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Crohn's Disease Forum » Surgery » Stoma Subforum » Diversion Colitis


02-07-2015, 04:20 PM   #1
tracyandkevinp
 
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Diversion Colitis

Hi All

I had surgery in October 2014 for aggressive crohns, subtotal colectomy and ileostomy. I was doing fairly well but have been diagnosed and struggling with the above for approx four weeks. Consultant suggested trying prednisolone suppositories, buscopan and over the last week instillagel as a suppository on an evening. The pred offers some minor relief, as does the buscopan but the instillagel aggravated the problems and pain especially. I struggle to retain enemas as have had perianal fistula surgery previously. I was wondering if anyone has any suggestions or can recommend a suitable treatment please?

Thanks for reading.
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Diagnosed: Crohns TI 2009 (now 43yrs old). Previous peri-anal fistulas and abscesses, surgical excision and laying open of tracts. Colostomy 2007 and reversal. Oct 2014 dx Aggressive Crohns to whole of large bowel - Subtotal Colectomy and Ileostomy. Nov 2015 AP Resection as the disease returned again in the rectum.

Severely allergic to most standard and biological crohns treatments.

Crohns mum to our 10yr old daughter also diagnosed with Crohns Disease in Jan 2016.
02-07-2015, 04:22 PM   #2
DJW
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Sorry, no suggestions. I hope you start feeling better soon.
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Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
02-08-2015, 04:07 AM   #3
Samboi
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I had the same thing. Colitis as a result of the diversion and the little stump left was a real little bugger. I alternated between Pred Foam and colifoam.
Even though it was not connected - I found that drinking milk would really set it off.
The only real relief happened with the reversal.
It was initially very very bad but settled over time. But it never went away the whole time I had my stoma.
Hope you get some relief
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Dx - Crohns Disease - 1992
Ileostomy - Jan 2012, Reversed Aug 2013
Pred works, all else seems to fail
Trying Vedoluzimab - running out of options
Neupogen
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