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09-16-2014, 12:04 PM   #1
nixer600
 
Join Date: May 2013
Remicade and UC

After 3 years of a uncontrolled flair, I decided to try anything that may help.

I've been on remicade now for 3 months or so.

I did the
2 week infusion
Then the 6 week
Then the 8 week

/\ I guess those are accurate time frames.

Anyways went back to see the doc and follow up with him.

I explained to him that the first treatment made a noticeable difference, as well as the others, but I feel like my body needs more in me.

In my mind if it helped a little but not enough I need more....

I talked to him and wanted me to do nothing. He wanted me to wait another 3 months to see how I feel. To me this is my life always waiting to feel better.

He didn't do any test or anything he just said let's wait for the 6 month mark maybe then we will think about increasing you dose.

Dose this sound good to y'all?

I do have time, I'm just disabled at home. But it's hard on me to lay around sick all the time.

Thanks!
09-16-2014, 01:46 PM   #2
nogutsnoglory
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It can take around 3 months to start being effective for some people so in a way it's good they aren't rushing but 6 months seems too long.
09-16-2014, 04:00 PM   #3
2thFairy
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Three months is a good timeframe before considering a higher dose
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09-17-2014, 11:38 AM   #4
nixer600
 
Join Date: May 2013
What's normal, to increase the dose or it's frequency?
09-17-2014, 12:15 PM   #5
2thFairy
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Both. My GI increased the dose and then the frequency. Not every GI does it the same, however.

You are just at the beginning of the whole Remicade thing. Try to relax and let it do its thing rather than pushing for a higher dose so soon.
09-17-2014, 12:18 PM   #6
2thFairy
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In my previous post, I should have said an additional 3 months is a good timeframe. I don't think Remicade should be increased before 6 months unless there is an extreme case of uncontrolled flare, but that's just an opinion.
09-17-2014, 12:21 PM   #7
nixer600
 
Join Date: May 2013
Ok, guys and gals, I'll just wait more. I'm disabled and trying to get back out of the house. It's just hard to not rush. But now that I understand 6 months is the normal wait time, im ok now and will wait thanks!
09-17-2014, 12:24 PM   #8
2thFairy
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The whole thing sucks.. It is very hard to wait!
11-29-2014, 02:40 AM   #9
inksane
 
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I am trying to get my GI to increase my dose but he does not want to do that yet. I have had 3 infusions and currently having a horrible flare up. I was down to 5mg of prednisone now I'm back up to 40mg and feeling horrible all the time. He wants to do another flex sig which will be my 3rd one since July.
11-29-2014, 08:36 AM   #10
2thFairy
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Three infusions is still very early for Remicade. You may need to wait as long as 6 months to determine if you need a higher dose. Hopefully you will see some improvement soon, but it is still early. Hang in there!
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