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12-03-2014, 01:20 PM   #1
HorseLover!!
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Really bad headaches....

I keep getting really nasty headaches I have had one nasty one for the past 3 days , I can't concentrate, I keep forgetting things my memory's an issue anyway but it's not this bad , I have too put my hood up a lot and often keep it up, I have even had to turn the brightness settings down on my laptop . I can get really crabby and snappy at people I don't mean to but it's cause my head hurts .

Anyone else get this?? and what can you do to relieve it without going to the doctor??
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Had my first Colonoscopy and Endoscopy at age 2 1/2 years old

Diagnosed with Crohn's in 1998 when I turned 3

19 Years and counting with Crohn's!

Previous: Prednisolone and Pentasa slow release, Had tube feeding at age 3, Azathioprine

Currently in a flare but not taking any medication because doctor hasn't bothered to prescribe anything

My HORSE is not just a HORSE, he is my SANITY, my HAPPINESS, my THERAPIST and my BEST FRIEND


12-05-2014, 06:17 PM   #2
Cat-a-Tonic
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With the sensitivity to light and sound, that sounds like you're having migraines. And if they're this bad, you really should see a doctor about it. Is there a reason you can't go to the doctor for this? I am not certain, but I never used to get migraines ever until I developed IBD - now I am prone to getting migraines. They're awful, so I understand what you're going through. There are certain medications that can prevent migraines (I take 25 mg of Amitriptyline each night as it helps me sleep and prevents most of my migraines), and there are also medications like Imitrex that you can take when a migraine first starts to stop it from getting worse. Please do call or see your doctor if you're able to, they should be able to do something to help.
12-06-2014, 12:08 PM   #3
Grumbletum
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How long have you been on Azathioprine?
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Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
12-06-2014, 04:32 PM   #4
Jennifer
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I get migraines and take Imitrex for them. It works well for me. Definitely talk to your doctor about them and see if there's an underlying cause.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
12-07-2014, 12:35 PM   #5
HorseLover!!
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How long have you been on Azathioprine?
I'm currently not taking it (doctors orders) but was on it for just over a year
12-09-2014, 09:51 AM   #6
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I had cluster headaches for 22 years same time every 2 year's for around the same length of time about 5 or 6 weeks they started just 2 weeks before my stomach problems in 93 seemed to subside around 2 years ago now, I have migraines and supposedly 2 other headache types now aswell.Take migraleve combo for the migraines don't like to rely on pain meds though thing I always wondered is if the headaches and stomach stuff are somehow related.
12-09-2014, 09:52 AM   #7
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Hope your heads have settled now horse
12-10-2014, 10:50 PM   #8
my little penguin
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Ds take magnesium/b2 combo per neurologist to reduce the likely hood of migraines
He takes Imetrex as a rescue - works wonders
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12-11-2014, 02:07 AM   #9
gracestrong
 
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Until my Crohn's really kicked in, I never ever really got headaches. Now the majority of them are migraines. It's crazy, lights are painful, and I have super hearing when I have one hah.

My Wife is thinking I should go see a neurologist for them. Not a bad idea so I may go.

I would talk to your GI and see a neurologist about it. I'm not a fan of just loading up on meds so talk to both kinds of doctors and weigh it out and decide what you think would be best.
__________________
Crohn's with extra-intestinal RA like arthritis.
My Crohn's is systemic and located in my small intestine. Diagnosed via a pill cam.

ER Visits: 4, Pill Cam: 1, Colonoscopies: 4, Endoscopies: 4, Gastric Ulcers: 3, CT Scans: 2, Barium Fluoroscopy: 1, Contrast CT Scans: 2, Diet Trends: 5, Different Meds Tried: 14

Current and shortest med list yet:
Remicade
Celebrex
Prednisone
OTC Antacids
(Off 6MP but probably going back on it.)

http://www.gracestrong.com
12-16-2014, 12:15 PM   #10
LindaS
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I've been experiencing severe headaches for almost a month, to the point where I'm on temporary disability. The neurologist thinks it could be venous sinus thrombosis, so I have a cerebral MR venography test scheduled. Once predisposition factor for venous sinus thrombosis is inflammatory bowel disease.
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