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09-08-2014, 06:18 PM   #1
my little penguin
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Ev -d68 spreading

http://www.cnn.com/2014/09/07/health...html?c=&page=2

Not sure how it affects immunosuppressed .
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DS - -Crohn's -Stelara -mtx-IVIG
09-08-2014, 10:02 PM   #2
Mehita
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Everything I've seen so far says it's been kids only. Have you seen anything different. MLP?

I don't know of any kids personally, but our local news says it's here.
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
09-09-2014, 06:44 AM   #3
Farmwife
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They are telling Michigan to prepare. Not looking forward to the possibility.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
09-09-2014, 01:44 PM   #4
CrohnsKidMom
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Location: (Canada), Nova Scotia

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It was on our national news last night here in Canada. It's not here, but they were saying to brace for it. I'm nervous. I supplied my kid's classroom teachers with big bottles of hand sanitizer the other day. I'm sure they appreciate me doing that!
09-09-2014, 02:27 PM   #5
DanceMom
Senior Member
Must admit....I'm a little nervous about this. Especially since we have several appointments each month at our hospital/clinic and I imagine things spread there quickly. I wipe my kids down with antibacterial wipes when we leave, lol.
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A is 12

Diagnoses: Immune Dysfunction, Hypogammaglobulinemia, Asthma, Allergies

Treatment: Hizentra, Flovent, Zyrtec, Cellcept
09-11-2014, 09:41 AM   #6
Brian'sMom
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Location: Kansas

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They featured Children's Mercy in KCMO... That's where our KC GI clinic is!! Uh OH!!
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
09-11-2014, 10:12 AM   #7
DanceMom
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Our hospital put a little video clip on Facebook stating symptoms of the virus (runny nose, cough, fever, wheezing) and precautions parents should take (handwashing, not sharing food/drinks). The doctor on the video said that for most kids the virus would present like a typical cold, but for kids with underlying lung conditions it may develop into a more serious respiratory illness. Only kids that are wheezing or showing signs of respiratory distress or dehydration need to be seen by a physician. Others should be able to recover on their own at home. This eased my mind a little.
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