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Crohn's Disease Forum » Surgery » Stoma Subforum » I've been able to eat fruit and veg without blockages!


12-08-2014, 11:11 AM   #1
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I've been able to eat fruit and veg without blockages!

With my first two stomas, even small amounts of fibre caused nausea and stomach cramps - every time, nausea and stomach cramps whenever my stoma was working, the severity and duration corresponding to the amount I'd eaten. I thought my new stoma was the same, as when I first tested it, I got stomach cramps. But lately I've been trying again, and have been able to eat some without symptoms. I think perhaps my stoma needed longer to heal for the swelling to go down. I've been eating one piece of fruit, with skin on, or one of the more problematic vegetables (peas, cauliflower, etc.) each day, and that seems ok. There are some things that I'm still not going to risk (even though I'd really like some baby corn ), but at least I'm eating pears and apples and tomatoes.
12-08-2014, 12:11 PM   #2
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Excellent.
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12-10-2014, 02:33 PM   #3
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Thats awesome glad your eating veggies and fruits Ive ate corn and tomatoes with no problem didnt realize how much I missed those foods until I ate them again.
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12-11-2014, 06:46 AM   #4
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Thats awesome glad your eating veggies and fruits Ive ate corn and tomatoes with no problem didnt realize how much I missed those foods until I ate them again.
I realised I was missing them. It's funny how I started craving the "healthy" foods - the ones most people have to make an effort to eat. I've always quite liked fruit and veg - even as a kid, I was one of those weird kids who would quite happily eat my greens - but I didn't realise I'd actually crave things until I'd not eaten them for a few weeks. Or not eaten them in the right forms anyway: apple juice and stewed apple aren't the same as biting into a whole, raw apple with its skin on!

Pears, apples, tomatoes and cucumber were the ones I missed most, and the ones I'm very pleased to be eating again now. I'm still rationing myself to one a day. It's nice to have vegetables other than overcooked carrots some days too!

Maybe this could work as a tactic to get people eating more healthily - the latest diet gimmick, eat no salad for a month and after that you'll want to eat it every meal!

When you say corn, what do you mean? I think this is one of the words that has a different meaning in the US than it does in the UK. And of course corn comes in lots of different forms anyway. I miss sweet corn, and baby corn. But I'm pretty sure they're very very likely to cause blockages, so I hadn't planned to try them at all. And I know popcorn is definitely to be avoided, but I never cared for that. But Corn Flakes are fine, one of the best breakfast cereals to eat it you have an ileostomy. So what kind of corn are you eating without problems? Because I'd love to hear if I'm avoiding baby corn unnecessarily!

It's mostly only the fruit and vegetables I've been missing. I haven't tried eating brown bread, because I haven't missed it eating white. Dried fruit, nuts and sees I never ate much of and don't miss, although I have been wanting a Cadbury's fruit and nut bar lately for some reason! And I'm glad that peanut butter doesn't pose a problem.

But the ones I remember reading as too dangerous to risk are sweet corn (I assume that means baby corn too), popcorn, mushrooms, whole nuts and large seeds (e.g. sesame seeds), and high-fibre breakfast cereals like bran, muesli, etc. And dried fruit, some kinds of beans, lentils and onion to be kept to very small amounts. Has anyone with an ileostomy ever tried eating any of those?
12-11-2014, 10:21 PM   #5
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That's so awesome!
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12-12-2014, 12:45 AM   #6
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12-15-2014, 03:06 PM   #7
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Has anyone been able to eat Bounty bars?? I know coconut item causes problems.
12-15-2014, 03:54 PM   #8
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I was never that brave....


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12-16-2014, 06:22 AM   #9
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I was never that brave....
I know, I learned my lesson very quickly when I got my first stoma. And I couldn't understand why my stoma nurses hadn't warned me - they'd mentioned avoiding fibre for the first few weeks, and a few specific foods - dried mushrooms was the one they said never to eat. But mostly they were very casual about it. When coconut was mentioned, I asked specifically about Bounty bars, and the nurse said one Bounty bar should be fine. They basically gave the impression that you can try whatever you want, and if something gives you problems, don't have too much of it (which is the same impression you get from reading official guidelines online: "people with ileostomies should expect to be able to resume a normal diet" etc.). I ended up going back for my follow-up appointment demanding to know why they hadn't warned me that half a tin of vegetable soup or a raw apple would have me doubled over with stomach cramps for days! And the nurse was very surprised, and said that too much fibre could cause watery output, but not the cramps and nausea that I got.

I knew I was getting blockages or partial blockages because my symptoms basically matched those given online, including the very specific ones such as the symptoms coming on when the stoma was active, and a doctor confirmed it with my worst blockage. I also found the various online DIY guides to unblocking your own stoma very effective.

I thought my stoma nurses should have given clear warnings and told me that many foods should be strictly avoided, but gradually I learned from reading posts here and elsewhere that it wasn't normal to get blockages as easily as I did. And I'm still being very cautious about trying things with my current stoma although it does seem to be far more normal than my previous ones, and the surgeon told me it shouldn't block as easily. But I'd still advise anyone with a new ileostomy to be very very careful in case their stomas are like my first two were: wait at least six weeks after surgery, and start with very small amounts of any food that could cause a blockage, and be extra careful if you have a loop ileostomy.

I've had my current stoma over three months now and I've found it can handle foods my previous stomas couldn't, and I'm wondering about trying to increase the quantity of these foods beyond one portion a day, and whether I'll be brave enough to try the really scary ones - chocolate with fruit and nut and coconut? I'm thinking I might treat myself at Christmas. If it ends with me in A&E it will be an interesting way to spend Boxing Day anyway.
12-16-2014, 12:51 PM   #10
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The one Christmas that I had with my Stoma was when it was only a month old, so I stuck to chocolatey Christmas things, like I had a chocolate pudding with caramel sauce and chocolate cakes 😊
I think that the Stoma nurses, however good (or not) they are just don't know what it is like to actually have a Stoma, and so much is just learnt by trial and error. That said I was warned off bean sprouts and mushrooms by my Stoma nurse!


12-16-2014, 07:00 PM   #11
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I've ate bean sprouts in Chinese food since I've got my stoma I can't think of any foods I've have problems with since my stoma. I'm eating just about everything the only thing is milk gives me horrible gas I'll wake up and my bag will look like a big ballon about to pop lol although I have to admit it wouldnt be very funny if it did pop in the middle of the night
12-16-2014, 08:16 PM   #12
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I have no problems with coconut, but get obstructed with bamboo shoots.
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12-17-2014, 08:48 AM   #13
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I can eat almost anything, but I have tried a few nuts and I am still a little still a little worried about eating them. When it comes to gas, I have to empty my bag quite often. During the night the pressure of gas and a full bag wakes me up in time but sometimes it is just in time!. So far I have been lucky and I hope my luck does not run out.
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