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03-14-2015, 05:42 AM   #1
upsetmom
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Thoughts please

I haven't been diagnosed with anything but l wanted some thoughts on my situation.

For the last 8 years l have had a constant pain near my bellybutton and right hip. Bowel motions range from normal, to smaller pieces or pencil thin. Over the years l've had numerous tests done but nothing showed up, so in the end l just gave up looking for answers.

A few days ago after a normal bowel motion l started to get intense pain in my rectum. I've had this pain before but it's usually gone in a day or two. Its now been 4 days and the pain is still there. It hurts to sit, walk, cough and even pass gas. I've also got a fever, which l've never had before. Any ideas?...... With my daughter having crohn's l can't help but think l've got it too.
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03-14-2015, 11:55 AM   #2
FrozenGirl
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Hmm. Hard to say, maybe get a CRP or a fecal cal protein to start and go from there.
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03-14-2015, 05:34 PM   #3
Catherine
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How are you today?
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Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
03-14-2015, 07:40 PM   #4
Farmwife
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Sorry I missed this.
Have you been in touch with your doctor yet?
The fever issue would trouble me a bit.
I know when Grace's rectum would swell it hurt more after she passed the stool than before.
Hugs
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Ibd (microscopic)
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dx Juvenile Arthritis
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dx Erthema Nodosum
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Bladder and Bowel Dysfunction
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Ehlers-Danlos Syndrome dx (1/26/17)
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03-14-2015, 09:04 PM   #5
upsetmom
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I'm still the same. Without pain killers the pain is unbearable.

I though it might resolve on it's own like it has in the past so that's why l never contacted my DR. I'll be making an appointment tomorrow.
03-15-2015, 03:06 AM   #6
Catherine
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GP should be able to order faecel calprotecton if you like.

Note this test is currently not approved by medicare. The cost varies between labs so get quotes.
03-16-2015, 07:47 PM   #7
upsetmom
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Saw GP. She doesn't know how l've managed this on my own. She thinks l might have a fissure inside that's become infected. Had blood tests done and l'm having a CT done in a few hours. Depending on the results l'm getting referred to a GI, l'll know more tomorrow. Also got started on antibiotics. And l'm still in a lot of pain.
03-16-2015, 08:44 PM   #8
valleysangel92
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Sending massive hugs of love and support, hope you start to feel better soon!!
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Nicola
coeliac disease/Osteopenia /Crohns/Arthritis/
laperoscopic hemicolectomy 25/06/ 2013

Meds- Vedolizumab, sulfasalazine, Lansoprazole, Vitamin D, prochlorperazine, Oramorph, MST, B12 shots My journey with crohns: http://glutenfreecookiemonster.wordpress.com/

Allergic to - inflectra, aza

Non CD meds - Gabapentin, paracetamol, ventolin
03-16-2015, 09:42 PM   #9
Cross-stitch gal
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I'm sorry to hear you're feeling so crappy. (even though a different word probably could have been better) Hope they can get you taken care of soon. Lots of hugs to you. Xxxxx
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03-16-2015, 10:05 PM   #10
lenny
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When my son was diagnosed in 13' with Crohn's, my daughter (who had been diagnosed in 04') asked, "Do they just think he has Crohn's because I have Crohn's?"

No. They'd done biopsies.
03-16-2015, 10:15 PM   #11
Cross-stitch gal
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When my son was diagnosed in 13' with Crohn's, my daughter (who had been diagnosed in 04') asked, "Do they just think he has Crohn's because I have Crohn's?"

No. They'd done biopsies.
Cute!!!
03-17-2015, 10:55 AM   #12
lenny
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I had a fissure once, so I know how they feel. And I used to have really bad internal hemorrhoids, which a dr. prescribed steroid suppositories and they helped a lot with the pain. I finally got them banded, which really helped.

I read the internal ones don't hurt. LOL! Mine sure did!

I'm sorry you've been in pain so long!!! I hope you get relief soon! If it were me, I'd be asking for drugs of some sort. Why suffer if you don't have to?
03-17-2015, 11:15 AM   #13
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I hope you feel better ASAP.

