Share Facebook


11-20-2014, 11:31 PM   #1
Miss Underestimated
Senior Member
 
Miss Underestimated's Avatar
 
Join Date: Mar 2011
Location: Norfolk, Virginia
In remission!!

I've been busy and haven't posted much recently, but wanted to hold out hope for some who are just beginning. I had my annual colonoscopy today, and my Doc said there is no sign of disease.

I've been on Humira since Jan 2012 and on 6MP for the last 12 months. He said I can stop taking the 6MP. That's good news - I was so afraid I'd catch something really bad.

So, for now, anyway, I'm in remission. This is a sneaky disease and I know it can creep up on me again, but I'll take what I can get.
__________________
*Sick since 1987; managed on my own;
*diagnosed 2008 when I underwent emergency surgery;
*various meds and tests 2008-2012,
*Jan 2012-present, Humira. No symptoms, but scopes indicated disease.
*6MP for all of 2013.
*2014 &2015 complete mucosal healing.

**Staying on Humira for maintenance**

The statistics I see so far for my situation seem pretty good. There ARE long term statistics for the Anti-TNF drug treatments now. I'm here to make them longER.
11-20-2014, 11:35 PM   #2
DJW
Forum Monitor
 
DJW's Avatar
 
Join Date: Jul 2013
Location: Ontario

My Support Groups:
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
11-20-2014, 11:36 PM   #3
Miss Underestimated
Senior Member
 
Miss Underestimated's Avatar
 
Join Date: Mar 2011
Location: Norfolk, Virginia
thanks!
11-21-2014, 03:17 PM   #4
*yvonne*
 
*yvonne*'s Avatar
 
Join Date: Jul 2014
Location: Glasgow, United Kingdom

My Support Groups:
Hi and well done on being in remission. Can I ask if you've had any bad side effects on the 6MP as I think they want to out me on that with Humira too.
__________________

Mummy to two beautiful girls Age 3 & 1
Diagnosed July 2002
Currently on 25mg of prednisolone
Due to start Humira 24th Nov 2014
11-22-2014, 11:34 PM   #5
chosen
 
chosen's Avatar
 
Join Date: Nov 2014
Location: Washington, D.C.
I've been busy and haven't posted much recently, but wanted to hold out hope for some who are just beginning. I had my annual colonoscopy today, and my Doc said there is no sign of disease.

I've been on Humira since Jan 2012 and on 6MP for the last 12 months. He said I can stop taking the 6MP. That's good news - I was so afraid I'd catch something really bad.

So, for now, anyway, I'm in remission. This is a sneaky disease and I know it can creep up on me again, but I'll take what I can get.
Wooo! That's awesome!

You have probably mentioned this somewhere before but do you have Crohns or UC? Also, what else have you been on besides Humira?
__________________
Dx: Moderate-severe Ulcerative Colitis - June 2013

Current: Prednisone 40mg
Tried: Asacol, Lialda, Uceris, Prednisone, VSL#3, LDN, Hydrocortisone enemas, Canasa, L-Glutamine.
11-26-2014, 10:56 AM   #6
SdN
Senior Member
 
SdN's Avatar
 
Join Date: Sep 2010
Congrats!
__________________
Diagnosed with Crohn's September 2009

50mg Imuran - Jun 2010
increased to 150mg Imuran - Jan 2011
5mg/kg Remicade every 8 weeks - Mar 2011
stopped Imuran - Aug 2011
7.5mg/kg Remicade every 8 weeks - Nov 2011
Remicade is still working - Nov 2014
Colonoscopy shows no Crohn's! - Dec 2014

Current meds - 7.5mg/kg Remicade
11-29-2014, 12:47 AM   #7
Miss Underestimated
Senior Member
 
Miss Underestimated's Avatar
 
Join Date: Mar 2011
Location: Norfolk, Virginia
Hi and well done on being in remission. Can I ask if you've had any bad side effects on the 6MP as I think they want to out me on that with Humira too.

No, I really didn't have any problem with it. I kind of expected to after what I'd read about it, but I was fine. Now I'm off it entirely, and I'm glad. I did a lot of hand-washing and scrubbing, used the oriental style greeting instead of shaking hands or hugging. It worked, I didn't catch anything.
Reply

Thread Tools


All times are GMT -5. The time now is 06:18 AM.
Copyright 2006-2017 Crohnsforum.com