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Crohn's Disease Forum » Extra Intestinal Manifestations » Too many symptoms at the wrong time?


01-06-2015, 02:31 PM   #1
Kpzone
 
Join Date: Jun 2014
Too many symptoms at the wrong time?

DS is 18 and diagnosed w/Crohns ileitis. Since then he was put on pentasa, uceris, now 6MP & Canasa suppositories. We have been thru ups and downs in 18 months with other symptoms that he never had before: terrible migraines, erythema nodosum in the lower legs, and just yesterday uveitis. My surprise is that his intestinal 'stuff' is under control (no abd pain, formed stools, normal freq, no vomiting, gaining weight again & no longer anemic) [with the exception of rectal pain/inflammation] and from what I read these extra intestinal things usually occur when the CD is in a flare or do I have it wrong? My understanding is that 'treat the CD and the extra stuff goes with it'. I am not understanding how or why he would get uveitis while his gut seems to be doing better than he has in 2 years. The uveitis came on super quick meaning less than 1 day he went from full vision & no redness to completely bloodshot eye with pain, swelling & light sensitivity in one eye only; by the next morning the other eye looked the same. Ophthalmologist confirmed uveitis and started pred-forte drops (only on the first 12 hours of treatment currently for this). My gastro is scratching his head also as he said this was so quick and we seem to be getting the CD under pretty good control.

I am very confused and cannot make heads or tails of anything anymore. Does anyone have any thoughts on these EI symptoms coming while not showing GI symptoms? Any experience welcome. I am learning as much as I can and appreciate practical experiences- we are not cut from a book!

current meds:
Pentasa 1500mg 2x/day
Uceris 9mg every other day
6mp increased to 100mg/day
Canasa sup 1000mg daily
pred forte drops every hour while awake for 5 days then will taper slowly
01-06-2015, 03:55 PM   #2
lilac
 
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I get the EI stuff regularly these days but to be honest its usually a precursor to loose/bleeding/mucusy stools (at the least) for me. I wouldn't be surprised if someone tells you the EI symptoms can occur on their own - crohns is so unpredictable. Hope relief comes soon for him, erythema nodosum can be extremely painful!
01-07-2015, 12:26 PM   #3
my little penguin
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Hugs
There is a parents group here ( even older kids ) they may have some ideas
http://www.crohnsforum.com/forumdisplay.php?f=49

Has he been seen by a Rheumo ?
Uvetis and EN can be signs of SpA which is common in crohns
And sometimes flares independent of Gi flares
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01-07-2015, 12:27 PM   #4
my little penguin
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