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Crohn's Disease Forum » Ulcerative Colitis Forum » Help! anyone with knowledge of C Diff


 
04-12-2015, 12:47 AM   #31
Ann Morgan
Senior Member
So sorry to hear all this Ann

Bleach is inexpensive which is one positive. Why can't you go back to your group? Are the immunosuppressed people, or are you just too sick?

I hope you get the medicine you need soon
I told a teacher at my facility that I have c-diff and that I was not returning to the program at this rime. I really want to be responsible and take precautions to make sure I don't pass this c-diff to any of the other clients. The facility has clients that have mental health issues of many kinds. Some clients are older, some clients are poor, some clients are even homeless. So, really, there may be a possibility that I got the c-diff FROM the facility ??? Many, many clients are sharing two bathrooms and I am sure that everyone is not educated about proper hand washing, etc. I even sent an e-mail to a teacher there about them teaching good hygiene in their classes there.

I did not know I could reinfect myself at home? I live in a tiny one room apartment. My bathroom consists of a toilet and a shower stall and the bathroom door, AND NO SINK. Yes, NO SINK. This is the smallest studio apartment I have ever lived in ! So, guess where the one and only sink is located.....the kitchen. After I use the restroom I have to wash my hands in the kitchen sink. This is gross, but it is just the way it is. I also have a very small food preparation area in my kitchen. Honestly, my kitchen and bathroom preparation areas are the same. I have a medicine chest in my kitchen. THEN my one closet is located in my kitchen ! So, the kitchen is my bathroom sink/medicine chest/tooth brushing area.....and it is a food preparation area/appliance area.....and is it a dressing room/closet area. ( Yes, I live alone. It is only 300 square feet).

AND in my bathroom I have a plastic raised toilet seat. After I have a bowel movement ( which is always lose or diarrhea-ish) I have to clean and sanitize the raised toilet seat and underneath it and the top of the real toilet seat ( anyone confused yet). AND THE LAST GROSS THING......I use COTTONELLE WIPES every time I have a bowel movement. I CANNOT flush those wipes down a 40 year old toilet/sewer system. So, I have to throw the used wipes in my trash can ( which is located under the kitchen sink. I only have one trash can at the moment)

Well, all this is gross and strange, but it is my life ! Yikes !
That Vancomycin had better work.

Good Night.😴
04-12-2015, 08:11 PM   #32
SJ!
 
Join Date: Dec 2012
Location: Sydney, New South Wales, Australia

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Oh this is so difficult for you Ann.

It might be a good idea to put a small bin in the bathroom next to the toilet separate to the kitchen bin. Being sick is so expensive, but you might be able to source a new bin from a junk store for a few dollars. I would line the bin with plastic grocery bags, as they're usually free. A bin with a swing lid or foot pedal with a lid would be much better than a bin without a lid.

I have a bin next to the toilet in my home that I use for disposing of female sanitary products. As far as washing your hands, I'm wondering, if you have a shower, washing your hands under the shower tap might be a far better solution at the moment. But I'm getting an image of you all sprayed wet from the shower, you poor thing!

My only other advice at the moment could be to have a hospital grade hand sanitizer in the bathroom to rub on your hands before touching the kitchen taps. And according to the above mentioned document on prevention you can add a small measure of bleach to the dishwater for your cutlery and plates etc. But apparently you need to use the bleach separate to the soap wash as the soap prevents the bleach from sanitizing, Wow I'm learning stuff here! Below is a document on cleaning the kitchen!

http://www.nfsmi.org/documentlibrary...0713093708.pdf

I hope this can work for you, it was very overwhelming for me when I started to clean the home to this standard. If you can't do it all, I would mention this to your doctor. In Australia there is a homecare government organisation to help people, is there any other help you can get Ann?
__________________
Sarah xx Swimming Teacher

Wife to Greg who has Indeternminate Colitis

Diagnosed November 2012 Indeternminate Colitis

Current Meds.
3.5grams Sulfasalazine
Remicade
Prednisone
Vancomycin
Vitamin D
Iron[/COLOR]
Previous:2012 PANCOLITIS, C-Diff, 100mg IV pred, Vancomyacin, Flagyl, blood transfusions.
04-12-2015, 10:27 PM   #33
Ann Morgan
Senior Member
I don't think I can read any more of those articles. I am getting panicked. Why don't doctors tell me this stuff. I have to rest now. Hopefully I start my Vancomycin tomorrow. Have a good week. I am tired.
04-16-2015, 12:17 AM   #34
SJ!
 
