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09-03-2014, 04:28 PM   #1
JenniferJuniper
 
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Join Date: Jul 2014
Location: Pittsburgh, Pennsylvania

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My Son's Poem

This just killed me...

My 13 year old just started his new year in middle school last week and was given a "get to know you" assignment from his English teacher.

Write a 5 word poem or descriptive sentence to describe something they are currently experiencing or going through. Here was my son's descriptive sentence:

Fighting what is inside me.

__________________
14 yr old son dx Crohn's 7/14

Severe inflam. in small intestine
Delayed growth & puberty, malnourished, anemic
Remicade & Methotrexate 8/14
Vit D, folic acid, supplemental EN
38 cm of distal ilium removed 7/15

Last edited by JenniferJuniper; 09-03-2014 at 08:42 PM.
09-03-2014, 04:32 PM   #2
Farmwife
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Join Date: Apr 2012
Location: Michigan

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Some day your son will write........
I beat this awful disease.
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
09-03-2014, 05:58 PM   #3
my little penguin
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Join Date: Apr 2012

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Big hugs
Its hard when they are dx and dealing with teenager stuff as well.
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DS - -Crohn's -Stelara
09-03-2014, 07:45 PM   #4
Brian'sMom
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Join Date: Dec 2010
Location: Kansas

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Our kids need a cure! My 5 word sentence. Give your son a hug from me His sentence makes me sad and proud. Kids with this disease are so tough and intellectual and mature beyond their years.
__________________
Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
09-04-2014, 12:01 PM   #5
Momtotwo
Senior Member
 
Join Date: May 2014
Well, that made me cry. But I do think it's great your son is expressing his feelings.

I must add that it makes me angry that out kids have to deal with IBD. They should be writing about football, parties and other fun stuff. I agree, we need a cure.
09-04-2014, 06:57 PM   #6
malorymug
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Join Date: May 2014
Location: DFW, Texas

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If I remember correctly you are newly diagnosed. We were diagnosed last spring and my son wrote about his feelings about Crohn's almost exclusively. I think it was very therapeutic for him as his processed and grieved. His english teacher learned a lot about crohns.This fall I'm seeing a whole different outlook as he writes. And for the first time ever, he is thinking good things about the future and making plans.
__________________
Mom to: 15 year old boy
Crohn's in stomach, small intestine, large intestine, and perianal disease
Diagnosed April 2014, at age 13

Currently taking:
Remicade 10mg/kg every 6 wks
Methotrexate 7.5 mg/wk
Cipro
Augmentin
Miralax

previous meds:
6mp 50mg
Flagyl
Cipro
Prednisone 30 mg
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