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Crohn's Disease Forum » Parents of Kids with IBD » Update on my daughter


09-10-2014, 03:12 PM   #1
tlabruyere
 
Join Date: Sep 2014
Location: lake charles, Louisiana
Update on my daughter

Well we seen GI dr today. He asked his many questions and decided we gonna do colonoscopy this Monday. Her red flags were the pain in ileum area ,mouth ulcers,and a anal skin tag. He found that during a very uncomfortable anal check that my poor girl was not prepared for. She has had that since a young baby. Didn't know that was even a concern. Her ped told me it would go away but it never did.

Did more blood work and gotta do stool sample. She starts her colon cleanse Sunday.
09-10-2014, 03:35 PM   #2
DJW
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I'm sorry to hear that. Rectal exams are awful when you're little.

I was terrified of them. My pediatric surgeon gave me a tip that made a world of difference.

Push out as the doctor put his/her finger in. It relaxes the muscles and makes it easier.
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09-10-2014, 03:37 PM   #3
Maya142
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Sorry to hear the rectal exam was hard. My daughter absolutely hates them (as most kids do, I'm sure!).

I hope the clean out and scopes go smoothly!
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09-10-2014, 03:38 PM   #4
tlabruyere
 
Join Date: Sep 2014
Location: lake charles, Louisiana
That prob would of helped. She is 14 but was just horrified. She knew he was gonna ask embarrassing questions but she didn't know that was gonna happen today too. She is also so scared of the colonoscopy.
09-10-2014, 03:41 PM   #5
Maya142
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The prep is not fun but the actual colonoscopy is a breeze. My daughter was scared too, but was told she would be so deeply asleep that she wouldn't feel a thing (and she didn't). Most kids are given general anesthesia. After the colonoscopy she was nauseous and tired for a bit, but mostly just very hungry.
09-11-2014, 02:23 PM   #6
Pilgrim
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My daughter didn't even remember we had gone to the hospital for the scopes after we left. The general anesthesia pretty much left the memory blank for her. She was tired for the rest of the day. Slept a lot.
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Mom to daughter,age 5, diagnosed at age 3 with Crohn's Disease
Current Treatment: Humira (started 12/2014) moved to weekly injections (07/2015), Back to 50% EN orally. Zinc supplements. Calprotectin through the roof.
Previous Treatment: Azathioprine (discontiued 09/14 due to Pancreatitis) Flagyl, Sulfasalazine, EEN, Iron,Vit D, Zinc, SCD

Last edited by Pilgrim; 09-11-2014 at 02:24 PM. Reason: missed something
09-15-2014, 05:10 PM   #7
SupportiveMom
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I think when they get around puberty age there are a bunch more issues that happen because they become self conscious. My kid was 11 when diagnosed and barely resisted. She never questioned a test. Now she is full of apprehension and questions, especially when facing physical exams. Draw all the blood you want, who cares. Look at my privates and you better have a REALLY good reason she says.
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Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone
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09-15-2014, 08:07 PM   #8
Pilgrim
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Good instincts.
09-16-2014, 03:44 PM   #9
SupportiveMom
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I just re-read my post. Made me chuckle after your response pilgrim. That should be the rule of thumb with docs & everyone else! (Especially boys!)
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