Share Facebook
Crohn's Disease Forum » Parents of Kids with IBD » Humira and higher temperatures


02-01-2015, 03:47 PM   #1
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Humira and higher temperatures

So DS obviously is not doing better
Tired fussy today
Stomach pains
Chills again
And now elevated temp of 100.2F
So I am suppose to call on call Gi or take him in for temps above 100.4 F
He is not sick---just playing videos games

Grrrrr
If the temp increase is from inflammation then holding humira could make it worse
But if the increase is from some infection ( yet to be known ) then humira will make it worse .

Has anyone been permitted to use humira when temps were hovering around official fever range ? Even if the kid wasn't sick .

He is due for humira on feb 4th - Wednesday .
__________________
DS - -Crohn's -Stelara
02-01-2015, 04:00 PM   #2
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
Grace has low grade fevers nightly from her JIA and IBD? between 99.2-100.1.
She's was allowed to have her Humira because we knew what was/is causing it.
Have you called the on-call GI?
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
02-01-2015, 04:04 PM   #3
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Waiting to see if it goes any higher .
Gi is aware of the lower grade ones he has had on and off past two weeks (99.2-99.8F)
If it goes above 100.4f then I have to call
Hoping to wait till morning so his Gi can get the update .
02-01-2015, 05:18 PM   #4
Maya142
Forum Monitor
 
Maya142's Avatar
Same with M - between 99.8 and 100.2F. We think it's the arthritis and not the IBD causing them, but it could be both.
__________________
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
02-01-2015, 05:40 PM   #5
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
Sorry to hear. Keep us posted.
__________________

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
02-01-2015, 09:24 PM   #6
Pilgrim
Senior Member
 
Pilgrim's Avatar
 
Join Date: Jul 2014
Location: Ontario

My Support Groups:
Fortunately, you have a few days of office hours before injection for them to get in touch with you.

Hope he's ok and can keep on treatment.
__________________
Mom to daughter,age 5, diagnosed at age 3 with Crohn's Disease
Current Treatment: Humira (started 12/2014) moved to weekly injections (07/2015), Back to 50% EN orally. Zinc supplements. Calprotectin through the roof.
Previous Treatment: Azathioprine (discontiued 09/14 due to Pancreatitis) Flagyl, Sulfasalazine, EEN, Iron,Vit D, Zinc, SCD
02-01-2015, 09:50 PM   #7
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
I'm glad he isn't feeling sick. I hope the fever goes away by morning.
__________________
Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
02-02-2015, 02:01 AM   #8
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Abdominal pain got worse
Went Er
They admitted him for observation
02-02-2015, 05:32 AM   #9
Sascot
Forum Monitor
 
Sascot's Avatar
 
Join Date: Aug 2011
Location: Falkirk, United Kingdom

My Support Groups:
Hope they can help and it doesn't end up being too serious
02-02-2015, 11:18 AM   #10
DanceMom
Senior Member
Just checking in on your boy. Any word on what may be causing his pain?
__________________
A is 12

Diagnoses: Immune Dysfunction, Hypogammaglobulinemia, Asthma, Allergies

Treatment: Privigen (IVIG), Flovent, Zyrtec, Cellcept
02-02-2015, 01:31 PM   #11
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Scopes bumped to the morning
Gi is Talking to Rheumo about some other things that mimic crohns didn't say what he thought it was ..
Not caused by constipation
Think his Left lower colon/rectum is inflamed
Not our Gi though
02-02-2015, 01:36 PM   #12
Clash
Forum Monitor
 
Clash's Avatar
Hugs! I hope things improve quickly!
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
02-02-2015, 02:17 PM   #13
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Sorry, MLP...

Hope you get some answers soon and his pain is lessening!

Lots of hugs and support your way!!
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
02-02-2015, 02:19 PM   #14
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Adding mri of pelvis on as well
At this rate at least all the tests get done quickly .
Much faster than outpatient
2:00 in the afternoon and clean out not started yet
02-02-2015, 06:18 PM   #15
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
I am so sorry to hear but as you said at least inpatkent you get things done faster. Sending you hugs and hopefully they figure out what is going on.
02-02-2015, 10:20 PM   #16
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
How's it going? Clean out done yet? Still febrile? Pain? Thinking of you both.
02-03-2015, 06:45 AM   #17
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
He is an add on scope today
So it's like flying standby
Never know when
No fever
Abdominal pain worse but holding his own
Mello yellow right now see how things go
At least he has iv fluids
02-03-2015, 08:24 AM   #18
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
Hope he doesn't have to wait too long.
02-03-2015, 08:43 AM   #19
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Going in for the scopes now
Thankfully
02-03-2015, 08:46 AM   #20
DanceMom
Senior Member
Glad he is getting them done early! Hope this provides some answers!
02-03-2015, 08:58 AM   #21
Pilgrim
Senior Member
 
Pilgrim's Avatar
 
Join Date: Jul 2014
Location: Ontario

My Support Groups:
Thankfully he can just get in and get them done. Praying for answers for you.
02-03-2015, 09:56 AM   #22
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
Praying all goes well. Check back in when you can.
02-03-2015, 11:19 AM   #23
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Thinking of you guys!
02-03-2015, 11:55 AM   #24
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Visually good
Just some loss of vascularity on the transverse colon
Now we wait on the biopsy results
Since he always looks good
Hopefully a plan that doesn't involve IBS comes together
02-03-2015, 12:13 PM   #25
DanceMom
Senior Member
I know that feeling when "things look good." You want to be happy that your child's insides aren't a mess, yet you know something is wrong and it most certainly isn't IBS! Could this possibly be a virus? I just went through a week of abdominal pain that ended with mild diarrhea and one vomiting episode. I can only assume I caught something from somewhere. If I had IBD I would have been positive it was a flare due to the amount of pain I was in. I just hope you get answers and relief for your boy.
02-03-2015, 02:04 PM   #26
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
No virus been
Going on for over a month
His scopes never ever look bad which is a good thing
We never know anything until the biopsies are back
It's hit or miss on those
He looked great at dx so much so gi thought functional even prescribed meds
But decided to wait for biopsies
Granulomas thoughtout then
So now we get the standard it looks ok but the may never tells DS story

At least he is being released
Stomach pain no better
So not constipation
02-05-2015, 09:16 AM   #27
Pilgrim
Senior Member
 
Pilgrim's Avatar
 
Join Date: Jul 2014
Location: Ontario

My Support Groups:
How's he doing, MLP? Thinking of these kids who are having a rough time right now.
02-05-2015, 09:23 AM   #28
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
I'm glad he got to go home. Hope the biopsy reports come back quickly.
Reply

Crohn's Disease Forum » Parents of Kids with IBD » Humira and higher temperatures
Thread Tools


All times are GMT -5. The time now is 10:36 PM.
Copyright 2006-2017 Crohnsforum.com