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08-31-2014, 05:42 AM   #1
Catherine
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Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

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Gums- sore

Day 1 - Bottom gum sore, nothing visible. GI checked and also consulted her book to see whether it had been reported as side effect of aza.

Day 2- tiny pin sized clear bubbles under both front bottom teeth. At the end of day the bubbles looked white.

Day - tiny bubbles have spread and are now on the gum both sides of one of the bottom teeth. Bubbles appear clear.

Any idea what this could be?
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
08-31-2014, 08:26 AM   #2
my little penguin
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Join Date: Apr 2012

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Mouth ulcers - DS gets them same area .
Same pattern
Gi is not too concerned since all else lots normal on DS
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DS - -Crohn's -Stelara -mtx-IVIG
08-31-2014, 08:33 AM   #3
my little penguin
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Join Date: Apr 2012

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Herpetiform ulcers, the uncommon RAS, are <5 mm in size. These painful lesions are initially multiple pinpoint sores and usually occur in older individuals. Healing takes about 7 to 10 days.
08-31-2014, 02:39 PM   #4
Tesscorm
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Join Date: Jun 2011
Location: Ontario

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S just, today, mentioned that he has one or two mouth sores each month. Not sure what this means?? but he said it's not the same as pre-dx when he had many more of them and he said this frequency (one or two/month) hasn't changed since he went into remission?? So, in his case, it hasn't seemed to be an early symptom of anything else going on...

(But, I only know what he's told me... ie I don't know exactly what they look like.)
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
09-01-2014, 09:17 PM   #5
Brian'sMom
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Join Date: Dec 2010
Location: Kansas

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I would lean towards ulcers too. Do they hurt? If they are ulcers they hurt!! Our GI ended up sending us to a dermatologist. That was a great help to us. She gave us some good things to help battle this. She said it was related to his crohn's that has been flaring.
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
09-01-2014, 10:24 PM   #6
Catherine
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Location: Melbourne, Victoria, Australia

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They were more painfully before the sores appeared.

They now look like red patches and the gum.
09-02-2014, 10:36 AM   #7
Brian'sMom
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Location: Kansas

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My son also had what looked like a rash on his gums. Then his gums got really really red all over-for months. Just last night I noticed that parts (the tips between his teeth) are looking pink again. And we're seeing less blood when he brushes his teeth. Our GI didn't do anything.... Not until Brian sent an email to our GI at Mayo... then he made an appt for us to see the dermatologist. I guess they take care of oral crohns. The magic mouthwash didn't help us
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