Crohn's Disease Forum » General IBD Discussion » In remission but still have pain?

11-13-2014, 08:55 PM   #1
Shelli's Avatar
Join Date: Jan 2012
In remission but still have pain?

I have been having some intense left sided pain for two months. I thought it was my kidney at first but a CT scan showed nothing but very small non obstructive stones. Yesterday I had a colonoscopy and it showed that the crohns was in remission. The only other findings were a tortuous colon with many loops and turns, and a few internal hemorrhoids.
So I have no explanation for this pain. It's feels like a hot sharp pain twisting in my side. Has anyone else experienced this? I don't know where to turn next. They tell me to take Tylenol for the pain...but it Tylenol doesn't touch it. Please help.
Shelli~ Fibromyalgia, Chronic Migraines, Crohns dx 11/11, 2 fissures

Treatments~ Asacol- Failed (triggered more migraines)
Entocort~ Failed
Now on Remicade

Surgery~ emergency surgery to remove infected skin tag
11-14-2014, 08:40 AM   #2
Senior Member
Join Date: Jun 2006
Location: Halifax, NS, Canada

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Torturous colon??? Does that mean scar tissue? If you have residual scar tissue, or the wall of the colon has thickened from the disease... then that might explain the pain you are experiencing. I have recurring bouts of pain every day from scar tissue. Only cure will be to have the colon removed (in my case).

Dx'd July, 2006
Meds: Flagyl, Cipro, Pred, AZA.. to no effect
Low Dose Naltrexone Nov 2007 - May 2014
Remicade June 17th, 2014
11-14-2014, 02:01 PM   #3
Senior Member
Essieluv's Avatar
Tortuous colon can actually be a very painful condition...did your GI explain this to you. The symptoms of tortuous colon are basically the same as IBS symptoms (pain, bloating, gass, and irregularity). So that in and of itself could be part of your pain. Another possibility is actually IBS. It is quite common for people with IBD to have IBS during periods of remission. I have this and it is horribly painful most times. There are some medications and diet changes that can be used in IBS, so I would ask your GI about whether it could be a possibility for you.
Meds that failed me: Remicade, Humira, Cimzia, Entocort.

Waiting for a cure!

Crohn's Disease Forum » General IBD Discussion » In remission but still have pain?
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