Share Facebook
Crohn's Disease Forum » Treatment » Humira/Adalimumab » Humira as maintenance?


02-03-2015, 02:20 PM   #1
Giovanni's Mom
 
Giovanni's Mom's Avatar
 
Join Date: Oct 2014
Location: Jamaica

My Support Groups:
Humira as maintenance?

My Son just started Humira about one week ago. He got the injection Monday evening and Tuesday morning he was up with no pain in his legs (even though he has crohn's, he gets pain in his legs and joints)...he ate a huge breakfast and went to school running up and down the stairs (because he had no feet pain)..he is eating like a horse now. I am so happy for him.

GI says he should do a blood test before the next dose...just to check him. He is dependent on Calcort and I cannot wait to start tapering...and I pray everything will go smoothly.

The question is, after he is in remission (i am thinking positive), will he have to continue on Humira? or can he move on to other maintenance drug?...like Asacol
02-03-2015, 05:09 PM   #2
FrozenGirl
Senior Member
 
FrozenGirl's Avatar
Likely he will have to continue on. It makes sense if he is at the point where he needs it to keep it. You can't go on and off biologics like Humira because you may form antibodies.
__________________
Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
02-03-2015, 06:04 PM   #3
Clash
Forum Monitor
 
Clash's Avatar
Agreed. Since pediatric CD is usually more aggressive and progressive then keeping a biologic is usually best. Most often if the biologic starts to fail then you move to another biologic. Stopping a biologic can lead to building antibodies.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
02-05-2015, 01:29 PM   #4
Giovanni's Mom
 
Giovanni's Mom's Avatar
 
Join Date: Oct 2014
Location: Jamaica

My Support Groups:
Thanks Guys.
02-06-2015, 09:14 AM   #5
Pilgrim
Senior Member
 
Pilgrim's Avatar
 
Join Date: Jul 2014
Location: Ontario

My Support Groups:
We were told that Humira treatment would be indefinite.

I'm so happy to hear his joint pain is gone!
__________________
Mom to daughter,age 5, diagnosed at age 3 with Crohn's Disease
Current Treatment: Humira (started 12/2014) moved to weekly injections (07/2015), Back to 50% EN orally. Zinc supplements. Calprotectin through the roof.
Previous Treatment: Azathioprine (discontiued 09/14 due to Pancreatitis) Flagyl, Sulfasalazine, EEN, Iron,Vit D, Zinc, SCD
03-15-2015, 06:10 PM   #6
chuckmya
Senior Member
 
chuckmya's Avatar
I've been on Humira for 6 months now! Doing well....joint and foot pain pretty much gone. As a matter of fact I've been able to start exercising 3-4 per week! It's given me my life and energy back! Haven't felt this good in years! Colonoscopy scheduled for next month to verify the ulcers on the terminal ileum have healed!!!!
03-15-2015, 06:55 PM   #7
Crohns08
Senior Member
 
Crohns08's Avatar
 
Join Date: Sep 2008
Location: Florida
I agree with the others. With TNF blockers it is important to stay on them since you can develop antibodies and in turn an anaphylactic reaction. I was on Humira for about 3-4 months in great shape before I developed a reaction. Wasn't meant to be for me but I wish you guys all the best!
__________________
Toni, Diagnosed in September '08
Specific Carbohydrate diet
Currently on:
Yoga
Vitamin D
Gabapentin
SCD Multivitamin
Tums
Percocet
60 mg pred tapering weekly
Protonix
Levofloxin
Surgeries:
09/2011 - Draining an Abcess the size of a lemon!
10/2011 - Same abcess, different approach this time, open incision!


Add Me on Facebook!
03-17-2015, 04:14 PM   #8
DougUte
Senior Member
 
DougUte's Avatar
 
Join Date: Jul 2010
Location: Kaysville, Utah

My Support Groups:
Stay on it. Humira has been a great maintenance med for me. I have been on it for coming on 4 years with no side effects and no major flares. I still battle with the "D" now and then, but nothing major.
__________________
Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin
03-19-2015, 02:18 PM   #9
Giovanni's Mom
 
Giovanni's Mom's Avatar
 
Join Date: Oct 2014
Location: Jamaica

My Support Groups:
Stay on it. Humira has been a great maintenance med for me. I have been on it for coming on 4 years with no side effects and no major flares. I still battle with the "D" now and then, but nothing major.
He is on 40mg every 2 weeks. When remission occurs, is this reduced?
03-19-2015, 02:20 PM   #10
Giovanni's Mom
 
Giovanni's Mom's Avatar
 
Join Date: Oct 2014
Location: Jamaica

My Support Groups:
Gio is on Humira for almost 2 months now. He is doing so well. I am so happy for him and pray that this will continue.
Reply

Crohn's Disease Forum » Treatment » Humira/Adalimumab » Humira as maintenance?
Thread Tools


All times are GMT -5. The time now is 03:48 PM.
Copyright 2006-2017 Crohnsforum.com