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Crohn's Disease Forum » Books, Multimedia, Research & News » Urge the Social Security Administration to Add Crohn’s Disease & Ulcerative Colitis to its Compassionate Allowance List


01-04-2015, 02:17 AM   #1
aurumjd
 
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Location: New Jersey
Urge the Social Security Administration to Add Crohn’s Disease & Ulcerative Colitis to its Compassionate Allowance List

To all,

More than 1.6 million Americans live everyday with Crohn’s disease, ulcerative colitis, and indeterminate colitis, three chronic, incurable, and debilitating inflammatory bowel diseases (IBD) that cause crippling abdominal pain, persistent diarrhea, rectal bleeding, fever, and weight loss, among other symptoms. IBD often prevents patients from working or attending school. Frequently, they end up hospitalized with life-threatening complications.

Every year, the Social Security Administration holds hearings to add illnesses to its Compassionate Allowance List (CAL). We urge the White House to require the SSA to convene a hearing to add IBD to this list in order to expedite the approval of benefits for patients living with these chronic, incurable, and debilitating digestive diseases.

Please follow the below link to sign the petition.

http://wh.gov/igOWD

Thank you for your time.
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Diagnosis: Crohn's Disease (moderately active regional ileitis) - 2012
Associated conditions: Intussusception, Infected cecum, multiple bouts of C-diff infection and last but not least GERD.
Past Medications: Humira (allergic), 6-MP (caused jaundice), Entocort (side effects too severe after years of use), Pentasa and various antibiotics with little effect. Remicade infusions (contracted C-diff and had to stop).
Surgery - Laparoscopic exploratory surgery
Procedure - Fecal Transplant.
01-04-2015, 06:35 PM   #2
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Crohn's Disease Forum » Books, Multimedia, Research & News » Urge the Social Security Administration to Add Crohn’s Disease & Ulcerative Colitis to its Compassionate Allowance List
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