Hi,
After 7 years of bleeding I was diagnosed w/ Eosinophilic Colitis about 18 months ago.
I have been taking Pentasa granules in the morning & at night for a good few years now & almost 5 weeks through what is meant to be a 6 week course of Prednilosone enemas.
I started this course off using some of the liquid enemas I had left over from a smaller batch I had been prescribed but the new prescription was for foam after 2 weeks+.
Symptoms have gotten worse. I have pain in the guts, generally in the afternoon for some reason but not necessarily after eating.
The enemas were "upped" to 2 a day 10 days ago but I'm still experiencing pain. As the hospital wanted me to complete a 6 week course I want to make sure this has been completed before moving on to exclusion diets or what have you etc…
I should point out that I have had several allergy tests, none of which showed anything pointing to a food allergy so I'm baffled & on diagnosis last year ny specialist said this was a rare condition, the only that he is aware of in Northern Ireland.
I should point out that the enemas I took for 2 weeks in April before I went away on holiday worked & I was symptom-free for 2 months.
Int he past month, symptoms have been more ferocious than perhaps ever.
Specifically, excreting on 2 occasions NOTHING but mucus, which really freaked me out. Also the pain in my guts was not something I'd had lingering as long as I have had this time.
My diet is generally a very good one: First 6 months of this year I ate no meat & I eat a lot of fresh foods etc. I've started eating meat again because I was concerned about iron levels.
I would really love to hear from anyone who knows more about this particular condition to share notes/experiences etc…
I'm concerned about A) stopping the Prednisolone in a week whilst still experiencing symptoms & also what to do going forward, i.e.) diet etc.
Thanks for taking the time to read!
After 7 years of bleeding I was diagnosed w/ Eosinophilic Colitis about 18 months ago.
I have been taking Pentasa granules in the morning & at night for a good few years now & almost 5 weeks through what is meant to be a 6 week course of Prednilosone enemas.
I started this course off using some of the liquid enemas I had left over from a smaller batch I had been prescribed but the new prescription was for foam after 2 weeks+.
Symptoms have gotten worse. I have pain in the guts, generally in the afternoon for some reason but not necessarily after eating.
The enemas were "upped" to 2 a day 10 days ago but I'm still experiencing pain. As the hospital wanted me to complete a 6 week course I want to make sure this has been completed before moving on to exclusion diets or what have you etc…
I should point out that I have had several allergy tests, none of which showed anything pointing to a food allergy so I'm baffled & on diagnosis last year ny specialist said this was a rare condition, the only that he is aware of in Northern Ireland.
I should point out that the enemas I took for 2 weeks in April before I went away on holiday worked & I was symptom-free for 2 months.
Int he past month, symptoms have been more ferocious than perhaps ever.
Specifically, excreting on 2 occasions NOTHING but mucus, which really freaked me out. Also the pain in my guts was not something I'd had lingering as long as I have had this time.
My diet is generally a very good one: First 6 months of this year I ate no meat & I eat a lot of fresh foods etc. I've started eating meat again because I was concerned about iron levels.
I would really love to hear from anyone who knows more about this particular condition to share notes/experiences etc…
I'm concerned about A) stopping the Prednisolone in a week whilst still experiencing symptoms & also what to do going forward, i.e.) diet etc.
Thanks for taking the time to read!
