I am the significant other of someone with Crohn's. I am in the middle of a crisis so I will have to skip the long intro and all the recent emotional issues and get right to my main question.
My boyfriend is still in the hospital due to major complications this just-diagnosed Crohn's. We thought he just had UC before and his large intestine was removed six years ago. He's been in the hospital 11 days and counting now because the j-pouch he's had for six years ulcerated, a massive fistula formed, and drained into his leg. He hasn't been able to eat or drink much the last 10 days, but his stomach bloated and swelled with bile. A few days ago they put an NG tube in his stomach so any food he eats isn't really being absorbed. Before the NG tube he only had sips of the following: Sprite, Gatorade, lemonade, and of course water.
One of my many concerns at this point is the food that is being given to him. His parents bought him Lifesavers(high fructose corn syrup) to suck on. Now today he ate four popsicle sticks from kroger (likely to have corn syrup). I am concerned because his stomach has not has food in 10 days (just IV fluids), and I fear this food may upset his crohn's more. Soon hopefully the NG tube will be taken out and I feel this may be the time to make sure his parents understand how important this is to his health. Do you think there is need for concern about a crohn's patient in ICU having corn syrup? My main struggle is getting people to listen to me about eating healthy food. I need some powerful advice, articles, or information, because coming straight from me isn't working fast enough. His family are practically advocates for junk food/fast food, they have no apparent knowledge on food nutrition. They keep talking about junk food and eating it around him while he is stuck to a hospital bed. Please help me if you can.
My boyfriend is still in the hospital due to major complications this just-diagnosed Crohn's. We thought he just had UC before and his large intestine was removed six years ago. He's been in the hospital 11 days and counting now because the j-pouch he's had for six years ulcerated, a massive fistula formed, and drained into his leg. He hasn't been able to eat or drink much the last 10 days, but his stomach bloated and swelled with bile. A few days ago they put an NG tube in his stomach so any food he eats isn't really being absorbed. Before the NG tube he only had sips of the following: Sprite, Gatorade, lemonade, and of course water.
One of my many concerns at this point is the food that is being given to him. His parents bought him Lifesavers(high fructose corn syrup) to suck on. Now today he ate four popsicle sticks from kroger (likely to have corn syrup). I am concerned because his stomach has not has food in 10 days (just IV fluids), and I fear this food may upset his crohn's more. Soon hopefully the NG tube will be taken out and I feel this may be the time to make sure his parents understand how important this is to his health. Do you think there is need for concern about a crohn's patient in ICU having corn syrup? My main struggle is getting people to listen to me about eating healthy food. I need some powerful advice, articles, or information, because coming straight from me isn't working fast enough. His family are practically advocates for junk food/fast food, they have no apparent knowledge on food nutrition. They keep talking about junk food and eating it around him while he is stuck to a hospital bed. Please help me if you can.