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12-17-2014, 02:04 AM   #1
Lisaleigh
 
Join Date: Nov 2014
Location: Johannesburg, South Africa
Feeling Lost

Hi, my husband was diagnosed with crohns 6 weeks ago. He has changed his diet, is trying to quit smoking and is taking meds. I am just at my wits end myself. I am not coping with his diagnosis- it's been the worst 6 weeks of my life. I am very anxious and sad all the time and its affecting my health too. I can't seem to be okay with all of this or make peace with it as it feels like an impending doom besides all the changes. I was so very happily married and this diagnosis has turned my world upside down...
12-17-2014, 03:18 AM   #2
Cross-stitch gal
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Join Date: Dec 2011
Location: Vancouver, Washington

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It's understandable that the diagnosis is effecting you too. It's never easy to see a spouse or any loved one not feel good. It'll take time to get used to all the adjustments not only for your husband, but for you. In the meantime, we're all here for you and your husband not only for support but also to share information and experiences.

Hang in there. I'm just a message away.
__________________
Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
12-17-2014, 04:30 AM   #3
Lisaleigh
 
Join Date: Nov 2014
Location: Johannesburg, South Africa
Is it wrong to be hopeful for something like the crohn's map vaccine?
12-17-2014, 05:23 AM   #4
Axelfl3333
Senior Member
 
Join Date: Mar 2013
Location: Coatbridge, United Kingdom
No it's not wrong to be hopeful there's lots of money being flung at crohns some will stick.crohns is a dumb disease like any other totally random,annoying and a lot of people know very little about it including me until I got landed with it.i know it's early days for you both but just remember the vast majority get along fine with crohns as most people don,t go on forums.
Smoking is bad for crohns so it's game over for that one if your a smoker you could stop as well for moral support,treatment and diet options are so varied it can be very confusing so listen to your doctors ask questions be educated but be wary of dr google he,s a manic depressive.
There are a few things we crohnies have in common,diet wise greasy oily food is bad,fruit and raw veggies be cautious but as varied a diet as your husband can manage fish,chicken,white rice,soup with veggies well cooked or blended some spices are useful turmeric springs to mind its a natural anti-inflammatory.exercise ie a common theme on here it seems to help is when he,s well enough,doesn't,t need to be a pumping iron session.
Stress is a big factor in stirring crohns up so try not to and if you,ve managed to wade your way through this good luck and all the best.
12-17-2014, 05:26 AM   #5
Lisaleigh
 
Join Date: Nov 2014
Location: Johannesburg, South Africa
I truly hope some money sticks!!!!!
12-17-2014, 05:55 AM   #6
Cross-stitch gal
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Join Date: Dec 2011
Location: Vancouver, Washington

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All you can do is cross that bridge when it comes. And the only thing we really can do is the best we can. Same thing pretty much goes for everything else we deal with throughout our lives.

Here is something I just found and thought you might like.

http://www.crohnsforum.com/showthread.php?t=22283

Last edited by Cross-stitch gal; 12-17-2014 at 06:12 AM. Reason: Found something helpful
12-18-2014, 07:01 AM   #7
Lisaleigh
 
Join Date: Nov 2014
Location: Johannesburg, South Africa
Yes but I'm not getting any better- such hectic anxiety and it is now seriously affecting my health........I don't even know what's going on with me-I smoke way too much and don't sleep well at night and am all shakey and anxious 24/7. I don't think this is normal!!!
12-18-2014, 06:01 PM   #8
Cross-stitch gal
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Location: Vancouver, Washington

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Have you talked to your doctors about all this? Might be a good time for you to seek for some help too. Sometimes your regular doctor will have some ideas for you to destress or maybe even a support group you might be able to join on a regular basis.
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