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Crohn's Disease Forum » Parents of Kids with IBD » College football player with CD


09-06-2014, 05:14 PM   #1
Clash
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College football player with CD

We are watching college football today. So we are flipping through games and an announcer mentioned that Dion Hill RB for Georgia Tech has Crohn's and was out for the spring struggling with it.

Nice to hear of those that are still going after their dreams and managing their illness.
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira

Last edited by Clash; 09-06-2014 at 07:39 PM. Reason: spelling
09-06-2014, 05:16 PM   #2
Clash
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Here's an article

http://m.ajc.com/news/sports/college...surgery/ngtrG/
09-07-2014, 11:23 AM   #3
Ands
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Fantastic to hear, positive stories and being open about it all. Brilliant. X
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.................................................. .............................
Son Joseph diagnosed July 2012 (aged 10)
Crohn's: oesophageal, ileal, oral and perianal disease
6 week exclusive modulen
8 weeks predisolone
2 weeks azathioprine - stopped after reaction
6-MP 50mg - stopped June 2014 (after 18 months)
Currently on:
Sennoside 18ml daily
Multi Vitamin
Omeprazole 10mg
Prochlorperazine 2 x 5mg
Predisolone as a mouth-wash (as and when needed)
09-08-2014, 07:55 AM   #4
Brian'sMom
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I just keep hearing over and over stories of people with crohns in a "section" of their bowels... they remove it and connect to healthy bowel to healthy bowel and everything is great!! Where are any examples of anyone with crohn's in their rectum?!! I'm starting to even wonder if my son even has crohn's. Why does it seem like no one has it in that spot. What is the options of it being there? I'm so depressed latetly. We've been thru this ditch for YEARS and YEARS now. Where is our happy ending?
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
09-08-2014, 08:43 AM   #5
Clash
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I'm so sorry Brian'sMom. Both of my husband's nieces have perianal disease. The oldest has had several surgeries. I know CD can be challenging in that area. They have both been deemed as having refractory CD and they do struggle. But the youngest lives on her own and has a good job and although she faces many obstacles she is finding her way brilliantly and courageously facing her CD down. They are older(30 and mid twenties) and I am always in awe of the courage and determination they posess.

I truly hope things greatly improve for your boy! HUGS!
09-08-2014, 05:31 PM   #6
my little penguin
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Brian'smom
DS has had a lot of rectal inflammation issues among other areas and has crohn's ( 3 seperate Gi opinions plus two pathologists.)
When he goes downhill that is the first area to get worse and the last area to heal.
We try to turn things to pure liquid ( miralax )when his rectum gets worse because it prolapses and then the cycle starts and gets worse .

Wishing you find that magic drug for your kiddo .
The rectal issues by far were the worse.
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09-08-2014, 05:35 PM   #7
Brian'sMom
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Out of the blue our GI at Mayo called today. He said he's been really thinking of Brian and how his case has been so challenging. He's never been in remission and nothing seems to work. With his onset being so young... and his aunt also never getting to remission he wants to have a team of specialists at Mayo to look at Brian's whole case. Genetically! I just love this doctor. He really cares about Brian and thinks of him all the time. He wants to get him healthy as if he were his kid too.
09-08-2014, 05:41 PM   #8
Maya142
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That's wonderful news! I hope and pray that they can come up for a solution for Brian. Is Vedolizumab not working at all or is it too soon to tell?
Sending HUGS!
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-08-2014, 06:59 PM   #9
Momtotwo
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Brian's Mom- That is good news about a fresh look, and I really hope it helps. Why is this disease so challenging for some kids. It's tough for all of them, but so difficult to treat for some.
09-08-2014, 10:03 PM   #10
Brian'sMom
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That's wonderful news! I hope and pray that they can come up for a solution for Brian. Is Vedolizumab not working at all or is it too soon to tell?
Sending HUGS!
To soon to tell. It's been just over 4 weeks. I guess they see response around 10-12 weeks. Our GI is just trying to think of everything. He thinks something should've worked before now!
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