Hi my name is Christina. I have been on
Humira for just a little over a year now. It has put me in
remission which has been fabulous. I've gained weight back, I can live a basically normal existence. However in November I got a really severe throat infection. I took a strong anti-biotic and then it was gone. Now in December (well it was in Dec) I got a sinus infection. My doctor told me not to take my injection until my anti-biotic was toward the end and I was feeling better. I called my GI and she said no way that she didn't feel I needed to wait (despite all I have heard about people not injecting when they are sick) to wait at all, but if I did only maybe 2 days. So I listened to my GI since my crohns I feel takes precedence over anything else and I trust them. Well I could feel the anti-biotic not working this time and I am still sick. I went back to my dr two weeks later and she was furious at the dr and at me for not listening. Now I am waiting to see whether I have to take another round of anti-biotic. I am trying not to, but at the same time I'm afraid if I don't I'll stay sick. Everyone in my house is sick
My question is do you guys inject when you're sick? What does your GI/Dr. say about it?
Also being on Humira scares me. Mostly what I hear is that the benefits out weigh the fears and that I should stay on it. Does anyone in remission try to come off of it? From what I understand they don't, and can't just easily go back on it. That is why I was afraid to deviate at all from taking it the way I am supposed to, but my regular dr sounded like it was no big deal to not take it a couple of weeks to get over an illness. I have night sweats (I have been checked for them and they don't find anything, and I get some really bad headaches that feel somewhat due to humira. I also have a couple of spots of ringworm and/or psoriasis since the humira that don't go away.
So now I'm sick with lots of head pressure, ear popping/ringing, and filth that feels like it may be moving into my chest. My dr said I could call for a zpack but I've already had an antibiotic in November and then in December. I had 800 mg of amoxicillin I believe, then only 500 of ceftin this last time only a couple of weeks ago, this time would be a zpack. Should I do the anti-biotic, not do it? Will I just keep getting sick? I don't know I'm confused.
Thanks,
Christina
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Christina 34, MS Clinical Mental Health Counselor NCC at the Center for Integrative Therapy in Westport, CT. Trader Joes employee part time.
Mother of Tyler (13) Twin Girls Rian (11) Victoria (11)
My girlfriend is amazingly supportive!
Dx'd with Crohn's Disease 8/29/2013 6 inches of diseased terminal illeum. As of December 2014 currently in remission!
Humira as of Dec 18
B-12 injections monthly
2,000 iu Vit D daily
250 mg florastor probiotic 2 x daily
.25 Xanax as needed