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Crohn's Disease Forum » Parents of Kids with IBD » UC and Type One Diabetes in Teens


02-04-2015, 11:10 AM   #1
lhaapala
 
Join Date: Feb 2015
UC and Type One Diabetes in Teens

My son was just diagnosed with UC. Because of the Type One Diabetes, we tried a lower dose of Prednisone, which did not help the UC symptoms, it only threw is blood sugar levels out of control. Any advice would be greatly appreciated.
TIA
02-04-2015, 11:58 AM   #2
crohnsinct
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Location: California

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Oh man! Sorry to hear this. I don't know about it's use with diabetes but there is an alternative to steroids and that is Exclusive Enteral Nutrition. This is where the patient does not eat or drink anything other than nutritional shakes for a period of 6-8 weeks. Some people are allowed broth and such but mostly you will find it is exclusively shakes. They do have a lot of sugar in them though so I am not sure what affect on the diabetes that will have. There are a number of different formulas out there. Perhaps the GI and endo can work together to figure out which might be best.

EEN has been shown in many studies to induce remission just as well as steroids and even better because it does help with mucosal healing where the steroids might not.

I do think it is more effective with Crohns than UC but that being said, my daughter's disease was almost all colon and it worked for her. It also worked for her friend with UC.

What maintenance med is he on? Most of them take a while to get to therapeutic levels. The Biologic are a bit faster working and could cut down on this initial period quite a bit.
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
02-04-2015, 12:07 PM   #3
lhaapala
 
Join Date: Feb 2015
Thanks so much !! We go to the doctor today so I will check with him. I don't know if I can get a 17 year old boy not to eat for that long. lol

He was just diagnosed on January 21st, so we are new to this. He has been diagnosed with T1D for 11 years, so we are pros at that.

I really appreciate your response.
02-04-2015, 02:36 PM   #4
crohnsinct
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Forgot to point out that water is always allowed. Not much of a consolation but it is something.

It is a difficult therapy. My older daughter was desperate for a solution and did very well with it. My younger one is having a slightly more difficult time of it. We just take it a day at a time. If the doc feels it is a good alterative you could always just try. No harm in that. If he finds it to difficult then you can have a back up plan. That is how we worked it with my younger daughter...do what you can and if at any point you want to bail, just ay the word. The first 3 days are the hardest. After that they sort of get used to it.

Good luck at he appointment. Let us know how it goes.
02-05-2015, 08:46 AM   #5
CarolinAlaska
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Is he on prednisone? I don't know a lot about UC (my daughter has Crohn's), but entocort is a steroid that works differently further down in the GI tract and has fewer systemic side effects. You may consider that option with your son's doctors.
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
02-05-2015, 09:11 PM   #6
Catherine
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Location: Melbourne, Victoria, Australia

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Paging Aura

I think her dealing with both Crohn's and Diabetes.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
02-05-2015, 09:20 PM   #7
my little penguin
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Uceris covers just the colon but less issues than pred
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