Share Facebook


12-10-2014, 07:55 PM   #1
GotCrohns
 
GotCrohns's Avatar
 
Join Date: Dec 2014
Humira Weekly?

Anybody on Weekly Humira injections? On weekly Methotrexate and bi-weekly Humira at present. Sounds like quite a whack of immune-suppressants.

Thanks
12-10-2014, 08:40 PM   #2
paul11
 
paul11's Avatar
 
Join Date: Nov 2014
Location: Milton, Massachusetts

My Support Groups:
I'm on the same dosage. Humira once every 15 days. So far haven't needed anything else to keep it under control.
12-10-2014, 09:23 PM   #3
Lam123
Senior Member
 
Lam123's Avatar
I'm on humira weekly and imuran daily.
__________________
Crohns for 26 years
Previous meds: Pentasa, Imuran
Current meds:
Humira weekly
- multi vitamin and vitamin D
- B12 shots monthly
Mother of one beautiful boy and a puppy! 👪🐶Happily married to an amazing and patient man, that I call my best friend❤️I'm just living life one day at a time and trying to figure out this crazy disease! 🍀🌞⭐️
12-10-2014, 10:18 PM   #4
lgpcarter
Senior Member
 
Join Date: Jun 2013
Location: Canada

My Support Groups:
I took Humira weekly for a while. It didn't work for me, but I didn't have problems with infections and wasn't sick with colds etc anymore than normal.
__________________
Diagnosed in with Crohn's in large and small bowel in 2000.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Entyvio every 8 weeks, Imuran 50 mg, Flagyl and Cipro 500 mg twice a day
Previously: Remicade, Humira, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone
12-10-2014, 10:49 PM   #5
Christen
 
Christen's Avatar
 
Join Date: Dec 2014
Location: Rancho Cucamonga, California
I started 6MP two weeks ago and my symptoms have been worse! Appointment with my doctor on Friday to discuss Humira. I am so nervous but I hope it works and beats the alternative.
12-10-2014, 11:06 PM   #6
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Ds is on humira every 10 days plus Mtx weekly .
For crohns plus juvenile spondyloarthritis in his hands
So far so good
__________________
DS - -Crohn's -Stelara
12-11-2014, 01:33 PM   #7
Grumpy1
Senior Member
 
Grumpy1's Avatar
 
Join Date: Mar 2014
Location: Victoria, British Columbia

My Support Groups:
Am on Humira weekly and 15 mg of Methotrexate weekly and 20 mg of Pred daily can we say walking drug store?
12-11-2014, 02:26 PM   #8
paul11
 
paul11's Avatar
 
Join Date: Nov 2014
Location: Milton, Massachusetts

My Support Groups:
I hear ya' Grumpy. I'm also on other meds to try to deal with some of the side effects of Humira which unfortunately don't really even work anymore. Lately. I think i'm the drugstore's best customer. You know it's bad when all the pharmacists know you by name like you just showed up at the local bar.
12-11-2014, 04:00 PM   #9
Grumpy1
Senior Member
 
Grumpy1's Avatar
 
Join Date: Mar 2014
Location: Victoria, British Columbia

My Support Groups:
Cheers squared? Unfortunately, my pharmacist is now calling me his "friend" - yippee!
12-11-2014, 05:07 PM   #10
paul11
 
paul11's Avatar
 
Join Date: Nov 2014
Location: Milton, Massachusetts

My Support Groups:
Cheers squared? Unfortunately, my pharmacist is now calling me his "friend" - yippee!
yea, I didn't want to say Cheers to give away my age but it's like I've become my pharmacy's version of "Norm".
12-12-2014, 01:16 AM   #11
Grumpy1
Senior Member
 
Grumpy1's Avatar
 
Join Date: Mar 2014
Location: Victoria, British Columbia

My Support Groups:
Oh, I can so appreciate that. Norm is better than Cliff though. My case would be Carla or one of the other annoying females.
12-12-2014, 10:50 AM   #12
paul11
 
paul11's Avatar
 
Join Date: Nov 2014
Location: Milton, Massachusetts

My Support Groups:
Oh, I can so appreciate that. Norm is better than Cliff though. My case would be Carla or one of the other annoying females.
I could see myself as Cliff without the useless facts and cool job
12-12-2014, 12:19 PM   #13
Shanen
Senior Member
 
Shanen's Avatar
 
Join Date: Jul 2013
Location: Aruba

My Support Groups:
Humira weekly didn't work for me so it's on to Remicade next week. Imuran, Prednisone, Ranitidine and a couple others. Add in the various vitamins and it's literally a handful each morning and evening. My pharmacy gives reward points per prescription and I can accumulate them pretty quickly.
12-12-2014, 03:51 PM   #14
Grumpy1
Senior Member
 
Grumpy1's Avatar
 
Join Date: Mar 2014
Location: Victoria, British Columbia

My Support Groups:
Shanen, I hope that Remicade works for you - it worked really well really quickly for me unfortunately I had a very bad reaction to it on my fourth infusion which sucked. The humira still hasn't kicked in hence the Methotrexate and the prednisone and all the appropriate vitamins and topirimate and.....
12-12-2014, 05:09 PM   #15
Shanen
Senior Member
 
