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Crohn's Disease Forum » Treatment » Remicade/Infliximab » How long do I have to wait for Remicade to work?


10-16-2014, 05:44 PM   #1
LyndseyB
 
Join Date: Oct 2014
Location: Cape Coral, Florida
How long do I have to wait for Remicade to work?

I've been flaring since June. Since then I have had five hospitalizations and three remicade infusions. My last, and third, infusion was this past Friday. (10/10) I'm still experiencing symptoms. Using the bathroom 5+ times a day and it's all liquid, I'm not retaining anything. Today a low grade fever popped up. Anyone with experience? Advice? I just want my life back...
10-16-2014, 05:47 PM   #2
DJW
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Join Date: Jul 2013
Location: Ontario

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Hi LyndseyB and welcome.

I'm new to Remicade myself (2 infusions) so I don't have any answers.

Sending you my support. I hope you get you're life back quickly.
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10-16-2014, 10:02 PM   #3
FrozenGirl
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I didn't feel different at all until infusion number 4 (which was 4 weeks after number 3, not 8 weeks ads usual, due to my lack of response). After number 4 I started feeling better.
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Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
10-21-2014, 11:11 PM   #4
ryansbronco
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It was the fourth infusion for me. I even had a hospital stay between the 3rd and 4th. hopefully soon you'll be getting better.
11-16-2014, 08:05 PM   #5
inksane
 
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Join Date: Nov 2014
Location: Richfield, Minnesota
I have had 3 infusion so far and I was feeling better right after my 3rd dose. But now 1 month later I am feeling like crap again and going to the bathroom all the time. Waiting for my GI to get back to me tomorrow and hopefully I can go in early for another infusion.
11-17-2014, 07:19 PM   #6
Allegra
 
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Join Date: May 2014
Location: Ireland

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I started feeling better 48 hours after my first infusion!
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