Join Date: Dec 2012
Location: Sydney, New South Wales, Australia

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How are you Anne? I hope you're feeling better...
04-16-2015, 12:42 AM   #35
Ann Morgan
Senior Member
I just started my Vancomycin today. I have to take it 4 times a day for 14 days. And I will start taking a Probiotic tomorrow. I am done seeing the doctor, grocery shopping, laundromat, gas station, pharmacy and such....so now I need to relax And no more phone calls to doctors office, insurance company and my Pharmacy ! I am abnormally tired most of the time. The Vancomycin was expensive.
04-16-2015, 04:03 AM   #36
SJ!
 
Join Date: Dec 2012
Location: Sydney, New South Wales, Australia

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It's a tough time for you! I am praying the medicine works quickly for you x
05-21-2015, 10:27 PM   #37
Ann Morgan
Senior Member
Ok.Are there two C-diff threads here. I am confused. My doctor said I was OK on April 30th. I will soon resume my "regular" activities if I can get out of my recliner and out my front door !!!! I stayed home the entire month of April because of the C-diff.... so now I am a "couch potato" and I am not socializing. Good Night for now.
07-02-2015, 12:35 PM   #38
4Seasons
 
Join Date: Jul 2015
I was Dx with UC in 2006. I have had right-sided pain, duodenitis, esophagitis and a peptic ulcer - all in the middle of flare. My doctor recently Rx Vancomycin, for what I thought was the ulcers... I didn't know that this drug was used for C. Diff. I don't understand why my GI specialist would Rx Vancomycin without telling me if she thought I had C. Diff. I'm so frustrated.
07-02-2015, 01:07 PM   #39
Ann Morgan
Senior Member
My c-diff is gone, but I am still staying home and not socializing g and it is July 2nd. Yikes. Summers ate HOT here. Everyone have a safe weekend.
07-03-2015, 07:35 PM   #40
SJ!
 
Join Date: Dec 2012
Location: Sydney, New South Wales, Australia

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I'm glad you're c-diff is gone Ann!

And you're socializing with us crazy bunch!

Have a good weekend too!
11-04-2015, 04:11 AM   #41
Freeman
 
Join Date: Nov 2015
New to the forum Ann, I have recently just overcome C-Diff as well. The healing process is very frustrating when trying to get rid of C-Diff. According to my specialist once you have C-Diff it id impossible to retest again to see if you are completely rid of it until 6-12 wks. The meds are supposed to work after the 10-14 day treatment, so this is what they base their information on. I learned after having it 5 times that you have to just learn to recognize the symptoms and notify your GI asp to see if you have to be placed back on another treatment. Whenever I have had it the normal signs of painful diarrhea increases, with pain in lower abdomen and my left side, but the weird thing is that my stool doesn't have a smell at all....weird right? But those are my symptoms that alert me to the fact that it has returned. Everyone is different and I think this is what makes it so frustrating for many...because what works for one may not work for you..its trial and error until the right combo is found for you. Currently I have Rimacaid Fusion Treatments (new) that actually seem to be working well for me. It's receieved through a port placed in September. I have been given a little of my life back but there is still more to go in the healing process....I'm very hopeful for regaining it back fully soon...Best Wishes and continued good health Ann. Keep in touch and I will let you know my progress.
11-04-2015, 04:16 AM   #42
Freeman
 
Join Date: Nov 2015
New to forum looking forward to getting to know you all....
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