Hi there!! I hope everyone is doing well. It's been awhile since I've been on here. I got a new phone and it took me awhile to remember the app to download.
So the last I posted I was asking for suggestions regarding labs as it was very traumatic the last time (bruises on her arm from restraining her, screaming, crying, etc) and we were given a pass on her last set because she was doing so well. Well, she's been having some rashes and allergic reactions and her dermatologist ordered labs and of course we dreaded that. I'm happy to report that we went with a different lab at a local hospital and she never even knew they drew blood. It was amazing! I cried and hugged the nurses and couldn't thank them enough for making that experience truly amazing.
So aside from our amazing lab visit, my little bug is having some other issues that just popped up about 3 weeks ago. She's holding her BM's. Screams in pain asking for us to take her to the hospital, begging us to help her. It's heart wrenching.
The GI thinks she's constipated, and when this started, her stool was hard once. But since it's been very soft and we've been giving her mineral oil and Miralax. The Miralax makes it very watery so we've stopped that. But she still refuses to poop. Eventually she has a BM because it has to come out, but she won't use the toilet and ends up soiling her underpants, going on the floor, in the tub, or a pull-up if she'll wear it. All of that preceded by her pacing , screaming and crying. She's holding her urine somewhat too because she is scared she'll poop. She said it hurts to poop and it stings. We've not seen any blood at all and she's only taking sulfasalazine.
I put a note in with the GI again today as hubby and I think this is more than constipation. Anyone dealt with anything like this?
-Susan
Mom to Ella
Dx'd with UC 8/2013
So the last I posted I was asking for suggestions regarding labs as it was very traumatic the last time (bruises on her arm from restraining her, screaming, crying, etc) and we were given a pass on her last set because she was doing so well. Well, she's been having some rashes and allergic reactions and her dermatologist ordered labs and of course we dreaded that. I'm happy to report that we went with a different lab at a local hospital and she never even knew they drew blood. It was amazing! I cried and hugged the nurses and couldn't thank them enough for making that experience truly amazing.
So aside from our amazing lab visit, my little bug is having some other issues that just popped up about 3 weeks ago. She's holding her BM's. Screams in pain asking for us to take her to the hospital, begging us to help her. It's heart wrenching.
The GI thinks she's constipated, and when this started, her stool was hard once. But since it's been very soft and we've been giving her mineral oil and Miralax. The Miralax makes it very watery so we've stopped that. But she still refuses to poop. Eventually she has a BM because it has to come out, but she won't use the toilet and ends up soiling her underpants, going on the floor, in the tub, or a pull-up if she'll wear it. All of that preceded by her pacing , screaming and crying. She's holding her urine somewhat too because she is scared she'll poop. She said it hurts to poop and it stings. We've not seen any blood at all and she's only taking sulfasalazine.
I put a note in with the GI again today as hubby and I think this is more than constipation. Anyone dealt with anything like this?
-Susan
Mom to Ella
Dx'd with UC 8/2013