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11-10-2014, 01:36 PM   #1
JenniferJuniper
 
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Join Date: Jul 2014
Location: Pittsburgh, Pennsylvania

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Auto Immune Summit

FYI, I just registered for the Auto Immune Summit to learn more about auto immune disease online a few minutes ago and I wanted to share.

I don't know what sort of information will be available but I found it online after a friend with some gut issues recommended it and found it begins today through the 20th and I'm going to give it a try. I found it at www.autoimmunesummit.com if anyone is interested.

My son, 13, was diagnosed with Crohn's in July and we have been having some success with Remicade/Metho so far. Bloodwork trending in the right direction, but no remission yet after 4 doses. I guess I keep trying to learn more in case the other shoe should drop and this treatment is discontinued.
__________________
14 yr old son dx Crohn's 7/14

Severe inflam. in small intestine
Delayed growth & puberty, malnourished, anemic
Remicade & Methotrexate 8/14
Vit D, folic acid, supplemental EN
38 cm of distal ilium removed 7/15
11-10-2014, 02:12 PM   #2
JenniferJuniper
 
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Join Date: Jul 2014
Location: Pittsburgh, Pennsylvania

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Update so far...
The first session is mostly the Dr. trying to presell copies of her book.
Second session, seems to focus more on Celiac's, leaky gut, etc...
Not sure if I will stick with the rest of the summit...No mention of Crohn's yet, at all.
11-10-2014, 03:22 PM   #3
amberqueen
 
Join Date: Nov 2011
Location: Galway, Ireland
I signed up for that too but haven't checked it out yet. Sounds interesting though so will do. Hopefully some useful information and not just them trying to sell stuff. Hope your soon is doing better
11-13-2014, 09:05 AM   #4
JenniferJuniper
 
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Join Date: Jul 2014
Location: Pittsburgh, Pennsylvania

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Seems like many of the doctors are selling books and there is a huge focus on gluten and celiac. Haven't found much useful info yet
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