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Crohn's Disease Forum » Parents of Kids with IBD » Humira every 10 days


09-12-2014, 11:15 PM   #1
my little penguin
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Humira every 10 days

Well after seeing the Rheumo last week and lots of conversations on the phone with docs offices and the specialty pharmacy - the insurance approved the increased. Frequency of humira - only took 8 days
So his first close together 10 day shot will be monday.
Hoping it won't make him too tired for school.
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DS - -Crohn's -Stelara -mtx-IVIG
09-13-2014, 04:46 AM   #2
Sascot
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Good luck, hope it does the trick
09-13-2014, 09:25 AM   #3
Tesscorm
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Good luck!! Hope this brings him relief!!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
09-16-2014, 05:00 PM   #4
Brian'sMom
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I only noticed a difference when we went weekly. And it wasn't fatigue. He seemed to get some skin infections and some illnesses so they moved us out to 10 days. Good luck. I hope it works its magic. Many say it does the trick putting it closer.
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
09-16-2014, 05:04 PM   #5
my little penguin
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Thanks
First close dose in yesterday.
Hopefully it will work quickly on his arthritis which more the issue right now and getting. Worse by the day
09-16-2014, 06:36 PM   #6
Farmwife
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Sorry I must of skipped over this.

When my dd was upped to every ten days I didn't notice a difference in anything but that's why she's onto Remicade.

Now will he go back to every 14 days if he improves?

I hope it works well for him.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
09-16-2014, 08:16 PM   #7
Maya142
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Same with us- 10 days didn't help so we went to weekly. That worked wonderfully for a while (with MTX).
Hope it works quickly!
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-17-2014, 10:34 AM   #8
SupportiveMom
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MLP - sigh.. I hope he had had enough energy. How did it go Monday?
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Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone
ibdsupportivmom.wordpress.com ☆
09-17-2014, 11:00 AM   #9
my little penguin
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Shot went well- added lidocaine and he told me when to stop so less pain.
He was very tired Tuesday .
Joints still bad
Hoping today is better
Mtx dose Thursday so fingers crossed after a few doses things turn around
09-18-2014, 04:41 AM   #10
polly13
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Hope it works for him
09-18-2014, 09:36 AM   #11
Jmrogers4
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Hoping things are better today.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
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