Hello everyone,
My name is Lizzie, 29 from London. I'm so happy I've stumbled accross this site after my horrific ordeal has left the doctors contradicting their own diagnosis!
Basically, mid July I was hospitalised with severe stomach cramps (sounds like an intestinal blockage). The pain came in waves and I couldn't go to the bathroom for about 5 days. According to the doctor who first suggested Crohn's, constipation isn't symptom of Crohn's.
After some pretty horrific pain that made me pass out at times, the waves would go when it felt like the pressure on my intestines moves and let out a loud grumble. After a course of lactilose, the usual few days of diarrheah would occur until the blockage cycle would happen again. I was on morphine on demand and the pains would creep from a 1-10 within 15 mins every 3-4 hours until I took morphine. And especially after food!
I was kept in for 8 days whilst they diagnosed me with Crohn's, undiagnosed me, looked into appendicitis, ruled out appendicitis, said I may have IBS, ruled out IBS, suggested Ulcerative
Colitis, did an MRI, found nothing, did a colonoscopy and found ulcers around the ileum, and have now left me in limbo!
I recently went back to my GP as the pain was building again. She was happy to give me some suppositories, and also thought enough evidence was found to put me on Crohn's meds. I'm still awaiting results from a specialist to confirm this.
In the meantime, I'm now back in bed with a very bad kidney infection and cystitis. I get cystitis attacks 3-6 times per year but have had 2 in the past month alone! Does anyone else find they get urine/kidney infections? Or regular cysitis? Apparently the blood, protein and white blood cells were very obvious this time and my whole back has swollen where my kidneys are.
Basically,I'm just looking for anyone who's had any of the symptoms I've had, maybe you can help me with a probable diagnosis as the gastro specialist is taking a while to get back to me.
Today, as well as my kidneys being bad and painful I also had a bout of dihoreha after about 4 days of constipation.
Please give ANY help/advise/comments as i feel completely on my own, incredibly unattractive and feels so sad for being constantly ill.
Desperately,
Lizzie xx
My name is Lizzie, 29 from London. I'm so happy I've stumbled accross this site after my horrific ordeal has left the doctors contradicting their own diagnosis!
Basically, mid July I was hospitalised with severe stomach cramps (sounds like an intestinal blockage). The pain came in waves and I couldn't go to the bathroom for about 5 days. According to the doctor who first suggested Crohn's, constipation isn't symptom of Crohn's.
After some pretty horrific pain that made me pass out at times, the waves would go when it felt like the pressure on my intestines moves and let out a loud grumble. After a course of lactilose, the usual few days of diarrheah would occur until the blockage cycle would happen again. I was on morphine on demand and the pains would creep from a 1-10 within 15 mins every 3-4 hours until I took morphine. And especially after food!
I was kept in for 8 days whilst they diagnosed me with Crohn's, undiagnosed me, looked into appendicitis, ruled out appendicitis, said I may have IBS, ruled out IBS, suggested Ulcerative
Colitis, did an MRI, found nothing, did a colonoscopy and found ulcers around the ileum, and have now left me in limbo!
I recently went back to my GP as the pain was building again. She was happy to give me some suppositories, and also thought enough evidence was found to put me on Crohn's meds. I'm still awaiting results from a specialist to confirm this.
In the meantime, I'm now back in bed with a very bad kidney infection and cystitis. I get cystitis attacks 3-6 times per year but have had 2 in the past month alone! Does anyone else find they get urine/kidney infections? Or regular cysitis? Apparently the blood, protein and white blood cells were very obvious this time and my whole back has swollen where my kidneys are.
Basically,I'm just looking for anyone who's had any of the symptoms I've had, maybe you can help me with a probable diagnosis as the gastro specialist is taking a while to get back to me.
Today, as well as my kidneys being bad and painful I also had a bout of dihoreha after about 4 days of constipation.
Please give ANY help/advise/comments as i feel completely on my own, incredibly unattractive and feels so sad for being constantly ill.
Desperately,
Lizzie xx