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Crohn's Disease Forum » General IBD Discussion » First flare in 4 years, new symptoms please help!?


12-28-2014, 03:50 PM   #1
pnw-crohnie
 
Join Date: Dec 2014
First flare in 4 years, new symptoms please help!?

I am 21 years old, dx with Crohns in October 2010, small bowel resection Dec 2010, and started Remicade Dec 2010.

I get my rem every 6 weeks. Got it 2 weeks ago tomorrow. But last week I got so stressed with work I have developed a flare. I am having my normal abdominal pain, and I also have diarrhea that is not getting better with ANYTHING! Endless amounts of immodium hasn't touched it. have never had diarrhea as a symptom! Ive lost 7 pounds in 5 days. I just finished 5 days of Pred from the ER. Diarrhea had lessened but I'm still suffering and haven't been able to work this week. I have to go back on Tuesday.

Please help what can I eat??? Can I do anything?
I've tried plain turkey, mashed potatoes, small amount of cereal and Naked organic smoothies.
12-28-2014, 11:54 PM   #2
araceli
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Location: El paso, Texas

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Sorry you are not feeling good. Did they rule out infection? Can you get in touch with your GI? Maybe a lot of liquids and some EEN. Sorry I cannot be that much help. I hope you feel better soon.
__________________
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
12-29-2014, 04:30 AM   #3
Cross-stitch gal
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I would make sure you're not getting dehydrated with the diarrhea and are getting enough fluids. Are you also passing blood with the diarrhea? If so, I'd keep a watch on your iron levels as well. I'm hoping that you were able to get a hold of your GI. It's easier to treat a flare early rather than later. Please keep us updated on how you're doing.
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Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday, Canasa Suppositories (when needed) 1000mg 1xday

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


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12-29-2014, 06:00 PM   #4
george john
 
Join Date: Jan 2014
Location: indianapolis, Indiana

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rice or baked potato
12-29-2014, 07:53 PM   #5
cwhitaker
 
Join Date: Dec 2014
Location: Lexington, Illinois
I know some gi's are saying no motrin, but my son's told him to take it for the pain
01-06-2015, 01:00 PM   #6
pnw-crohnie
 
Join Date: Dec 2014
Nope no blood. Still having D but it's not as urgent for the most part. All stool samples and labs came back negative so its definitely a flare

Dr. Gave me Lomotil for the D and it half works half doesn't. I'm so lost. This is terrible. I don't know how some of you live with these symptoms all the time, I really took advantage of never having gastro problems!!!

Still having a hard time finding food...
01-06-2015, 04:01 PM   #7
Tesscorm
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Location: Ontario

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Do you have a follow-up apptmt with your GI? You need to figure out what is going on. A five day pred burst may not be enough to get the flare under control.

For now, you can try EEN (exclusive enteral nutrition) - drink nutritional shakes only (there are different types but, until you can see your GI, you can use Boost or Ensure). But, please, without your GI's approval/guidance, don't do this for very long! Make sure you take in enough calories - when my son was 17, he did EEN and was taking in 3000 calories per day from the formula/shakes. The shakes will allow some bowel rest and still provide nutrition. (If you can drink semi-elemental shakes, such as Peptamen, this would be preferable as they provide even more bowel rest because proteins are broken down and more easily absorbed. Downside is that the shakes don't taste all that great.) And, one more downside from any of the shakes is that some people, my son included, had d while on the shakes (ie liquid in, liquid out) but had no pain or urgency.

But, what I'm suggesting is only a temporary measure! While my son did use EEN to induce remission (his maintenance med is also remicade), his use of EEN for a longer period was under the supervision of his GI and nutritionist.

What is your GI recommending as the next step?

__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
01-06-2015, 07:43 PM   #8
pnw-crohnie
 
Join Date: Dec 2014
I can't get in to see my GI until April, but I did make an appt. I've been seeing the RN from my infusion center. I called today to let her know the Lomotil isn't completely getting it under control.

I am drinking the nasty shakes yeah. She gave me some called Vital cal and I am also eating a small amount of normal food. Lots of Naked smoothies too
01-07-2015, 08:58 AM   #9
MirrorBride
 
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Be careful with the smoothies. Some fruit is still very fiberous and hard on digestion unless fully juiced. Smoothies are just blended, not juiced. Check the fiber content before you drink up!
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23 years old
Diagnosed CD Dec 31, 2014
Current Meds: Entyvio (soon), 75 mg of 6mp, Prednisone taper
Past Meds: Budesonide, Humira, Remicade
Others: Calcium & Vitamin D, Multi
Unrelated to CD: Zoloft, Zyrtec, Junel

01-08-2015, 01:05 PM   #10
pnw-crohnie
 
Join Date: Dec 2014
The most fiber is 5g, from the blueberry one. Is that a lot?
01-08-2015, 02:11 PM   #11
MirrorBride
 
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That should be fine! What I mean is if you're taking fresh fruits and blending them yourself, some fruits are very fiberous and can irritate (pineapple being one). Basically fruits with lots of fiber or seeds (strawberries) should be used with caution, as they can irritate. But of course, it depends on the person. You might tolerate certain things better than others.
01-08-2015, 02:57 PM   #12
pnw-crohnie
 
Join Date: Dec 2014
Thank you! I've been trying not to eat fruit and veggies and whole grains. Sucks cause usually I eat anything I wsnt and I'm a pig lol (95 pound pig, but nonetheless I eat a lot
01-08-2015, 08:10 PM   #13
MirrorBride
 
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Oh I know exactly what you mean! I love whole grains, but now it's white bread all the time...at least, until I achieve remission!
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