Shanen's Avatar
 
Join Date: Jul 2013
Location: Aruba

My Support Groups:
Hopefully it will kick in for you pretty soon!
12-14-2014, 02:58 AM   #16
Scaryman
Forum Monitor
 
Scaryman's Avatar
 
Join Date: Jul 2012
Location: Atlanta, Georgia

My Support Groups:
Well I am on Humira Bi-weekly and MTX (preservative free) weekly. I'm now considered over wright 2 years after starting this combination.
__________________
Diagnosed 2003
5-ASA- failed
Imuran-failed with a strange reaction-paralysis
Remicade- failed with infusion reaction.
Mesalamine-another failure
Entecourt - fail- no help.
currently on Methotrexate 25mg and Humira combo.
Folic Acid Supplement
Hyclosomine,Ultram,vicoden for pain as needed
Extended right Hemocolectomy 5/24/13 Univ.Of Chicago
11/7/13- small crohns ulcer at surgical site (active).
12-14-2014, 03:03 PM   #17
Nancye50
Senior Member
 
Join Date: Feb 2014
Location: South bend, Indiana

My Support Groups:
I'm on 80mg Humira bi-weekly and it's working well.
12-14-2014, 03:46 PM   #18
Scaryman
Forum Monitor
 
Scaryman's Avatar
 
Join Date: Jul 2012
Location: Atlanta, Georgia

My Support Groups:
80MG? that's two injections each time....didnt know they prescribe that.
12-14-2014, 03:52 PM   #19
Nancye50
Senior Member
 
Join Date: Feb 2014
Location: South bend, Indiana

My Support Groups:
I'm not wild about taking that much but am glad I didn't have to combine Imuran with Humira. Yes, two injections every other week. I'm bionic.
01-07-2015, 01:48 PM   #20
carolm
 
Join Date: Mar 2010
Location: kilmacolm, United Kingdom
I have been on weekly Humira for 12 weeks and feel worse but my blood results are coming back better. I dont understand. Crp 51 from 127 3 weeks ago but fecal calprotectin level is 1700. Can humira hide blood markers?xx
01-08-2015, 01:09 AM   #21
paul11
 
paul11's Avatar
 
Join Date: Nov 2014
Location: Milton, Massachusetts

My Support Groups:
wow im on it every 15 days and the side effects are making me so miserable. 4 yrs of it. im going to try to take it every 16 days and see if the side effects go down without the fact that it works for crohns ending. sorry tired don't know If that made sense
02-05-2015, 02:46 PM   #22
Gerry96GT
 
Gerry96GT's Avatar
 
Join Date: Jan 2015
Location: London, Ontario
I'm on weekly also but I don't think it's really making me better then bi-weekly as I had before.
02-14-2015, 08:03 PM   #23
Heather4338
 
Join Date: Feb 2015
Location: Kittanning, Pennsylvania

My Support Groups:
I take Humira weekly and methotrexate every Sunday,, immune system is much weaker, and really not seeing. Much to any improvements
02-18-2015, 10:28 PM   #24
Patch
 
Patch's Avatar
 
Join Date: Jun 2014
Location: Michigan
I've been taking it bi-weekly, but while it started out working well, I never quite made it into remission and I've been slowly getting worse. Having a blood test next week to figure out if I've developed antibodies or if the drug just isn't lasting long enough in my system.
02-23-2015, 06:35 AM   #25
MikeinBklyn
Forum Monitor
 
MikeinBklyn's Avatar
 
Join Date: Mar 2010
Location: Brooklyn, New York

My Support Groups:
I had to go from every 14 days to every 10 days to dial the dosage in so my fistula would heal.

I would not worry about going to a weekly injection, especially if it helps.

Good Luck
__________________
Living the Dream one Day at a Time
02-23-2015, 05:14 PM   #26
paul11
 
paul11's Avatar
 
Join Date: Nov 2014
Location: Milton, Massachusetts

My Support Groups:
Thanks for your reply Mike. My problem is basically just the side effects. It works very well at every 15 days to keep it in remission but the side effects are just so bad. I have been taking it on the 16th day here and there but I know it's taking a chance. I really needed a little break from the side effects though so it's worth taking a chance. It feels great when the side effects go lower.
02-23-2015, 05:53 PM   #27
Grumpy1
Senior Member
 
Grumpy1's Avatar
 
Join Date: Mar 2014
Location: Victoria, British Columbia

My Support Groups:
Hey Guys, as I said I take a shot once a week and I had a special blood test done by Humira, they sent a nurse to my home and tested my blood which had to be done "24 - 48 hours prior to my next shot" so basically on the Thursday or Friday of any week to see how much Humira was in my system being as I am taking weekly shots. I got the results 2 weeks later and surprisingly enough there was very little Humira in my system. Having said that they are not sure if it is because my body metabolises the Humira very quickly or whether I am not getting enough Humira - I choose the first option by way.
Weekly injections were making a marked improvement with the MTX and prednisone, but unfortunately I haven't been able to take Humira since January when I got the flu - I get to go back on it this weekend and weirdly enough am looking forward to it. I hope that you all are well.
Reply

Thread Tools


All times are GMT -5. The time now is 02:44 AM.
Copyright 2006-2017 Crohnsforum.com