Hello, I am 25, married and a stay at home mother if two. I'm also a college student currently an undergrad studying psychology.
I was diagnosed with Crohn's disease that effects my illium just before I turned 17. I would say overall my disease is mild. I do have multiple flares a year but have never required surgery or biologics. Typically a bad episode with vomiting and terrible pain will land me in the ER twice a year. They give me morphine and phenergan and send me on my way.
From about the age if 14 I have had a terrible burning nearly crippling pain in my stomach. Back then I was diagnosed with GERD and I have been on omperazole on and off ever since. It used to help but not anymore. Unfortunately, the drugs my GIs have always put me on, like Pentasa, make the burning much worse. I finally had an EGD recently and I was told I had very mild gastritis. Very mild doesn't even begin to describe the pain I have. I've given birth to two babies and labored for 16 hours with no epidural, induction both times, and was unfazed. I have a very high pain tolerance, as I'm sure the rest of you do, so if I complain, it's not mild. I changed GIs very recently because the last one ignored my complaints and insisted I keep taking Pentasa. My new GI has yet to see me and I've seen his assistant both times. She put me on lialda which has had the same effect on my gastric pain and hasn't even kept my Crohn's inflamation at bay.
Other medications I've been on are imuran, flagyl, entocort, and of course, prednisone. I've never really known what helped and what didn't because every GI just puts me on all of them at once. Prednisone is the worst, I can't handle to mood swings. I've been guilty of weaning myself of meds once I'm feeling well and just not taking them for long periods of time. As far as I know, my disease hasn't progressed since I was diagnosed so I guess I am very lucky.
On that note, I got very depressed last year from this burning pain and stopped taking all my meds. I went on a vegan diet and put myself into remission without them and stopped the burning gastric pain. I got pregnant a few months later with my second baby and went off the diet because i was so hungry!
I just had that baby in June and I had a mild flare within days of giving birth. I've been flaring once or twice every few weeks ever since and passed blood for the first time a couple days ago.
I was diagnosed with Crohn's disease that effects my illium just before I turned 17. I would say overall my disease is mild. I do have multiple flares a year but have never required surgery or biologics. Typically a bad episode with vomiting and terrible pain will land me in the ER twice a year. They give me morphine and phenergan and send me on my way.
From about the age if 14 I have had a terrible burning nearly crippling pain in my stomach. Back then I was diagnosed with GERD and I have been on omperazole on and off ever since. It used to help but not anymore. Unfortunately, the drugs my GIs have always put me on, like Pentasa, make the burning much worse. I finally had an EGD recently and I was told I had very mild gastritis. Very mild doesn't even begin to describe the pain I have. I've given birth to two babies and labored for 16 hours with no epidural, induction both times, and was unfazed. I have a very high pain tolerance, as I'm sure the rest of you do, so if I complain, it's not mild. I changed GIs very recently because the last one ignored my complaints and insisted I keep taking Pentasa. My new GI has yet to see me and I've seen his assistant both times. She put me on lialda which has had the same effect on my gastric pain and hasn't even kept my Crohn's inflamation at bay.
Other medications I've been on are imuran, flagyl, entocort, and of course, prednisone. I've never really known what helped and what didn't because every GI just puts me on all of them at once. Prednisone is the worst, I can't handle to mood swings. I've been guilty of weaning myself of meds once I'm feeling well and just not taking them for long periods of time. As far as I know, my disease hasn't progressed since I was diagnosed so I guess I am very lucky.
On that note, I got very depressed last year from this burning pain and stopped taking all my meds. I went on a vegan diet and put myself into remission without them and stopped the burning gastric pain. I got pregnant a few months later with my second baby and went off the diet because i was so hungry!
I just had that baby in June and I had a mild flare within days of giving birth. I've been flaring once or twice every few weeks ever since and passed blood for the first time a couple days ago.
