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Crohn's Disease Forum » Treatment » Low Dose Naltrexone » LDN actually works on me! (miracle ahead)


12-15-2014, 06:09 PM   #1
scotishcanadian
 
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Join Date: Mar 2011
Location: Virginia Beach, Virginia
LDN actually works on me! (miracle ahead)

Hey guys!

So I recently started taking LDN (4.5 mg) once a day at night before bed and it actually works for me! Just to give you an idea of why this is so amazing for me and a borderline miracle: I have severe refractory crohn's disease. I have tried every medication and treatment under the sun, to no avail. Before taking the LDN, I was sick for two years solid. I had to drop out of college, quit my job, and was basically reduced to just being able to "exist" at home whilst being on extremely high doses of continuous pain medicine.

I began to the LDN this past May. Like other people on this forum have said, it was a very gradual process. I honestly didn't even know if it was doing anything for a while there. However, now that I look back at where I was in May and where I am now, I can see a huge change. I am now full time in college again and am able to work out five days a week. LDN gave me my life back.

I really hope this encourages a least one person to badger their doctor into letting them try LDN. It's almost side-effect free and extremely cheap too.
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Diagnosed with Crohn's: January 2008
Surgeries: Gastrostomy [March 2011, Reversal September 2011], Pic Line Insertion [Multiple, most recent: March 2011, Reversal April 2012], Iliestomy [May 2013]
Failed Meds: 6mp, Remicade, Humira, Methotrexate, Flagyl, Thalomid, Cimzia, Elemental Diet, Probiotics, SCD Diet, Pentasa, Prednisone, and Entocort
Current Meds: Morphine (as needed occasionally), Pheneregan, and LDN.
12-15-2014, 06:12 PM   #2
nogutsnoglory
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Thanks for your update, so happy to hear LDN is helping you.
12-15-2014, 06:20 PM   #3
Kev
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Location: Halifax, NS, Canada

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Delighted it worked for you. Congratulations.
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KEV

Dx'd July, 2006
Meds: Flagyl, Cipro, Pred, AZA.. to no effect
Low Dose Naltrexone Nov 2007 - May 2014
Remicade June 17th, 2014
06-28-2015, 06:08 AM   #4
samman
 
Join Date: Mar 2015
Location: Corona, California
Is it still working for you
07-15-2015, 08:43 PM   #5
scotishcanadian
 
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Join Date: Mar 2011
Location: Virginia Beach, Virginia
It works most of the time still. However, my anxiety levels have increased (one of the less common side effects of the medication), I have tachycardia again, and I'm tired quite a bit. But then, I don't really have anywhere to go from here because I've either failed all of the other medications or the side effects were so bad that they outweighed the benefits. The only other thing that has ever been proven to work on me are stem cells, and I can't exactly obtain those until the FDA approves it or a trial comes about that doesn't care about the fact that I've failed more than one biologic.
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