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09-19-2014, 07:16 AM   #1
kernelmom3
Senior Member
 
Join Date: Sep 2014
MRE update

Hi all...first things first. THANK YOU (as always) for all your replies/answers/suggestions. I don't know what I'd do without this support!

Grayson went for his MRE yesterday. He was only able to drink one of the three bottles of barium because he felt so bloated. We had his GI paged and his GI spoke with the radiologist and they did the MRE anyway. Hopefully we'll know soon if his abscess has gone down from the antibiotics at all. I guess he's also looking at the other 20 or so feet of intestine that can't be seen with endoscopy/colonoscopy so that Grayson can start Remicade soon. Fingers crossed! Lastly, I wanted to ask about diarrhea/constipation after barium. Most of you said that your kids had diarrhea but Grayson hasn't been able to go to the bathroom. He's not constipated, just gassy he says. Of course, my thoughts go right to my sister when she drank the barium for the upper GI and it hardened in her stomach! The radiologist assured me that it's a different barium and I also have to remember he only drank one bottle. I was telling my neighbor, I feel like I'm held together with tape and string and I just don't know when I'll unravel! Does this roller coaster EVER get easier?!
09-19-2014, 08:14 AM   #2
Pilgrim
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Join Date: Jul 2014
Location: Ontario

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That's a good question. If the disease wasn't so shifty, maybe you could get used to it, but it is ever changing.

May the imaging results be better than you hope!
__________________
Mom to daughter,age 5, diagnosed at age 3 with Crohn's Disease
Current Treatment: Humira (started 12/2014) moved to weekly injections (07/2015), Back to 50% EN orally. Zinc supplements. Calprotectin through the roof.
Previous Treatment: Azathioprine (discontiued 09/14 due to Pancreatitis) Flagyl, Sulfasalazine, EEN, Iron,Vit D, Zinc, SCD
09-19-2014, 09:51 AM   #3
Maya142
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Just make sure he drinks a lot of water! My daughter was on Miralax then and we were told to increase the dose for a few days (but this was with the barium for a small bowel follow through).

Hope the MRE is helpful. Hang in there!
__________________
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-19-2014, 10:10 AM   #4
Jmrogers4
Moderator
 
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Yes, lots of water. My son was only able to get one bottle down for his MRE and it was enough to get clear pictures. Hope it's the same for you.
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
09-19-2014, 02:29 PM   #5
Brian'sMom
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Location: Kansas

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I was going to say "water" too, but see it's already said. We've always been told lots of water to flush it out.
__________________
Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
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