a few minutes. I dread the ride. C starts his bowel prep at 3pm so we will be there in time.

C has had some bms that were basically D over the last two days. He thinks it may just be stress since there aren't any other issues going on, like pain, joints or episcleritis.

He seems really calm on the outside but I know he has to be anxious. I know I am and it has affected my tummy as well. I wish I could do this for him and spare him all this pain. Hell, I wish I could carry the burden of this whole disease for him!
08-25-2014, 11:43 AM   #5
DJW
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Hope all goes well. Is this the first surgery.
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Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

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Dave
08-25-2014, 11:47 AM   #6
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Thanks, DJW. Yes, it is his first surgery. They will be removing about 10 inches which will include his ileocecal valve and cecum as well as a bit of small bowel above the IC valve. His issues are at his IC valve.
08-25-2014, 11:49 AM   #7
DJW
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I hope he gets years of remission.
08-25-2014, 11:54 AM   #8
Sascot
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Good luck! Really hope things go smoothly.
08-25-2014, 12:25 PM   #9
Maya142
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Will be thinking of you and C, Clash! That's a great list - we'll use it when we go in tomorrow (except no xbox for M lol).

Sending SO much luck, hope this will get things under control for C.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
08-25-2014, 02:33 PM   #10
Clash
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Maya142, good luck with the ng tube for M! Keep me updated on how it is going! I hope helps her to gain weight!
08-25-2014, 03:42 PM   #11
Mehita
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Good luck! Be sure to take care of YOU as well. Food, water, naps. Nap when he naps. The first day will be rough, but each day will get a little better, a little easier. Hugs!
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
08-25-2014, 04:41 PM   #12
Brian'sMom
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I'll be thinking of you. I'd have given anything for my son to have a section that was one of the easier spots to remove. My son's problem is in his rectum.. therefore here we are... still hanging on and not doing so good. I only say this to help ease your worries. The rectum is a TOTAL GAME CHANGER!!
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
08-25-2014, 08:01 PM   #13
xmdmom
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Hope all goes really well!
08-25-2014, 08:22 PM   #14
Clash
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C has never had issues with bowel prep before but he did today. He complained of a lot of pain and vomited. I called the surgeon and he said not to worry about finishing it. He was 8oz shy of drinking it all. The surgeon also said to make sure he stayed hydrated and to call if things got unmanageable.
08-25-2014, 09:34 PM   #15
my little penguin
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Thinking of you and C
Hope things go as planned
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08-25-2014, 10:37 PM   #16
awmom
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Will be thinking of you tomorrow Clash. Hoping everything goes smoothly and the recovery is quick, and most important, LASTING!!!!!
08-25-2014, 11:06 PM   #17
Brian'sMom
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I'm hoping things go well tomorrow too. I feel good that it will go well and your boy will have some relief and long remission!! Surgery can be a very right thing to do many times. I'll be thinking of you both tomorrow. Hugs and Hugs!!
08-26-2014, 01:48 AM   #18
Willowcat05
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Hope everything goes smoothly with surgery and that he gains remission afterwards is he having keyhole surgery? My son had this done last october and went straight into remission and stayed well it was the best decision we made x



Right hemicolectomy oct 13
Meds methotrexate injections
Folic acid
08-26-2014, 06:55 AM   #19
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So we are up and getting ready. C felt sick to his stomach most of the night.

Willowcat05, the surgery is laparoscopic. The Doc said there would be 3 incisions. C and I were talking last night and it occurred to us that neither one of us posed the question of how long would surgery take. We both got a laugh at that.
08-26-2014, 10:41 AM   #20
Maya142
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Sorry to hear C had a bad night. Hopefully, the surgery will take of everything!
Hope it all goes well. Thinking of you and C!
08-26-2014, 10:53 AM   #21
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I didn't realize it was today!!! Sending prayers for everything to go smoothly!!!! And prayers for a fast recovery!!!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
08-26-2014, 10:57 AM   #22
araceli
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Thinking of you. I hope the surgery goes well and C has a speedy recovery.
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Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
08-26-2014, 11:04 AM   #23
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Ok so we got here at 10am, they registered him. We spoke with the anesthesiologist. C had turned down something to help him relax because he says he isn't nervous. The anesthesiologist said with his age the nerves generally don't set in until right before so since there wasn't a downside to the med being on board why not reconsider.

So now I'm sitting here with an extremely goofy C who is trying to make all the faces the pain chart shows and is singing a bit!

His bp was low on the low side when we got here, 104/48.

Doc said total time after leaving this room should be about 2 hours.
08-26-2014, 11:09 AM   #24
my little penguin
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Typically at our hospital it's versed .( aka silly juice)
They won't remember the procedure either
Win win .
08-26-2014, 11:38 AM   #25
Willowcat05
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My son was in surgery for 5 hours . 2 hours seems really quick, hope it goes well .the best way to recovery is to get him up and walking asap this helps the bowel to wakin up again he will not get out until he has a bowel movement .
08-26-2014, 11:45 AM   #26
valleysangel92
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Good luck! None of us thought to ask how long I'd be in my surgery, which might of been a good thing since I ended up being in recovery for much longer than anyone thought I would be ( they were waiting for a bed on a specific ward) and my parents didn't know I was out of surgery until my dad almost burst into recovery looking for me. I didn't get a premed, but then I was 20.

I hope everything goes smoothly and your son has a speedy recovery. You are very welcome to put him in touch with me if he ever feels he would like to talk to someone whos around his age ( I'm 21 but got symptoms from age 15) .
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Nicola
coeliac disease/Osteopenia /Crohns/Arthritis/
laperoscopic hemicolectomy 25/06/ 2013

Meds- Vedolizumab, sulfasalazine, Lansoprazole, Vitamin D, prochlorperazine, Oramorph, MST, B12 shots My journey with crohns: http://glutenfreecookiemonster.wordpress.com/

Allergic to - inflectra, aza

Non CD meds - Gabapentin, paracetamol, ventolin
08-26-2014, 12:34 PM   #27
Clash
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MLP, yep it was versed and liquid. The also gave him an oral pain med, loratab.

He is in surgery now. They took him back at 12 and called shortly after to say anesthesia and intubation went well and surgery had begun.

Thanks for all the support guys!

Valleysangel92, I will pass that along to him, thank you.
08-26-2014, 01:42 PM   #28
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Ok doc came out(it was quick!), he said surgery went smooth. There was not a lot of bleeding, 3 small incisions, rest of small bowel looked good, and reconnection was good. He said it was a clean connection. Today's concern would be bleeding but the connection area went so well he wasn't expecting it.

I'm waiting in the room now with all our stuff and C should be up shortly.

Doc said he's really hopeful for a good outcome based on what he saw and how smooth it all went.
08-26-2014, 01:56 PM   #29
kimmidwife
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Glad to hear all went smoothly! Hopefully since it was laparoscipally done he will have less pain. Continued prayers being sent!
08-26-2014, 02:18 PM   #30
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Glad things went well, hope it continues smoothly
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