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Crohn's Disease Forum » Parents of Kids with IBD » 3 year old starting new program


09-05-2014, 06:29 AM   #1
Pilgrim
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3 year old starting new program

Well, she's started Azathioprine. We're also at the point where we're re-introducing food from having done EEN for 6 weeks.

She can hold her own in a conversation about the relative merits of various Boost flavours, but was SO happy to get to have a little bit of something else.

To tell you the truth, I'm more worried about how her body will respond to the food than the Aza right now - but this is the way of it with Crohn's.

Hopefully her little body responds well to all of it. It's been amazing to see her energy levels improve so much with the EEN. It would be great if the improvements continue.
__________________
Mom to daughter,age 5, diagnosed at age 3 with Crohn's Disease
Current Treatment: Humira (started 12/2014) moved to weekly injections (07/2015), Back to 50% EN orally. Zinc supplements. Calprotectin through the roof.
Previous Treatment: Azathioprine (discontiued 09/14 due to Pancreatitis) Flagyl, Sulfasalazine, EEN, Iron,Vit D, Zinc, SCD
09-05-2014, 06:41 AM   #2
SupportiveMom
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Aza can work well, & I believe it was the only thing that kept my kid out of the hospital this summer. It was the 1st drug she noticed decent improvement on & as you can see by my signature she has tried a lot. I hope for happier & healthier days ahead for you both!
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Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone
ibdsupportivmom.wordpress.com ☆
09-05-2014, 06:46 AM   #3
Catherine
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Not sure aza works for my daughter but she has no side effects.

Good luck with your next step.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
09-05-2014, 09:01 AM   #4
Sascot
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Good luck for both the Aza and the food
09-05-2014, 09:58 AM   #5
Farmwife
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I pray it works well for her. My dd never did this drug but I wish she could have.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
09-05-2014, 10:10 AM   #6
Maya142
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My daughter is Azathioprine and had no trouble tolerating it. She was nervous because she's had bad experiences with methotrexate, but really had no side effects at all with Imuran.
She takes it at night with a snack - we figured that if she was nauseous, she'd sleep through the nausea.
Good luck!
__________________
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-05-2014, 02:12 PM   #7
CrohnsKidMom
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I hope all goes well with Aza. Just keep in mind that it will take some time to kick in. I hope your little one continues to improve!
09-05-2014, 02:36 PM   #8
Pilgrim
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Thanks. I think that the length of time the Aza takes to work is what is making me nervous about the reintroduction of food right now. A few times over the 6 weeks of EEN she went backwards a little when she was getting a cold. I just hate to mess with the equilibrium. Time will tell.
09-05-2014, 09:09 PM   #9
DJW
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I hope she enjoys a LONG remission.
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Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

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Trillium Drug Program:
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Dave
09-06-2014, 09:16 AM   #10
Pilgrim
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Thanks Dave, I'm hoping she does too.
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