My bowel movements have caused me tons of hemorrhoid pain internal and external.
03-17-2015, 11:33 AM   #14
Farmwife
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Saw GP. She doesn't know how l've managed this on my own. She thinks l might have a fissure inside that's become infected. Had blood tests done and l'm having a CT done in a few hours. Depending on the results l'm getting referred to a GI, l'll know more tomorrow. Also got started on antibiotics. And l'm still in a lot of pain.
Any news yet?

Sending hugs your way.
03-17-2015, 02:58 PM   #15
Catherine
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it just before 7 in the morning here.
03-17-2015, 03:16 PM   #16
upsetmom
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Thanks for all the well wishes.

Fw my appointment isn't for another 7 hrs.

Lenny l did ask if hemorrhoids could do this and the DR said l wouldn't be getting a fever with them.

I feel a lot better today.

Now the long wait till 2pm.
03-17-2015, 09:49 PM   #17
upsetmom
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Just a quick update before l head off .

Receptionist rang me and said DR wants to see me earlier. I have a 5cm abscess in my lower rectum that's pushing my bowel to the right and sever inflammation. Blood tests are showing l'm very sick.. Dr told me to go straight to hospital.

Thanks for all the support, will update when l get back.
03-17-2015, 11:33 PM   #18
Catherine
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Hoping the trip to hospital gives some relief.

Last edited by Catherine; 03-18-2015 at 01:08 AM.
03-18-2015, 12:22 AM   #19
Cross-stitch gal
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Good luck. Sorry it's not good news, but hopefully it'll be an easy fix. Hugs...
03-18-2015, 09:00 PM   #20
Catherine
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upsetmom

Here hoping that trip to hospital has given you some relief.

Update us when you can.
03-18-2015, 11:04 PM   #21
Maya142
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So sorry to hear upsetmom. Really hope you start feeling better soon
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Mom of S (23)
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03-19-2015, 04:50 AM   #22
AJC - Australia
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good luck with the abscess.
NO FUN.
Hopefully they drained it and it healed ok for you.
Often it is a wise move to include more fibre in your diet if you get such a thing…like eating apples, nuts, cabbage, lettuce - FIBRE, can help.
good luck
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03-19-2015, 08:04 PM   #23
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I'm sorry you've been in pain so long!!! I hope you get relief soon! If it were me, I'd be asking for drugs of some sort. Why suffer if you don't have to?
I am so beginning to agree with this. I can't seem to beat this thing with out them.

I hope you can get fixed and I pray that all people with this disease gets cured so we don't have to depend on drugs to feel good.
03-20-2015, 06:04 PM   #24
upsetmom
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Hi everyone l haven't had a chance to update as l have no internet on my phone. I'm out of hospital today....but only for the day l have to go back this afternoon.

I'm having surgery on Monday. They want the infection settled before they attempt anything. At first they thought they might be able to drain the abscess, but the surgeon said its way too high for them to reach it and its very close to the bladder. Plan is to try do it through the back passage and if that doesn't work it will be done through the abdomen. I've never been so scared in my life but it needs to come out. I'm also having a colonoscopy sometime after the surgery, surgeon thinks i'm most likely to have crohns disease.

Ok l'm going to try and enjoy the next 8 hrs at home..
03-20-2015, 06:20 PM   #25
my little penguin
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Hugs
Glad they are taking care of it quickly
Hope things settle soon and you get some answers
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03-20-2015, 06:25 PM   #26
Maya142
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Really hope everything goes smoothly!
Good luck!!
03-20-2015, 08:34 PM   #27
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I'm so glad you got to go home for awhile. That makes a big difference.
I hope surgery goes smoothly and if it's ibd..........I can suggest a great forum.

Hugs
03-21-2015, 03:27 AM   #28
Catherine
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Glad your home for a little while
03-21-2015, 05:40 PM   #29
lenny
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Good luck with your surgery!!!
03-23-2015, 12:35 AM   #30
upsetmom
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Something weird happened.

I went to have my surgery today but when they went in they found nothing there. The only thing they saw was some thickening. Since Wednesday l had been on triple iv antibiotics, they said that most likely cleared up the abscess.

A few days ago the surgeon said this abscess didn't show up overnight but strangely it disappeared in a few days...I didn't even think this was possible. I'm going to start a thread to see if this has happened to anyone else.

I'm back home now. I'm on oral antibiotics and i'm to have a follow up with the surgeon in 2 weeks....Upper and lower scopes are getting done in 6 weeks.
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